Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,948 posts

All posts for October 2016

Pains in neck while having chemo

Hi. I've only just found this site, so this is my first post. I have SLL & just about to have chemo (FCR) session 3. I had huge lymph nodes in my neck (one...

Hi. I've only just found this site, so this is my first post. I have SLL & jus...

Grannajan

•8 years ago

3 Replies

2 mths ago told I had stage 4CLL from Canada

Recently diagnosed with stage 4 CLL. What a shocker. Left side has been hurting last 5 yrs however, thought it was only bowel problems and took more enzymes...

Recently diagnosed with stage 4 CLL. What a shocker. Left side has been hurting...

234me

•8 years ago

23 Replies

Out of pocket cost for Imbruvica

Anyone having difficulty with "funding" for Imbruvica. My insurance pays appx 7,000.00 per mo, and I have to come up with appx $3,000 per month. Tried to...

Anyone having difficulty with "funding" for Imbruvica. My insurance pays appx 7...

kids4

•8 years ago

16 Replies

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Exercise

exercise..and going to the gym..I've been on Imbruvica 2 weeks now...Haven't been to gym..and I miss it..as well as exercise. I fear picking up some virus or...

exercise..and going to the gym..I've been on Imbruvica 2 weeks now...Haven't be...

kids4

•8 years ago

8 Replies

Targeting ROR1 and a two-drug approach to cure CLL

https://youtu.be/PINfN_N7OEA

Cllcanada

Wrong terminology

I mean wbc not alc , least think I do , anyway whatever it is 2 specialists and my GP aren't worried about me , so 99% of the time I'm not ! Lol !

I mean wbc not alc , least think I do , anyway whatever it is 2 specialists and ...

Nigel-Q

•8 years ago

4 Replies

I'm new here and have painful lymph nodes!

I was diagnosed with CLL almost two years ago and my oncologist is watching and waiting. The lymph nodes in my arm pits fill my rounded palm. Just a few days...

I was diagnosed with CLL almost two years ago and my oncologist is watching and ...

Clodhopper

•8 years ago

5 Replies

New to CLL

Hi. My husband Raja has been diagnosed with CLL a month ago and put on wait and watch. His platelette count and RBC is good with WBC at 20,000 and spleen 20...

Hi. My husband Raja has been diagnosed with CLL a month ago and put on wait and ...

Reem-ayoub

•8 years ago

28 Replies

CLL and Tooth Decay

Has anyone ever had tooth decay due to neutropenia and/or low immunoglobulins? Thanks!

Has anyone ever had tooth decay due to neutropenia and/or low immunoglobulins? ...

Nutcake

•8 years ago

2 Replies

6 months post mini Allo transplant update

Hi everyone, I get a lot of messages from people asking how am I doing post mini allo transplant. I'll reply here so everyone can see it.😉 As some of you know...

Hi everyone, I get a lot of messages from people asking how am I doing post mini...

Ausrine

•8 years ago

19 Replies

Ibrutinib-day 1

I just started Ibrutinib treatment as a first line treatment. My first dose was yesterday and I feel like I've been hit by a truck. My body is aching...

I just started Ibrutinib treatment as a first line treatment. My first dose was...

Theramae

•8 years ago

15 Replies

Venetoclax or bone marrow transplant?

My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is...

My son has CLL with 11Q deletion. he could have a haplo transplant with his brot...

karenmarie

•8 years ago

15 Replies

FCR 6th Cycle and side effects ?

I have just had my 5th FCR treatment and immediately before this my consultant suggested this would be my last instead of going for a sixth. When I next see...

I have just had my 5th FCR treatment and immediately before this my consultant s...

Penkman

•8 years ago

6 Replies

Are flu jabs safe? (UK)

Hello, I heard recently that the flu jabs have Thimersosal in them which contains a high level of mercury - any knowledge/thoughts on this? thanks

Hello, I heard recently that the flu jabs have Thimersosal in them which contain...

AnjiP

•8 years ago

3 Replies

Finally some news...

Finally my GP called. WBC is at 25k (up from 22.5k two weeks ago) not sure if that increase is significant or not. Flow Cytometry test came back...

Finally my GP called. WBC is at 25k (up from 22.5k two weeks ago) not sure if ...

baq724

•8 years ago

8 Replies

CLL Patient and Caregiver Meeting in Denver Oct 25 to Help Jumpstart a Support group

Do you live in or near Denver and have CLL or know someone who does? There is a scheduled meeting if enough folks plan to attend that might be a great help on...

Do you live in or near Denver and have CLL or know someone who does? There is a ...

bkoffman

CLL CURE Hero•8 years ago

1 Reply

Update

After waiting a week for test results, I finally called my doctor. Found out he had been out of the office since Thursday and not back til tomorrow. The...

After waiting a week for test results, I finally called my doctor. Found out he...

baq724

•8 years ago

22 Replies

Joint pain/shoulder pain on Imbruvica.. HELP!

Hi everyone, I'm currently on Imbruvica and this morning I woke up with really bad shoulder pain in which I can barely lift my arm. I've never felt like this...

Hi everyone, I'm currently on Imbruvica and this morning I woke up with really ...

Michelledf

•8 years ago

11 Replies

TO TREAT OR NOT TO TREAT??

Hello Everyone, While I only post from time to time, I do read my HealthUnlocked almost as soon as I get the notification in my inbox and so I know there are...

Hello Everyone, While I only post from time to time, I do read my HealthUnlocked...

Que-sera-sera

•8 years ago

17 Replies

Anti sickness medication

Hi, Can anyone help me. I've just started first round of FCR. It went well for first two days but now I'm literally as sick as a dog. Have phoned nhs 24 and my...

Hi, Can anyone help me. I've just started first round of FCR. It went well for f...

Kenn123

•8 years ago

22 Replies

Length of FCR treatment

Hello there! Well I've started my first course of FCR and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks...

Hello there! Well I've started my first course of FCR and it's going ok. Only th...

Kenn123

•8 years ago

13 Replies

Treatment already!!!

Hi, my name is Cathy and I am 62 years old. I had breast cancer at 23 and at 34. At a checkup November 2015 I was told I have CLL with WBC at 16000. My...

Hi, my name is Cathy and I am 62 years old. I had breast cancer at 23 and at 34....

Hidden

•8 years ago

13 Replies

Questions...

First of all, thank you for all of the replies to my first post. As I stated before, my doctor told my at my yearly physical that my WBC and Lymphocytes were...

First of all, thank you for all of the replies to my first post. As I stated be...

baq724

•8 years ago

4 Replies

New database aims to crack open clinical trial data

My sister sent me this: New database aims to crack open clinical trial data OpenTrials, a search engine of information on clinical trials, has launched a beta...

My sister sent me this: New database aims to crack open clinical trial data Ope...

Carrot_Top

•8 years ago

3 Replies

Lurking...

I am a 46 y.o. male. I just recently had my annual physical and blood work came back with elevated WBC of 22k and Absolute Lymphocytes of 18k. The doctor...

I am a 46 y.o. male. I just recently had my annual physical and blood work came...

baq724

•8 years ago

25 Replies

EHA 2016: Professor Hallek on the Unmet Needs in CLL

Today in the 2016 Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. Michael Hallek about the unmet needs in CLL as...

Today in the 2016 Conference Coverage section of the CLL Society website, we’ve ...

bkoffman

CLL CURE Hero•8 years ago

6 Replies

Newbie 39 years old

Hi! Just got the news I have CLL.no symptoms. Anyone under 40 here that could share some info on how they are coping and any natural treatments they are taking...

Hi! Just got the news I have CLL.no symptoms. Anyone under 40 here that could sh...

Apricot77

•8 years ago

13 Replies

How does your doctor measure up against an App in diagnostic accuracy?

Here's an interesting report comparing the diagnostic accuracy of physicians with symptom checkers:...

Here's an interesting report comparing the diagnostic accuracy of physicians wit...

AussieNeil

Administrator•8 years ago

2 Replies

Cycle 5, Day 1 OSU Obin/Ibrutinib/Venetoclax Trial

Hi, Just got back from my Day 1, Cycle 5 trip to OSU. 4 cycles down, 10 to go. Day 1 of the first 8 cycles involves the obinutuzumab infusion on top of the...

Hi, Just got back from my Day 1, Cycle 5 trip to OSU. 4 cycles down, 10 to go. D...

thompsonellen

•8 years ago

10 Replies

Life after fcr...what can we expect?

Right guys, I have been chatting to our mad friend @Bellabee and we have been wonderinga few things as we are heading toward the end of our chemo.. nic due to...

Right guys, I have been chatting to our mad friend @Bellabee and we have been wo...

Bethan49

•8 years ago

23 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2016

Pains in neck while having chemo

2 mths ago told I had stage 4CLL from Canada

Out of pocket cost for Imbruvica

Exercise

Targeting ROR1 and a two-drug approach to cure CLL

Wrong terminology

I'm new here and have painful lymph nodes!

New to CLL

CLL and Tooth Decay

6 months post mini Allo transplant update

Ibrutinib-day 1

Venetoclax or bone marrow transplant?

FCR 6th Cycle and side effects ?

Are flu jabs safe? (UK)

Finally some news...

CLL Patient and Caregiver Meeting in Denver Oct 25 to Help Jumpstart a Support group

Update

Joint pain/shoulder pain on Imbruvica.. HELP!

TO TREAT OR NOT TO TREAT??

Anti sickness medication

Length of FCR treatment

Treatment already!!!

Questions...

New database aims to crack open clinical trial data

Lurking...

EHA 2016: Professor Hallek on the Unmet Needs in CLL

Newbie 39 years old

How does your doctor measure up against an App in diagnostic accuracy?

Cycle 5, Day 1 OSU Obin/Ibrutinib/Venetoclax Trial

Life after fcr...what can we expect?

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