My husband has cll

[Nikkij81]

Hiya I have recently joined as my husband has cll. He was diagnosed 6 years ago and is still w&w it is good to join a group that is specifically for cll.

[Newdawn Administrator]

Welcome to the site to both you and your husband Nikki. Good to hear he’s still in W&W after 6 years which suggests his CLL isn’t the more aggressive type. How is he doing and how are you coping with it all?

Best wishes,

Newdawn (diagnosed 5.5 yrs ago and also still in W&W)

[Nikkij81 in reply to Newdawn]

It can be hard sometimes especially when he is due to see the hematologist but not too bad otherwise

[Newdawn Administrator in reply to Nikkij81]

We all understand the ‘consult anticipation syndrome’ Nikki but glad he’s not too bad generally.

Newdawn

[Nikkij81 in reply to Newdawn]

Thank you

[karenrge in reply to Nikkij81]

Hi Nikki, my husband also has Cll. He found out 15 years ago on Christmas Eve.

[Nikkij81 in reply to karenrge]

I am sorry to hear that I hope that all is going well

[Saska-Jul31]

I too am on W and W and was quite encouraged to see that 30% of us will never need treatment. You and your husband can hope he will be one of these.

Warm thoughts to you both.

[Nikkij81 in reply to Saska-Jul31]

Thank you and the same to you

[pkguk2 Partner CLL Support Association]

Hi Nikkij81 and welcome to the group, where you will find lots of kind and supportive people. It's good that your husband has not yet needed treatment and long may that last. If I could offer one word of advice it would be to use this site to learn as much about CLL as you can. This will help you to monitor what is happening with his CLL, particularly with his blood results, and to understand what his consultant may be advising.

Please let us know from time to time how your husband is getting on.

Best wishes

[Nikkij81 in reply to pkguk2]

Thank you and yes I will do that

[Sharon69n]

Hi all I'm on w and w too... How do you all feel about flu shots? I'm not too keen on them but oncologist feels I should be getting every year

[Nikkij81 in reply to Sharon69n]

I would recommend the flu jab as my hubby had the flu and he was really ill with it and since he has had it he hasn't had the flu

[PaulaS Volunteer in reply to Sharon69n]

Hi Sharon,

CLL specialists certainly recommend annual flu shots. Some people may get a few side effects, such as a sore arm, mild flu-type symptoms, or temporary enlargement of lymph glands. But the vaccine is not live so cannot give you the flu. The side effects can be a sign that our immune systems are responding positively to the vaccine.

The shots won't cover all strains of flu and as CLL patients we won't get so much protection as other people. So it's recommended that our close contacts - family and friend, also have the vaccination. It will be more effective for them, and if they don't catch the flu, they won't be able to give it to us!

Flu can be extremely serious, especially for CLL patients, so I'd go for it!

There are other vaccines too, that are often recommended by CLL specialists. You might find this post helpful. healthunlocked.com/cllsuppo...

Best wishes,

Paula

[Sharon69n]

Thank you very much...

[Jacksc06]

Hi. Welcome to the family, A great source of support & knowledge. Don't be afraid to ask about anything.

[Nikkij81]

Thank you