CLL and Burning in Stomach

[vinnet]

I am male66 cll dx one year, stage0 ,wnw.

For past few weeks I feel burning sensation in stomach. My GP is unable to give any clear advise.

Please advise if CLL is known to cause stomach burning sensation? How to subside it?

My next 3 monthly onco consultation is in february.

vinnet

[Cammie]

Talk to the heamotologist who may look at spleen.

Certainly don’t wait three months.

[vinnet in reply to Cammie]

thanks cammie.

hemo is also the onco. He wont see me earlier. I intend to go to gastro who can determine spleen status,

regards

vinnet

[cllady01 Former Volunteer in reply to vinnet]

vinnet, I am not a Dr. so my reply is not to be taken as definitive, however, I (CLL w/w since 2001) have not heard of burning stomach/abdomen as a CLL problem

You are correct, in my opinion, to go to a gastro to for such a pain. I think a spleen pain would be more sharp and located on the left side of your abdomen.

Let us know what you find out. It is not unusual for any of us to think first of CLL with any pain or discomfort we have, but we have to remember that we also need the expertise of physicians other than the hemo/onco.

Best wishes for finding the problem and getting it under control.

[vinnet in reply to cllady01]

Thanks Cllady01!!!

I feel so reassured from responses on this forum!! It indeed is a great support.

What is your age Cllady ?

I am m66 and my GOAL/WISH/PRAYER is what you have already achieved. 10 to 15years of W&W is what I desperately look for. I want to pass away with cll and due to cll or its treatment.

thanks again.

vinnet

[vinnet in reply to vinnet]

*NOT due to...

[JigFettler Volunteer in reply to cllady01]

Hi vinnet!

I agree with cllady01 - reply. You provide, vinnet too little information to enable really useful advice - you do need expert assessment, not all our symptoms are CLL related. I note you posted about this 2 years ago...

healthunlocked.com/cllsuppo...

Was this ever diagnosed, treated and resolved. Could it be the same?

I really hope you find a solution and respite from your symptoms.

Best wishes

Jig

[Newdawn Administrator]

I had dreadful stomach symptoms before and shortly after my diagnosis and it was anxiety. I’ve often described that tight, burning knot I had in my stomach after diagnosis that felt as if it might strangle my insides. It gradually subsided and I’ve not required treatment for it.

This may not be the same for you Vinnet but I recall you do suffer with anxiety about your condition and the constant churning can create gastrointestinal distress. Once you’ve checked out the physical reasons, consider it may be caused by stress and find ways and means to calm yourself. I know it’s not easy where you reside to get counselling help Vinnet but it’s amazing how anxiety can cause physical symptoms.

This was my experience but of course it may not apply to you.

Regards,

Newdawn

[vinnet in reply to Newdawn]

Thanks Newdawn. You got the symptoms close to dx but i had no such issue for 12 months after dx.

But one important input I got from your response that CLL on its own does not cause this burning.( like CLL causes high ALC etc.)

I will increase relaxation and meditation and see...

vinnet

[vinnet in reply to Newdawn]

Newdawn

I have developed a strange issue in my feet. I feel wet as though my feet are in water, whereas they are dry.This condition is not 24×7.

Also fear/anxiety is growing. Do I assume that CLL on its own does not create chemicals which might be creating fear/anxiety/ clenching teeth?

regards

vinnet

[Indolent]

Have you been tested for h.pylori? Your gastro should be able to help with this and advise you on the necessity.

[vinnet in reply to Indolent]

No. Never heard h.pylori.

Will see a gastro after a week or so . Will try deeper relaxation and meditation, as Neil mentioned, and see if it helps.

Thx for your help.

vinnet

[zaax]

It got this and more when I free relised what CLL was. On watch and worry this is one of the main things, thinking every pain is the start of something scary

[vinnet in reply to zaax]

Thanks zaax.

I intend to try to relax...

[Jackpot]

Hi Vinnet. I too have burning stomach pain that sometimes radiates to my back. It got so bad about six weeks ago that I went to the ER and was told I had pancreatitis (idiopathic, meaning the doctors have no idea why I got this since I drink little alcohol and have no gall bladder issues). I spent five days in the hospital. The pain comes and goes and is no longer constant but I feel very unwell when it is there. Get it checked out. Best of luck to you and hooefully it will subside on its own.

[vinnet in reply to Jackpot]

Thanks Jackpot for sharing your experience. I saw a.GP ( in India, it is a full day exercise to get to the GP). She said that for next few days i shud carefully note what have i eaten and its effect on level of burning sensation. She thinks some allergic reaction?

I will post my progress.

vinnet

[RZ8983DV]

No I did not do anything specific. I try and avoid places where I'm likely to pick up infections.

[vinnet in reply to RZ8983DV]

Thanks a lot.

[Joel1959]

I have stomach acid too. A teaspoon of baking soda helps, and I take the pills before eating. Food seems to make it worse.