Exercise: exercise..and going to the gym..I've... - CLL Support

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Exercise

kids4 profile image
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exercise..and going to the gym..I've been on Imbruvica 2 weeks now...Haven't been to gym..and I miss it..as well as exercise. I fear picking up some virus or other, although gym is kept (as it appears} clean. Also developed a rash, after taking Alloprovinall to prevent high Uric Acid count. I'm a constant "mover"...but think exercise very important. What are others doing? I'm a very active Senior.

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virdieblue profile image
virdieblue

I've always exercised - love and need it, and my oncologist constantly checks to make sure I'm doing it. He makes me laugh - sounds like he thinks I'm training for a triathlon.

Virginia

kids4 profile image
kids4 in reply tovirdieblue

Virginia..It's good news to me...Do u get tired...By 3 pm Ive had it. Need to sit.Thanks for the reply I'm going to continue

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply tokids4

Walk briskly in the fresh air... less sweaty people than a gym... at least on my route... 😜

I did it twice a day all during ibrutinib, even though I had some unplesant bleeding issues...

~chris

virdieblue profile image
virdieblue in reply tokids4

I am lucky,I never felt that much fatigue. I usually made it till dinner time. Now, on Ibrutinib I feel pretty normal.

thompsonellen profile image
thompsonellen

I'm still going to the gym. I think it really helps all around. I will stop when my neuts are very low. I do wash the equipment, avoid touching my face and wash my hand very thoroughly when I'm done.

johnl profile image
johnl

First thing out of my Hem/Oncs mouth when I see her is "are you still running?". I think she thinks when I can't run anymore it's time to start treatment. I also go to the gym twice a week and have a sanitary wipe in my hands the whole time I'm there, wiping my hands and the equipment constantly.

John

Ellieoak profile image
Ellieoak

Take a antibicterial towel set with you if the gym doesn't already have them. Whiped down the exercise equipment, use it a then whip it down again. It's all set for the next person. At home look at your TV stations or tapes for exercise programs. (Or dance). This is what I do.

mnmnewtons profile image
mnmnewtons

I was also on Imbruvica and Allopurinol when I developed a rash (considered a drug allergy). It became so severe that I had to stop both, first Allopurinol then Imbruvica. Although either medication can cause a rash on its own, one paper describing a phase 1/1b clinical trial stated that taking both may increase the chances of a rash (Bood First Edition Paper, prepublished online October 29, 2014. DOI 10.1182/blood-2014-08-597914; from a paper presented at the American Society of Hematology Meeting, 2012, vol 120, abstract 1643. Corresponding author, Kristie A. Blum, MD). Keep a close eye on the rash.

As for exercise, when I was well enough, I consulted a physical therapist at my cancer center and was given some age and condition appropriate exercises to do at home to build my strength. I also started to go to the gym at at off peak times. I wear gloves, use hand sanitizer and avoid close contact with others.

Malcolm

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