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CLL Support

22,986 members • 39,473 posts

All posts for January 2016

Vitamin D toxicity

I have CLL with 17p deletion and recently finished a six-month course of obinituzumab and chlorambucil, which was only moderately successful. My energy levels...

I have CLL with 17p deletion and recently finished a six-month course of obinitu...

MrMidnight

•9 years ago

12 Replies

Cholesterol 6.2

Hi Anybody got an opinion on this my cholesterol is 6.2 - quite healthy apart from the cll exercise quite a bit Don't eat junk food and doing dry January any...

Hi Anybody got an opinion on this my cholesterol is 6.2 - quite healthy apart f...

Hidden

•9 years ago

6 Replies

Antihistamines and CLL?

I have been traveling for some time now and last week I caught a severe cold, the codral cold and flu tablets you normally get in Australia are not available...

I have been traveling for some time now and last week I caught a severe cold, th...

Heidiypi1

•9 years ago

2 Replies

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Treatment starting 4th February

Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months...

Hi. Thank you all for your lovely replies to my earlier post. I have seen my he...

Louiej

•9 years ago

14 Replies

What does 70% lymphocytes mean?

I have just been diagnosed and see a 70% lymph? What does this mean? It does not sound good

I have just been diagnosed and see a 70% lymph? What does this mean? It does n...

Swissnology

•9 years ago

3 Replies

BMB Report

I had a bone marrow biopsy Tuesday in san Diego. They use CT guided conscious sedation. One second the nurse said I am going to give you a little medicine....

I had a bone marrow biopsy Tuesday in san Diego. They use CT guided conscious se...

andrewschorr

•9 years ago

15 Replies

Brief Patient Survey to Help You

Dear friends with CLL: As we enter 2016 we at Patient Power want to know how we can do better for you and we have a brief survey available to help us get your...

Dear friends with CLL: As we enter 2016 we at Patient Power want to know how we ...

andrewschorr

•9 years ago

1 Reply

Common painkiller, diclofenac, may be a cancer killer.

Read this on Tuesday and decided to share. New information daily and that is exciting....

Read this on Tuesday and decided to share. New information daily and that is exc...

CLLCalifornia-USA

•9 years ago

5 Replies

Interviews with Dr. Neil Kay and Wayne Wells

Friends, This week on the CLL Society website (http://cllsociety.org), we have posted an interesting interview with Dr. Neil Kay where we discuss a couple of...

Friends, This week on the CLL Society website (http://cllsociety.org), we have ...

bkoffman

CLL CURE Hero•9 years ago

2 Replies

Australian members - how to access new cancer drugs

The Australian Leukaemia Foundation has just released a 60+ page booklet 'Accessing non-PBS Funded Blood Cancer Drugs in Australia - A discussion tool for you...

The Australian Leukaemia Foundation has just released a 60+ page booklet 'Access...

AussieNeil

Administrator•9 years ago

2 Replies

President Obama and Vice President Biden’s Moonshot Initiative to Cure Cancer throughout world announced in State of Union Address

Vice President Biden has called on leading cancer centers to break down silos and reach unprecedented levels of cooperation to enhance the effectiveness of...

Vice President Biden has called on leading cancer centers to break down silos an...

AussieNeil

Administrator•9 years ago

1 Reply

Site problems anyone - e.g. do you need to keep logging in?

I gather a few Apple users are having trouble logging in or staying logged in and have been putting up with this very annoying inconvenience for some time. If...

I gather a few Apple users are having trouble logging in or staying logged in an...

AussieNeil

Administrator•9 years ago

20 Replies

Heavy Use of CT Raises Concerns About Radiation Exposure

Hi All, Here is a link to a recent MedScape article, thanks for the alert to Al J. titled “Heavy Use of CT Raises Concerns About Radiation Exposure”...

Hi All, Here is a link to a recent MedScape article, thanks for the alert to Al...

ThreeWs

•9 years ago

4 Replies

Care tips after your blood test

With CLL, we all become familiar with having regular blood tests, but it seems no one bothers to tell us much about how to make these as pleasant as possible....

With CLL, we all become familiar with having regular blood tests, but it seems n...

AussieNeil

Administrator•9 years ago

4 Replies

CLL and helicobacter pylori infection

Hi, What can you comment about this? Could be possible to eradicate în the same way like all people?

Hi, What can you comment about this? Could be possible to eradicate în the same ...

lilica955

•9 years ago

1 Reply

New Year Honour for pioneer of Sepsis treatment U.K.

please look at www.sepsistrust to see this wonderful achievement for a U.K. specialist in sepsis treatment. 40,000 people a year die from untreated sepsis

please look at www.sepsistrust to see this wonderful achievement for a U.K. sp...

lartington

•9 years ago

1 Reply

What is herd immunity? And how can it protect us?

"When a high proportion of a community is immune it becomes hard for diseases to spread from person to person. This phenomenon is known as herd immunity....

"When a high proportion of a community is immune it becomes hard for diseases to...

AussieNeil

Administrator•9 years ago

2 Replies

New Friend from Puerto Rico

Although not diagnosticated with CLL, one of my blood test revealed a count of Cromosoma indicator of CD38 which is over the "limit" of CD30 But...Feeling good...

Although not diagnosticated with CLL, one of my blood test revealed a count of C...

Orlando1954

•9 years ago

4 Replies

Safety and protection in hospital

I had the misfortune to be in hospital from 22nd to 29th December with a severe respiratory chest infection. Yes, to some extent it was my fault as I let it go...

I had the misfortune to be in hospital from 22nd to 29th December with a severe ...

holly2

•9 years ago

18 Replies

Inhibitors Forever?

Depending upon where you live, you may have access to a new "inhibitor" medicine like ibrutinib/Imbruvica. It knocks CLL back but not out. So do you have to...

Depending upon where you live, you may have access to a new "inhibitor" medicine...

andrewschorr

•9 years ago

13 Replies

recently diagnosed with CLL

In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate...

In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor t...

ohiojim

•9 years ago

6 Replies

Hydration

**Remember to always drink as much water as possible (minimum of a bottle) before going for infusion or for a blood test … Pumps up the veins!

**Remember to always drink as much water as possible (minimum of a bottle) befor...

SouthFloridaLady

•9 years ago

7 Replies

Diet Recommendations...

From Fred Hutch: The U.S. government released its latest diet recommendations today, based on a report from an advisory panel of experts that came out last...

From Fred Hutch: The U.S. government released its latest diet recommendations t...

SouthFloridaLady

•9 years ago

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FCR remission period

Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am...

Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymp...

mag1309

•9 years ago

4 Replies

Newly Diagnosed Stage 1/2 CLL

Hello, I am newly diagnosed and freaking out. I have only one blood test result so nothing to gauge against at the moment. Back to oncologist is 3 months. I...

Hello, I am newly diagnosed and freaking out. I have only one blood test result...

Swissnology

•9 years ago

8 Replies

Airplane Travel

After 27 years of marriage, my wife and I are going to take the honeymoon we never had. We're going to Honolulu on our anniversary in a few weeks. We're in...

After 27 years of marriage, my wife and I are going to take the honeymoon we nev...

RK66

•9 years ago

11 Replies

Six month checkup coming up.

I have been on watch and wait for the past two years. My AlC has gone from 24 last Februay to 47 last month on a routine blood panel done by my GP's lab not...

I have been on watch and wait for the past two years. My AlC has gone from 24 l...

RK66

•9 years ago

7 Replies

Wedding in Barbados

Any advise on travelling abroad for a family wedding. Taking place in Barbados the flight is eight hours and what about inoculations. Is this trip advisable.

Any advise on travelling abroad for a family wedding. Taking place in Barbados ...

d011y

•9 years ago

6 Replies

Hate needles? Needle free vaccinations are on their way!

Good news for those of us that hate needles, or who have family members that do and are reluctant to have vaccinations to protect themselves (and us). C Raina...

Good news for those of us that hate needles, or who have family members that do ...

AussieNeil

Administrator•9 years ago

Be the first to reply

EU CLL Expert Interviews

There are some great new video cll interviews now posted on patientpower.eu. Here's an example with Dr. George Follows from Cambridge:...

There are some great new video cll interviews now posted on patientpower.eu. He...

andrewschorr

•9 years ago

Be the first to reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2016

Vitamin D toxicity

Cholesterol 6.2

Antihistamines and CLL?

Treatment starting 4th February

What does 70% lymphocytes mean?

BMB Report

Brief Patient Survey to Help You

Common painkiller, diclofenac, may be a cancer killer.

Interviews with Dr. Neil Kay and Wayne Wells

Australian members - how to access new cancer drugs

President Obama and Vice President Biden’s Moonshot Initiative to Cure Cancer throughout world announced in State of Union Address

Site problems anyone - e.g. do you need to keep logging in?

Heavy Use of CT Raises Concerns About Radiation Exposure

Care tips after your blood test

CLL and helicobacter pylori infection

New Year Honour for pioneer of Sepsis treatment U.K.

What is herd immunity? And how can it protect us?

New Friend from Puerto Rico

Safety and protection in hospital

Inhibitors Forever?

recently diagnosed with CLL

Hydration

Diet Recommendations...

FCR remission period

Newly Diagnosed Stage 1/2 CLL

Airplane Travel

Six month checkup coming up.

Wedding in Barbados

Hate needles? Needle free vaccinations are on their way!

EU CLL Expert Interviews

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