New database aims to crack open clinical trial data

My sister sent me this:

New database aims to crack open clinical trial data

OpenTrials, a search engine of information on clinical trials, has launched a beta version that's now open to the public. The site collects a wealth of publicly available information about clinical trials past and present, including patient consent forms, published studies, and press releases. The team behind OpenTrials is hopeful that collecting trial information in one place will help identify potential discrepancies in data, increase transparency, and make research more accessible to the public. The project is being funded through the Center for Open Science and is run by Dr. Ben Goldacre, a doctor and author who's pushed for greater transparency in clinical trials. OpenTrials allows users to submit data on trials themselves, too. You can look through the database here.

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  • Here is the link to the early Beta of OpenTrials

    explorer.opentrials.net

  • I've just received an email from Dr Till Bruckner, the AllTrials campaign manager:

    Check out the new AllTrials TEDx talk!

    senseasdata.com/drupal/site...

    Last month Dr Sile Lane delivered a fantastic talk at TEDx Madrid. It is a clear and compelling introduction to the AllTrials campaign which calls for all clinical trials – past, present and future – to be registered, and their methods and results to be fully reported.

    The absence of trial information on many drugs we prescribe and use today is a shocking story that many have yet to hear. Please share the video with your friends, family and colleagues – on Facebook, on Twitter (using #AllTrials), on your website, by email – so that they, too, understand what we are calling for and why.

    The campaign is now a global force, we appreciate all your help in spreading the word.

    Dr Till Bruckner

    AllTrials campaign manager

    Sense about Science - Because evidence matters

  • The Ted talk is an excellent review of why it is important for all trial information to be made available whether or not the outcome is good. Evidence does matter - by selectively releasing results bad decisions are made and eye watering amounts of money wasted on drugs that don't work.

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