Hi everyone, this is my first post!I am a healthy 57 year old woman and have recently been diagnosed with CLL. I presented to my GP with swollen neck lymph nodes, I was referred to hospital where blood tests and CT scan revealed I have enlarged lymph nodes in my neck, armpits and groin. My bloods are ‘Lymphocytosis 16’, otherwise normal, peripheral blood cell markers confirm B cell CLL.I had a lymph node biopsy and get the results of that next week. I have drenching night sweats about once a week, which I had put down to menopause, although on reflection I think I was through the menopause some years ago.
Since I was told I have CLL I have gone through all sorts of thoughts ... from denial to wanting to know everything about it! I think I’ve come to a place somewhere between now and am focussing on what’s going on with me.
I’ve already been told there’s nothing urgent from the treatment point of view, however I am confused as I’ve read that generalised enlarged lymph nodes puts my CLL at stage 2 requiring treatment. Can anyone shed any light on this?
I’m preparing questions for my next appointment when I get the biopsy results, any thoughts on useful questions to ask that I might not have thought of?
Many thanks, it’s very reassuring having this forum to share thoughts and experiences.