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CLL Support Association
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my daughter is 5 and has alport syndrome rare kidney disease and my grandson is positive and my daughter they say i gave it to my daughter it is a genetic disease no cure i have a low blood platelet count of 66 and it has been dropping for 3 years they say i need medical treatment asap my blood and sugar levels are uo and down all the time any advice or info

2 Replies

cathy, this blog is about and for those who have Chronic Lymphocytic Leukemia.

You may find answers in one of the following Healthunlocked blog sites:

Kidney Dialysis

Kidney Disease

You might also try to search for ALPORT Syndrome (there is not an s in the first word.


Cathy - whatever the cause, your platelet count is worrisome. You need a thorough medical workup. Keep us posted.



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