Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,949 posts

All posts for December 2017

Winter Walk for CLL Support Association

Hi everyone, I was diagnosed with chronic lymphocyte leukemia on my 68th Birthday in 2012 and was on watch and wait for 3years before treatment. I completed my...

Hi everyone, I was diagnosed with chronic lymphocyte leukemia on my 68th Birthda...

surjeet44

•7 years ago

7 Replies

alportsyndrome

my daughter is 5 and has alport syndrome rare kidney disease and my grandson is positive and my daughter they say i gave it to my daughter it is a genetic...

my daughter is 5 and has alport syndrome rare kidney disease and my grandson is...

cathybohrer

•7 years ago

2 Replies

Marijuana Kills Cancer Cells?

I've read some scientific and a lot of anecdotal info claiming marijuana kills tumor cells. Has anyone experimented with this or gained any medical benefit...

I've read some scientific and a lot of anecdotal info claiming marijuana kills t...

TXteacher

•7 years ago

9 Replies

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BGB-3111 gets a name - zanubrutinib

http://phx.corporate-ir.net/phoenix.zhtml?c=254246&p=irol-newsArticle&id=2321942

http://phx.corporate-ir.net/phoenix.zhtml?c=254246&p=irol-newsArticle&id=232194...

avzuclav

•7 years ago

1 Reply

Leg cramps

I know this has been discussed previously. I've been unable to search the site due to my cellphone and lack of laptop just now. My husband has successfully...

I know this has been discussed previously. I've been unable to search the site d...

Farrpottery

•7 years ago

17 Replies

Fungus

Hello again, on Monday our 2nd session will begin (Rituximab, Bendamustine therapy) but my husband has white spots on his face. I asked the doctor and he said...

Hello again, on Monday our 2nd session will begin (Rituximab, Bendamustine thera...

aylinozel

•7 years ago

4 Replies

Travel insurance

Hi I am looking for annual travel insurance for cruise and flying holidays. I have CLL and was diagnosed October 2015 I am on watch and wait and no treatment....

Hi I am looking for annual travel insurance for cruise and flying holidays. I ha...

robertsw

•7 years ago

15 Replies

Trying to help an acquaintance who lives close to the Black Sea,in Georgia, who has just been told that her CLL has turned into B-PLL.

Someone has reached out to me and is looking for a way to have her B-PLL treated. She lives in the Baltics and where she is located they apparently do not...

Someone has reached out to me and is looking for a way to have her B-PLL treate...

jettyguy1

•7 years ago

20 Replies

My husband has cll

Hiya I have recently joined as my husband has cll. He was diagnosed 6 years ago and is still w&w it is good to join a group that is specifically for cll.

Hiya I have recently joined as my husband has cll. He was diagnosed 6 years ago ...

Nikkij81

•7 years ago

16 Replies

Notifications don't display any more

I used to see the number of comments/likes any of my posts had as soon as I logged on. There was a green (or red?) box with the numeral above the bell icon for...

I used to see the number of comments/likes any of my posts had as soon as I logg...

PlanetaryKim

•7 years ago

6 Replies

Dr. Furman on the Diminishing Role of FCR

Hi, As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io group forum. Dr....

Hi, As we're getting ready to head to ASH this week, we wanted to post in respon...

bkoffman

CLL CURE Hero•7 years ago

10 Replies

Swelling of neck by collar bone

My neck is very swollen above my collar bone. I’m a hair dresser, when this happens my arms hurt to lift, any idea?

My neck is very swollen above my collar bone. I’m a hair dresser, when this happ...

Dorid

•7 years ago

3 Replies

Imbruvica Atrial Flutter

My husband hass CLL 11q deletion and has been on this med for 10 months within the first month he became short of breath as the months passed by so did his...

My husband hass CLL 11q deletion and has been on this med for 10 months within ...

Pamporter40

•7 years ago

4 Replies

Road to a BMT... oops just got there (Day+20)

What a whirlwind - things have been all over the place since my last update 10 days ago, where do I start. Mark has been up and down, with fever infections,...

What a whirlwind - things have been all over the place since my last update 10 d...

NMMP

•7 years ago

9 Replies

Leukemia/Lmphoma CLL/SLL

I was wondering if anyone can help with a question. Under which does CLL fall leukemia or lymphoma? The same with SLL.

I was wondering if anyone can help with a question. Under which does CLL fall le...

Naka

•7 years ago

3 Replies

Decreasing platelet count

Can anyone help? My platelet count is within the 'normal' range but over the past three years, it's been steadily dropping. I'm afraid that this is a trend. (I...

Can anyone help? My platelet count is within the 'normal' range but over the pas...

jigsaw7

•7 years ago

2 Replies

Overwhelmed

I was newly diagnosed in January/17 I am 70 years old and have been very unwell for years..about 10, now I have this diagnosis seeing rheumatologist, she said...

I was newly diagnosed in January/17 I am 70 years old and have been very unwell ...

Irishezs

•7 years ago

9 Replies

Persistent node

so, I'm pretty sure everything's going to be fine, but my CT scan last week showed one axillary node that's not shrinking, so having a precautionary biopsy...

so, I'm pretty sure everything's going to be fine, but my CT scan last week show...

MelindaB

•7 years ago

12 Replies

Are SLL AND CLL the same thing?

Anyone diagnosed at early age like 30 ? By watching and waiting aren’t we waiting for sll to get worse?

Anyone diagnosed at early age like 30 ? By watching and waiting aren’t we waitin...

Krikri1989

•7 years ago

14 Replies

Heat Shock Protein Inhibitor (SNX-5422) and Ibrutinib

Don’t forget ibrutinib combined with a Heat Shock Protein Inhibitor (SNX-5422). There is a clinical trial going on now. (ID#NCT02973399). Also, Cart T-Cell...

Don’t forget ibrutinib combined with a Heat Shock Protein Inhibitor (SNX-5422). ...

DaleFL

•7 years ago

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When to treat?

Why do some people start treatment before symptoms? Are these a particular category of patient? I wonder % of CLL patients get treatment, and, what % do so...

Why do some people start treatment before symptoms? Are these a particular categ...

Hidden

•7 years ago

20 Replies

Sleep walking into trouble

I have had autoimmune haemolytic anaemia as a complication of CLL for three years, with two relapses after a few months off steroids. I've been on...

I have had autoimmune haemolytic anaemia as a complication of CLL for three year...

charliegirl

•7 years ago

11 Replies

Round 2 FCR complete

I have completed round 2 of FCR and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port...

I have completed round 2 of FCR and am past the lowest point (10 days post) so a...

Marie-54

•7 years ago

11 Replies

Feel like a Zombie

Has anyone experienced severe bouts of insomnia and anxiety once the started on Imbruvica? I've been on it almost 3 weeks and have only slept 3-4 days and...

Has anyone experienced severe bouts of insomnia and anxiety once the started on ...

pwebster

•7 years ago

16 Replies

Jules is back and my plans for 2018 are

Hi Everyone Some of you know I do the odd Cycle ride for Charity, CLLSA and Bloodwise. To the unfortunate new members to this site allow me to introduce...

Hi Everyone Some of you know I do the odd Cycle ride for Charity, CLLSA and Blo...

TheFlyer

•7 years ago

4 Replies

Day 2 of HealthUnlocked Holiday and Christmas campaign - What is CLL?

This year HealthUnlocked are highlighting a health condition and associated HealthUnlocked community for each of the 24 days of Advent. Today - Day 2, has...

This year HealthUnlocked are highlighting a health condition and associated Heal...

AussieNeil

Administrator•7 years ago

7 Replies

Fatigue

When did you start feeling fatigued? I have just been diagnosed and my labs are not to bad at all but I am so tired all the time. Just wondering if it’s cll...

When did you start feeling fatigued? I have just been diagnosed and my labs are...

Jbuckner-75

•7 years ago

37 Replies

Just Curious about Drinking Alcohol while taking Ibrutinib

Just wondering. 3 weeks ago, I started Ibrutinib treatments and everything seems to be going as planned ( no side effects of any kind). I guess my question is...

Just wondering. 3 weeks ago, I started Ibrutinib treatments and everything seems...

pwebster

•7 years ago

23 Replies

CLL Day Sweats! Has anyone found relief for this?!

hello everyone, I was diagnosed with CLL in July 2016 and am 'wait and watch'. Have an enlarged lymph node in my thyroid, and gall bladder. The symptom that...

hello everyone, I was diagnosed with CLL in July 2016 and am 'wait and watch'. H...

Emma_9

•7 years ago

29 Replies

Promacta for CLL/ITP

17p Del. On 100mg venetoclax (3rd week in the ramp up phase). Admitted to hospital with 5k plates, 7.8 hemo, 1.1 WBC on Friday, November 24th Team stopped...

17p Del. On 100mg venetoclax (3rd week in the ramp up phase). Admitted to hosp...

Stevediam

•7 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2017

Winter Walk for CLL Support Association

alportsyndrome

Marijuana Kills Cancer Cells?

BGB-3111 gets a name - zanubrutinib

Leg cramps

Fungus

Travel insurance

Trying to help an acquaintance who lives close to the Black Sea,in Georgia, who has just been told that her CLL has turned into B-PLL.

My husband has cll

Notifications don't display any more

Dr. Furman on the Diminishing Role of FCR

Swelling of neck by collar bone

Imbruvica Atrial Flutter

Road to a BMT... oops just got there (Day+20)

Leukemia/Lmphoma CLL/SLL

Decreasing platelet count

Overwhelmed

Persistent node

Are SLL AND CLL the same thing?

Heat Shock Protein Inhibitor (SNX-5422) and Ibrutinib

When to treat?

Sleep walking into trouble

Round 2 FCR complete

Feel like a Zombie

Jules is back and my plans for 2018 are

Day 2 of HealthUnlocked Holiday and Christmas campaign - What is CLL?

Fatigue

Just Curious about Drinking Alcohol while taking Ibrutinib

CLL Day Sweats! Has anyone found relief for this?!

Promacta for CLL/ITP

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