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CLL Support Association
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6 months post mini Allo transplant update

Hi everyone, I get a lot of messages from people asking how am I doing post mini allo transplant.

I'll reply here so everyone can see it.πŸ˜‰

As some of you know I had Richters Transformation

Today is 6 months post SCT, I had a check up yesterday and they detected chronic GVHD of the liver, but it's very minor and my doc said he doesn't want to treat it yet because some GVHD is good for clearing any remaining cancer cells.I will have to go to the hospital in 2 weeks because they want to make sure liver insufficiency is not higher.

0% cancer cells was found in my blood yesterday and I'm 99,6% donor cells

Wish you all good luck 😊

19 Replies
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Congratulations on the 0% & 9.6% Ausrine, I assume these are good numbers and you are pleased with the result so far. Wishing you all the best for the future, rob

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Thanks for the update. You're a strong woman. Wishing you the best of everything in the tests to come. Kindest regards, Sally

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Lovely to hear from you Ausrine. It's great to get your feedback. How do you feel about it all now 6 months down the line.

Pleased for you.

Sue

Ps is your lovely hair growing back? I remember your anguish over that. Xx

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Hi, yes it's growing back but I'm wearing a wig, looks the same as before SCT πŸ˜‰

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Awesome news!

Jeff

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so happy for you Ausrine - you're doing so well !

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Glad you are doing well. I hope the GVHD calms down...

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So happy you are doing well! You've had a tough young life, so hopefully you can get back to being a young woman with a full file ahead, and not a cancer patient.

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That's great news and has given me confidence to jump and go for my own mini allo transplant that my doctors are pushing me towards ☺

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Great, keep us informed about your SCT, not many of us have had it πŸ˜‰

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Glod you are doing well. Whishing you the best everything in the test to come.....🌺

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Great news! So happy for you that you are cancer free! Hope you are feeling great, too. Thanks for being a role model for us all.

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Hi Ausrine that's brilliant you only have to see the constant every two weeks when only 6 months post transplant you are doing extremely well especially with those Nos stay healthy and don't slack on the infection CONTROL that's paramount and you should make it to your 1st new birthday the next big milestone good luck going forward and well done are you still on cyclosporine?

Kevin

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Hi, thank you for kind words 😊 no I stopped taking cyclosporine over 2 weeks ago, the reason why I developed GVHD I think πŸ˜‰

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You're absolutely right about that

If you need any help with infection control protocols Leukaemia Care has a section on their website but there's a lot more you can do besides you probably know the stats on SCT

I've brought my wife and brother through Infection free one is just 1 yr and one 2 yrs post transplant but we were A bit OCD about it our transplant team didn't hold back with the STATS

Regards

Kevin

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Super... so glad for you!

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So glad to see you are coming along well and my wish for you is that it all balances out and this will be a remember when kind of story. You are a strong woman. All of the very best to you. Peace, health and positive thoughts to you today and always.

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It was lovely to hear from you! I am so happy things are going well for you. Wishing you continued good health and all the best life has to offer:).

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Hi Ausrine

so glad I found your post, I often wonder how you are doing. It's great to hear your positive news. Thank you for sharing with us.

Huge cyber hug

Bubnjay1

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