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CLL Support

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All posts for July 2017

Bone marrow anesthesia

My first bone marrow procedure included a light anesthesia. I was vaguely aware of the pain but didn't care. My second procedure was done with a local pain...

My first bone marrow procedure included a light anesthesia. I was vaguely aware ...

W00dfin

•7 years ago

6 Replies

Round Up user

From 1984 to 1987, I worked full time for my farmer father who was a no-till corn producer. My duties included mixing the various herbicides for the sprays...

From 1984 to 1987, I worked full time for my farmer father who was a no-till cor...

W00dfin

•7 years ago

8 Replies

And they're off ........................................

The Flyer was up at 4:40 the morning and managed to wake me up too!! He met up with all of the other cyclists at 6am. The Flyer is a marshall for the slow...

The Flyer was up at 4:40 the morning and managed to wake me up too!! He met up w...

TheFlyer

•7 years ago

4 Replies

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Just starting Ibrutinib

I was diagnosed with Waldenstrom's Macroglobulinemia 10 years ago and was successfully treated with R + CVP. The lymphoma remained in remission for 7 years...

I was diagnosed with Waldenstrom's Macroglobulinemia 10 years ago and was succes...

Steve41

•7 years ago

2 Replies

Treatment or Not

Hi, I would much appreciate your advice on my father's case. My father is 69, and he was diagnosed with CLL last August, he was at Rai Stage I and on W&W as...

Hi, I would much appreciate your advice on my father's case. My father is 69, a...

lonelyplan

•7 years ago

7 Replies

Enlarged ganglion above collar bone

Hi everyone! About three weeks ago,I felt a lump above my right collar bone.same day I went to emergency and they checked blood,chest x-ray and my...

Hi everyone! About three weeks ago,I felt a lump above my right collar bone.same...

Romina26

•7 years ago

1 Reply

No Clue

What is CLL?

Trowings

•7 years ago

1 Reply

Newly diagnosed

47 year old male recently confirmed to have CLL with 13 q deletion as the sole cytogenetic alteration, zap 70 and cd38 negative. Currently in w&w with 6 month...

47 year old male recently confirmed to have CLL with 13 q deletion as the sole c...

Djike

•7 years ago

19 Replies

Free online learning for GPs - Reducing the clinical interval between presentation, diagnosis, and referral improves blood cancer outcomes

September is Blood Cancer Awareness Month. In the run up to September are you able to help us bring this free course to the attention of GPs in your area? The...

September is Blood Cancer Awareness Month. In the run up to September are you ab...

HAIRBEAR_UK

Founder Admin•7 years ago

2 Replies

Vacation

I have had CLL a couple of years now. I am a year and a half post FCR, and it has worked despite the fact that I am unmutated. I do tend to get infections a...

I have had CLL a couple of years now. I am a year and a half post FCR, and it h...

beanlake14

•7 years ago

15 Replies

One to one counselling and cancer

Sad to receive letter from Rhian Edwards at Tenovus indicating cessation of their 1to1 counselling service. No longer 'cost effective ' advised to see your GP...

Sad to receive letter from Rhian Edwards at Tenovus indicating cessation of thei...

abikaasa

•7 years ago

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The Time has come

Hi Friends and fellow CLL patients - I am off Thursday morning for Paris YEAH. We will be leaving at 6.15 am from The Holy Cross Church Daventry and if anyone...

Hi Friends and fellow CLL patients - I am off Thursday morning for Paris YEAH. ...

TheFlyer

•7 years ago

19 Replies

THE UNSEEN TRAUMA OF CLL !!

pain that sparadicly comes from the actual bones in my fingers and the palmes of my hands which swell up but affects one hand & then flares up in the other...

pain that sparadicly comes from the actual bones in my fingers and the palmes of...

thomasjo11

•7 years ago

3 Replies

Potential new treatment for viral disease - targeting Nox2 oxidase

With our compromised immune systems, overcoming virus infections can be particularly challenging. Use of antivirals to prevent reactivation of dormant...

With our compromised immune systems, overcoming virus infections can be particul...

AussieNeil

Administrator•7 years ago

Be the first to reply

Radiation treatment for lymph node in neck

I am W & W CLL of 5 years. About 5 months ago, swollen lymph node on neck appeared about size of golf ball. This was after having bronchitis returning from...

I am W & W CLL of 5 years. About 5 months ago, swollen lymph node on neck appea...

eoravillo

•7 years ago

15 Replies

Should I refrigerate Ibrutinb?

For miscallaneous reasons, I now have an extra month's supply of Imbruvica. Should I refrigerate it in this warm weather? Thanks!

For miscallaneous reasons, I now have an extra month's supply of Imbruvica. Shou...

freddog

•7 years ago

16 Replies

Ibrutinib side effects

Hi, have been on ibrutinib now for 6weeks following my SLL reawakening. The nausea has passed and the mouth ulcers are better now I'm on stat antibiotics, but...

Hi, have been on ibrutinib now for 6weeks following my SLL reawakening. The naus...

Tigger53

•7 years ago

19 Replies

Swollen glands

I am experiencing swollen glands in my neck which are quite uncomfortable ,any ideas on how to ease the discomfort. I have been on w and w for just over a year...

I am experiencing swollen glands in my neck which are quite uncomfortable ,any i...

Jam66

•7 years ago

4 Replies

Hair!

When I knew I had to have treatment I worried, of course, about what would happen to my body internally and what the chemo was going to cause. So I followed...

When I knew I had to have treatment I worried, of course, about what would happe...

sallyplest

•7 years ago

18 Replies

Does Tinnitus drive you crazy? Or it it just me?

I have experienced varying degrees of tinnitus over the last decade or so. I may have had CLL for that period too (CLL diagnosed following pre-op assessment...

I have experienced varying degrees of tinnitus over the last decade or so. I may...

thelutondodger

•7 years ago

15 Replies

Pelvic nodes, stupid question

I'm SLL. My pelvic/groin nodes are quite swollen. Does anyone have this and ride a bicycle.? Any issues? Thank you

I'm SLL. My pelvic/groin nodes are quite swollen. Does anyone have this and ride...

Awksom

•7 years ago

4 Replies

Non Hodgkin Lymphoma and Cll

JERRY was diagnosed with CLL CLA about 3 years ago. On Imbruvica for 7 mos. Dr filling in for orig cancer dr ordered another pet scan showing diagnosis as...

JERRY was diagnosed with CLL CLA about 3 years ago. On Imbruvica for 7 mos. D...

deb1610

•7 years ago

20 Replies

Question on Complete Stem Cell Transplant

Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out...

Has anyone out there ever had a complete stem cell transplant? I will be going w...

brison2

•7 years ago

7 Replies

What are Biosimilar Medicines

“Biological medicines have revolutionised patient treatment by offering new and effective medicines for acute and chronic conditions including neutropenia,...

“Biological medicines have revolutionised patient treatment by offering new and ...

Myrddin

•7 years ago

2 Replies

Gallbladder Surgery

Well I have successfully made it through gallbladder surgery and doing very well with recovery. Almost too well as I want to get right back to my normal...

Well I have successfully made it through gallbladder surgery and doing very well...

Molly2017

•7 years ago

4 Replies

2 Issues: Ibrutinib side effects + Ibrutinib plus Venetoclax Treatment

Hi, dear friends, My mom started the treatment with ibrutinib 10 days ago, the full dosis 420mg per day. She is 17p, naive...

Hi, dear friends, My mom started the treatment with...

nicolas_12

•7 years ago

17 Replies

Hot feet!

I'm on my 4th session FCR. I consider myself lucky has I have only really suffered with terrible nausea. However, I now have started to suffer with bad leg...

I'm on my 4th session FCR. I consider myself lucky has I have only really suffe...

sallyplest

•7 years ago

16 Replies

Good info video discussing the iwcll 2017. Discussed Moving to combo targeted therapy that maybe done for a while then stopped.

https://www.patientpower.info/video/the-iwcll-conference-what-should-patients-know

https://www.patientpower.info/video/the-iwcll-conference-what-should-patients-kn...

Hoffy

•7 years ago

1 Reply

Spooked at first, news of having CLL but digesting it..

After being diagnosed recently w CLL, and hearing the news it didn't seep in at first, now it has.. it's getting there I should say..after understanding some...

After being diagnosed recently w CLL, and hearing the news it didn't seep in at ...

Hidden

•7 years ago

6 Replies

CLL and Low estrogen treatments

Does anyone have any information about CLL and taking either Black Cohosh or Estrovera for low estrogen? Or any other insights into managing low estrogen and...

Does anyone have any information about CLL and taking either Black Cohosh or Est...

cjspolyar

•7 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2017

Bone marrow anesthesia

Round Up user

And they're off ........................................

Just starting Ibrutinib

Treatment or Not

Enlarged ganglion above collar bone

No Clue

Newly diagnosed

Free online learning for GPs - Reducing the clinical interval between presentation, diagnosis, and referral improves blood cancer outcomes

Vacation

One to one counselling and cancer

The Time has come

THE UNSEEN TRAUMA OF CLL !!

Potential new treatment for viral disease - targeting Nox2 oxidase

Radiation treatment for lymph node in neck

Should I refrigerate Ibrutinb?

Ibrutinib side effects

Swollen glands

Hair!

Does Tinnitus drive you crazy? Or it it just me?

Pelvic nodes, stupid question

Non Hodgkin Lymphoma and Cll

Question on Complete Stem Cell Transplant

What are Biosimilar Medicines

Gallbladder Surgery

2 Issues: Ibrutinib side effects + Ibrutinib plus Venetoclax Treatment

Hot feet!

Good info video discussing the iwcll 2017. Discussed Moving to combo targeted therapy that maybe done for a while then stopped.

Spooked at first, news of having CLL but digesting it..

CLL and Low estrogen treatments

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