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CLL Support

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All posts for December 2017

CLL and arteritis pain

Hello every one My father have CLL and he is on ACP 196 treatment since last year. He is suffering a lot from arteritis pain and he ask his doctor if he can...

Hello every one My father have CLL and he is on ACP 196 treatment since last yea...

agneshun

•7 years ago

2 Replies

symtoms of cll

Hi, Can one with cll never get syptoms and never have treatment? Thanks!

Krikri1989

•7 years ago

4 Replies

Stem cell transplant

Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all...

Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing ...

DebLeeCox

•7 years ago

7 Replies

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CLL Survey -Still need to hear your voices

Hi, The CLL Society Survey is still open and we still need a few more folks who live in the USA to complete it who are dealing with chronic lymphocytic...

Hi, The CLL Society Survey is still open and we still need a few more folks who ...

bkoffman

CLL CURE Hero•7 years ago

4 Replies

CLL W & W Fatigue.

New here. Diagnosed 4yrs ago W & W. Numbers apparently low but I experience days of fatigue and frustrated that I have no desire to do anything. Pushing...

New here. Diagnosed 4yrs ago W & W. Numbers apparently low but I experience day...

Madprofessor22

•7 years ago

17 Replies

Merry Christmas

Merry Christmas everyone,And best wishes to all for 2018

saintjohn

•7 years ago

4 Replies

Cold

Can you tell me if lymph glands enlarge while experiencing a severe cold I noticed that one in my neck and along the neck muscle are pea like in size Is this...

Can you tell me if lymph glands enlarge while experiencing a severe cold I notic...

Issey107

•7 years ago

2 Replies

Foods you can or can’t have

Hi, just wandering if someone can help. With the Christmas season nearly upon us and with all the spicey food etc, can one have pate. Hubby has bought some for...

Hi, just wandering if someone can help. With the Christmas season nearly upon us...

Susiecarer

•7 years ago

17 Replies

Please can you tell me your symptoms and the levels of your WBC when you were started on Ibrutinib...

I am new here and live in London,UK. I was first diagnosed with CLL ten years ago at the age of 50. Then my WBC was 25. Today it is 183 and my consultant...

I am new here and live in London,UK. I was first diagnosed with CLL ten years a...

RitaBa

•7 years ago

20 Replies

Rituxan Maintenance for 12 months

Every 2mos I have trmt. After 2weeks I get sick, I have 3 infusion left and using up sick leave. Asked Oncologist for off work order he denied to do so. He's...

Every 2mos I have trmt. After 2weeks I get sick, I have 3 infusion left and usin...

Family2017

•7 years ago

12 Replies

imbruvica

hi , i go by the name bushia. 75 yrs old and have been fighting cll for over 8 yrs. several bouts with chemo last session 1 yr. ago. Yesterday started...

hi , i go by the name bushia. 75 yrs old and have been fighting cll for over 8 ...

bushia

•7 years ago

27 Replies

Armagedon or false alarm?

It is my wont to watch Question Time in an attempt to keep up to speed with popular opinion on current affairs. This week, as usual, Brexit was being debated....

It is my wont to watch Question Time in an attempt to keep up to speed with popu...

Berrytog

•7 years ago

6 Replies

sickness and diarrhoea after 20 months on imbruvica

hi every one, my husband has had weeks of sickness and diarrhoea he has lost so much weight .Stools samples showed nothing. He has been told to stop imbruvica...

hi every one, my husband has had weeks of sickness and diarrhoea he has lost so ...

nobby00

•7 years ago

3 Replies

Newly diagnosed with CLL

Hi everyone, this is my first post!I am a healthy 57 year old woman and have recently been diagnosed with CLL. I presented to my GP with swollen neck lymph...

Hi everyone, this is my first post!I am a healthy 57 year old woman and have rec...

Smiley60

•7 years ago

39 Replies

CLL Blood count trends BEFORE your Diagnosis and how long it took to develop your Dx of CLL. Please Help!

Hi All, I am new here. I have noticed a gradual decrease in platelets since 2010 ( being 181) and most recent blood work December 2017 (being 127.) WBC's...

Hi All, I am new here. I have noticed a gradual decrease in platelets since 201...

portaa20

•7 years ago

9 Replies

5 Years After Diagnosis WBC Tripled in the Past Year

Five years of "Watch and Wait" is coming to an end as my WBC tripled over the past year and doubled in the last six months. Coupled with a high Zap 70,...

Five years of "Watch and Wait" is coming to an end as my WBC tripled over the pa...

BKman

•7 years ago

2 Replies

Merry Christmas

Christmas came early this year. I found out yesterday I have an appointment with Dr. Choi at UCSD on January 18! Dr. Kipps is no longer taking new patients. I...

Christmas came early this year. I found out yesterday I have an appointment with...

migirlusa

•7 years ago

2 Replies

Best TIme to take imbruvica?

I start imbruvica to-day and was wondering what is the best time to take the 3 pills. With food or without food? In the morning or in the evening? I have...

I start imbruvica to-day and was wondering what is the best time to take the 3 p...

joycecanada

•7 years ago

38 Replies

Urgent question: low platelets

My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but...

My husband Murray is in a very precarious state right now and I would sure appre...

Glees

•7 years ago

11 Replies

Ketogenic Diet and CLL

Just recently been told I have CLL. Has anyone followed a ketogenic diet to combat this disease?

Just recently been told I have CLL. Has anyone followed a ketogenic diet to comb...

Laramee

•7 years ago

34 Replies

CLL and Burning in Stomach

I am male66 cll dx one year, stage0 ,wnw. For past few weeks I feel burning sensation in stomach. My GP is unable to give any clear advise. Please advise if...

I am male66 cll dx one year, stage0 ,wnw. For past few weeks I feel burning sens...

vinnet

•7 years ago

18 Replies

Living with CLL and new complications

Hello, I am new here. I came across this site when I was looking for information about CLL. I was diagnosed this time 10 years ago and My oncologist at my...

Hello, I am new here. I came across this site when I was looking for informatio...

Spirt

•7 years ago

8 Replies

Need help dosing turmeric and green tea for CLL

Diagnosed with CLL in October 2017 and the doctor said I don’t need medication. He mentioned turmeric and green tea can have a benefit but couldn’t legally or...

Diagnosed with CLL in October 2017 and the doctor said I don’t need medication. ...

Mwagner

•7 years ago

66 Replies

What is happening?

Hello!! I had terrible 2 days. Our doctor couldn't continue with RB theraphy because my husbands HGB counts only 5. They started to blood transfusion and made...

Hello!! I had terrible 2 days. Our doctor couldn't continue with RB theraphy bec...

aylinozel

•7 years ago

21 Replies

Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)

Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389...

Today on the ASH 2017 Meeting, the results of the Murano Study were published: h...

Korstiaan

•7 years ago

5 Replies

Road to a BMT... oops just got there (Day+26)

We were finally discharged today and very happy to be home. Here are the details from our consultation with the Dr.: 1) BMT/blood work - very pleased with...

We were finally discharged today and very happy to be home. Here are the details...

NMMP

•7 years ago

15 Replies

Ibrutinib 7 month's in

Doing well and feeling better nodes soon went and bloods are good bear normal . Side effects all but gone still get tight muscles and occasionall back ache put...

Doing well and feeling better nodes soon went and bloods are good bear normal . ...

cartwheels

•7 years ago

8 Replies

Beware of sudden raised temperature

A few weeks ago I noticed I needed to use the toilet more frequently in the night. The previous day I had been out in the cold and had experienced a period of...

A few weeks ago I noticed I needed to use the toilet more frequently in the nigh...

KAS8

•7 years ago

11 Replies

burning sensation on my scalp

I am Anja (61) from the Netherlands. I have had CLL since 2010. FCR in 2012.I am participating in the ACP 196 study since March this year. Then I started...

I am Anja (61) from the Netherlands. I have had CLL since 2010. FCR in 2012.I am...

jroon08

•7 years ago

6 Replies

Merry Christmas..hope all doing well..

Hoping everyone is doing well....last checkup was good..don't have to go back for 6 months. Having more issues with my crohn's than with my CLL. Just hoping...

Hoping everyone is doing well....last checkup was good..don't have to go back fo...

truff4507

•7 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2017

CLL and arteritis pain

symtoms of cll

Stem cell transplant

CLL Survey -Still need to hear your voices

CLL W & W Fatigue.

Merry Christmas

Cold

Foods you can or can’t have

Please can you tell me your symptoms and the levels of your WBC when you were started on Ibrutinib...

Rituxan Maintenance for 12 months

imbruvica

Armagedon or false alarm?

sickness and diarrhoea after 20 months on imbruvica

Newly diagnosed with CLL

CLL Blood count trends BEFORE your Diagnosis and how long it took to develop your Dx of CLL. Please Help!

5 Years After Diagnosis WBC Tripled in the Past Year

Merry Christmas

Best TIme to take imbruvica?

Urgent question: low platelets

Ketogenic Diet and CLL

CLL and Burning in Stomach

Living with CLL and new complications

Need help dosing turmeric and green tea for CLL

What is happening?

Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)

Road to a BMT... oops just got there (Day+26)

Ibrutinib 7 month's in

Beware of sudden raised temperature

burning sensation on my scalp

Merry Christmas..hope all doing well..

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