I have experienced varying degrees of tinnitus over the last decade or so. I may have had CLL for that period too (CLL diagnosed following pre-op assessment for prostate problem in Jan 2015 then 6 cycles FCR and 18 months remission)
When I took medical advice (2004?) it was accompanied with dizziness and bouts of vertigo and fatigue. I was referred to Audiologist and discovered that I have age-appropriate hearing levels (then I was about 55) My GP suggested it to be Meniere's disease - for which she said there was no real cure. I have lived with it since and apart from during periods of stress or driving it hasn't really troubled me.
In 2015 the CLL came along and took over my life for a time and I never really thought about either Meniere's or Tinnitus. However during the last few months (co-incidentally during which my lymph nodes have bulked up and my ALC has being rising - so I'm on six weekly clinical appointments - the Tinnitus has been swashing, sheeshing and buzzing in the left upper quadrant of what is possibly my temporal and parietal lobes (maybe Wernicke's area) of my brain.
I mentioned this to my consultant haematologist and she didn't think it was connected to my CLL.
Practically, I live with it and when I'm focussed on some activity or other it doesn't really intrude to be bothersome. I don't actually cherish it but I don't hate it - it's part of how I'm made up currently. I'm a music maker and often use headphones - which actually make it a bit worse if there is no music playing. I know when I'm mixing a piece some of the higher frequencies are affected by my hearing loss (hi-hats and higher frequency synth or string pitches)
There was an item on BBC Radio 5Live last week and I wonder if there was some relation to CLL or other blood diseases. Do others experience Tinnitus and how do you deal with it?