Hot feet!

[sallyplest]

I'm on my 4th session FCR. I consider myself lucky has I have only really suffered with terrible nausea. However, I now have started to suffer with bad leg pains and neck pains, also the soles of my heat keep going really hot????

[Bethan49]

Hey x well done on doing so well with you FCR... May it continue till round 6. Hooe the nausea isn't too awful.

No idea about the soles of feet abd keg pain but others might ... how FCR affects you is do individual and random. .. You'll read sll sorts of stories and anecdotes and yours will be unique to you. .. However they are all well worth mentioning to your nurse/doc when you see them.

Nearly there!

Sending a hug x Beth x

[sallyplest in reply to Bethan49]

Thanks Beth for the hug! I had a look on the dreaded google and read it's probably nerve damage caused by chemo, so I hope it's temporary.

[Bethan49 in reply to sallyplest]

So do I ... Let me know what doc says.

I mentioned a few bits and bobs to my consultant and they were very uninterested ... just know that the stuff is getting rid of the cll and knocking it into a long remission x

[Hidden]

Hi Sally

I'm also on the flair trial but I'm on the other arm with Ibrutinib. I also for the first few months found I had a few aches and pains which I'm pressuming Is the medicine clearing the cll out of the places it's built itself up, well done reaching where you are not long left to go, just a quick question, do you drink plenty of water as I found that helps, I tend to drink between 2-3 litres a day.

Best wishes

[sallyplest in reply to Hidden]

Thanks for reply Lewis78 and yes I do drink a lot but more weak squash than water. I think I'd better go back to the water.

[Hidden in reply to sallyplest]

Hi Sally

Yes I've found plain water helps, also another thing I've realised is I'm intolerant to a lot of foods which cause a lot of aches and pains such as dairy red meat and sugary products, I'm not sure if it's a part of cll but I've noticed a lot of people mention it, try eliminating certain things out of your diet for a short time to see if it helps.

[sallyplest in reply to Hidden]

Thanks that's a good idea, I've already discovered mushrooms dont suit!

[Teresa252]

Hi 👋 ! I have just finished round 6 of FCR( took last chemo tablets yesterday )

I also got pains in my legs from time to time, especially when my body was tired.

Also not sure if you have been prescribed Nuelasta injection ? I get it on day 4 (to bring up my neutrophil count I think) but that causes bone pain for me.( I think it is a good sign though as means the bones are active).So if you are on that or similiar maybe that is causing it ?

Re the hot feet , I am not sure but I get hot sweats all over my body . They can be overwhelming and very frequent, then other times not so much . I think it is related to the drugs.My hormone levels were tested and it is not menopause (yet 😝)

Hope this may help. Best of luck with next two rounds. I struggled with round 5 , but was feeling very low at the time with a mouth infection . I thought of not having the last two rounds and taking my chances , but then said I would go with doctors advice and have them.

Glad to be finished now , just need time for my body to come back to full strength after it .

Let me know if I can help with any other questions .

[sallyplest in reply to Teresa252]

Thanks Teresa, I too have flushes but not very often but my feet are hot a lot just recently and my legs are very painful. I do have Neulasta injections so I agree it could be the cause. Onwards and upwards.

[Teresa252 in reply to sallyplest]

Worth checking with your doctor/ nurses just in case . Might be something unrelated to treatment that they can help with . Best of luck x

[Darthv]

sallyplest: I believe that this is the first stage of neuropathy. Not much you can do, since this is one of the side effects from both Rituxan and Fludara.

[sallyplest in reply to Darthv]

Thanks Darthv I will check with oncologist when I see her.

[wroxham-gb]

You're through Sally, just two more. Well done.

Sue

[sallyplest in reply to wroxham-gb]

Thanks Sue the end is in sight!

[tropicsurvivor]

You will be fine, when you go home, drink ginger tea, it will help you to offset the dizziness.

I have passed FR, one year ago, I am fine, running, enjoying life.

Be strong, walk every day, eat enough but not too much, soon you will be over with FCR.

Good luck, all the best

[sallyplest in reply to tropicsurvivor]

Thank you tropicsurvivor it's nice to hear some good news and I just bought some lemon and ginger tea so I'll try it.