Recently diagnosed with stage 4 CLL. What a shocker. Left side has been hurting last 5 yrs however, thought it was only bowel problems and took more enzymes and roughage. . Even had a colonoscopy, but found nothing and no one thought to check my white blood cell count. I was Tired but still was doing all normal activities and walking 5km ayear year ago, now cannot do that as fatigue very severe and left side pain was found to be a spleen the size of a melon and liver also enlarged. Night sweats .
White cell count way off charts.202 x 10. Bone marrow biopsy showed 97 % packed with leukemia. So started a flurry of web searching and found lots of info.
Got a pneumonia and shingles shot a month before taking chemo pills.
So this week started fludarabine tablets, 6 a day for 5 days, 60mg total.
Then start in nov immunotherapy rituximab intravenous.
Dr is great and he is giving low doses and slowly introducing all treatments as we do not want kidney issues and all those other issues from so many of those darn leukemia cells dying etc.
I also have acute porphyria so management of drugs a great concern in order not to give me an attack.
However, through all this, I am happy, positive, and carry on . I was never angry but had a few tears and then dug for any info I could find. I have folders galore that I take to the dr office during my visits.
This is my destiny which ever way it goes. A journey I never expected to take, as I exercised am very fit and ate healthy food ,very little junk food. Made all my own bread, never ate out in restaurants etc.
Life is good. I am 63 yr old.