Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for October 2015

The Mental Health Benefits of Nature Exposure

Tori Rodriguez, MA, LPC writes about the benefits in this article for Psychiatry Advisor:...

Tori Rodriguez, MA, LPC writes about the benefits in this article for Psychiatry...

AussieNeil

Administrator•9 years ago

7 Replies

Flesh eating disease - What causes it and How is it Contracted, Recognised and Treated?

With often terrible disfigurements, sometimes including the loss of limbs and in the worst case deaths being described within 24 hours in otherwise healthy...

With often terrible disfigurements, sometimes including the loss of limbs and in...

AussieNeil

Administrator•9 years ago

3 Replies

Blessings for a friend, on the arrival of illness by John O'Donoghue

Now is the time of dark invitation Beyond a frontier that you did not expect; Abruptly, your old life seems distant. You barely noticed how each day opened A...

Now is the time of dark invitation Beyond a frontier that you did not expect; Ab...

KateEvaLen

•9 years ago

21 Replies

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Idelalisib Plus Rituximab Highly Active in Treatment-Naïve Older Patients With CLL

This is a 'good news' story for CLL patients:...

wmay13241

•9 years ago

4 Replies

Latest CBC

My WBC jumped in one month to 184000 from 124000. RBC and HB just in normal range (although lower end). Lymphocytes are 99% and neutrophils just 1%. My...

My WBC jumped in one month to 184000 from 124000. RBC and HB just in normal rang...

AAli

•9 years ago

4 Replies

Dr. Jeff Jones from OSU on ibrutinib resistance, combination therapy and treating asymptomatic CLL.

Friends, Today on our website: http://cllsociety.org we share an interview with another doctor from Ohio State University, Dr. Jeff Jones, to discuss ibrutinib...

Friends, Today on our website: http://cllsociety.org we share an interview with ...

bkoffman

CLL CURE Hero•9 years ago

3 Replies

NICE can’t recommend new sepsis tests

"The UK’s National Institute for Health and Care Excellence (NICE) has said there is not enough evidence to recommend 3 new blood tests for routine use in...

"The UK’s National Institute for Health and Care Excellence (NICE) has said ther...

AussieNeil

Administrator•9 years ago

1 Reply

Will we be growing CLL drugs in our garden and treating us and our CLL with a cup of home grown 'tea' in the future?

Tony Hughes, Associate Professor, Pharmacology and Therapeutics, University of Melbourne explains how plants can be used as biofactories, using a special class...

Tony Hughes, Associate Professor, Pharmacology and Therapeutics, University of M...

AussieNeil

Administrator•9 years ago

Be the first to reply

The battle for open access to tax payer funded academic literature is far from over

"It’s now 25 years since the birth of the web, and more than 15 years since people started discussing open access. Yet we are still a long way from seeing...

"It’s now 25 years since the birth of the web, and more than 15 years since peop...

AussieNeil

Administrator•9 years ago

1 Reply

So much to learn

I was diagnosed with CLL about a month ago. I just turned 47 in August. I was having stomach pain and thought it was just acid reflux. My wife told me I should...

I was diagnosed with CLL about a month ago. I just turned 47 in August. I was ha...

BCTexas

•9 years ago

31 Replies

Ibrutinib - impact of reduced dose?

I won't bore you all with too much of my husband's Ibrutinib experience. Suffice to say he requested the dose be reduced about 3 months ago as he was feeling...

I won't bore you all with too much of my husband's Ibrutinib experience. Suffic...

lartington

•9 years ago

16 Replies

Newbie to CLL

Hello everyone, Referred to a homotologist for high hemoglobin and they discovered CLL. At this point I am going to have a CT scan on lymph nodes and spleen...

Hello everyone, Referred to a homotologist for high hemoglobin and they discove...

CCLandwell

•9 years ago

13 Replies

FCR soon/confused

I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My...

I am 49 and was dx. In April 2015. I have been on watch & wait or should I say w...

Dinasantos

•9 years ago

21 Replies

Ibrutinib + FCR Phase II Study

My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously...

My wife Michele began treatment with Ibrutinib last week, one week prior to FCR ...

ltcbbaker

•9 years ago

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CLL relapse and Bendamustine

Hi, My dad has CLL and is possibly going to need more chemo in the next couple of months. The consultant said it would be Bendamustine but I've read that...

Hi, My dad has CLL and is possibly going to need more chemo in the next couple ...

Sara2013

•9 years ago

2 Replies

Unfollowing a community is now easier, iOS9 uploads now work, Notifications are faster

HealthUnlocked have made some improvements to the site and fixed a frustrating bug that stopped those using iOS9 from uploading images. 1) It is easy to...

HealthUnlocked have made some improvements to the site and fixed a frustrating b...

AussieNeil

Administrator•9 years ago

Be the first to reply

My life with CLL

I was diagnosed with CLL in 2012. As I had delayed going to see my GP, the disease was quite well advanced and I needed to start treatment immediately. Given...

I was diagnosed with CLL in 2012. As I had delayed going to see my GP, the disea...

newrider

•9 years ago

4 Replies

Uploading PDFs

Is it possible to upload an Adobe PDF file of my MP's letter to the site?

David73

•9 years ago

6 Replies

Great News - Then What is Going On

So I got my quarterly bloodwork done. Wow!!!!! Best numbers all the way around including those that I had the day I was diagnosed in 2012. Still on W&W no...

So I got my quarterly bloodwork done. Wow!!!!! Best numbers all the way around i...

Paul_Mangold

•9 years ago

2 Replies

Live broadcasting record for CLL event

Wow! more than 300 Cllers, a record, have signed up to watch the Patient Power/MD Anderson/CLL Global Foundation Town Meeting on Sunday 10/25. I am the...

Wow! more than 300 Cllers, a record, have signed up to watch the Patient Power/M...

andrewschorr

•9 years ago

5 Replies

Mixed results

Hello everyone I hope your all well? We had a wonderful fund raising event for ( Bloodwise) last Saturday evening. (East Dorset fundraising branch) nearly...

Hello everyone I hope your all well? We had a wonderful fund raising event for ...

Carpenters52

•9 years ago

8 Replies

CLLSA Campaign on CDF delisting decisions

Hello Everyone. We are still waiting to hear about the outcome of our appeal to oppose the delisting of Bendamustine and Ibrutinib from NCDF. The decision...

Hello Everyone. We are still waiting to hear about the outcome of our appeal to...

MaudMarie

•9 years ago

9 Replies

IBRUTINIB - 12 months on

My improvement is truly amazing. My blood tests at 10 months and 12 months on Ibrutinib showed ALL counts in normal range. As far as my CLL is concerned, I...

My improvement is truly amazing. My blood tests at 10 months and 12 months on I...

Haileybury

•9 years ago

15 Replies

Silly question....

Hi I was diagnosed with CLL in October 2013 I had treatment in October 2014 (bendamustine and Rituximab) and finished treatment in March of this year. I saw...

Hi I was diagnosed with CLL in October 2013 I had treatment in October 2014 (ben...

icklemand

•9 years ago

9 Replies

FISH TEST

Dear CLL experts can someone please tell me what the FISH test is? I do understand that it is the main test to determine CLL. Since I have only had PET scans...

Dear CLL experts can someone please tell me what the FISH test is? I do underst...

kathypawpaw

•9 years ago

12 Replies

NIGHT SWEATS

I was diagnosed with CLL by my GP 18 months ago. My doctor of many years retired and I saw the new doctor for some abdominal pain I was experiencing. He did...

I was diagnosed with CLL by my GP 18 months ago. My doctor of many years retire...

bupton

•9 years ago

14 Replies

Your Charity needs you

LETTER FOR YOUR MEMBER OF PARLIAMENT RE: Proposed delisting of Bendamustine and Ibrutinib from The Cancer Drugs Fund list. It's in our hands - now is our...

LETTER FOR YOUR MEMBER OF PARLIAMENT RE: Proposed delisting of Bendamustine and ...

Hidden

•9 years ago

1 Reply

New sensor detects water contamination in real time - using Flow Cytometry!

"Currently, if you want to check water supplies for the presence of toxic bacteria, you have to take a water sample and then culture it in a lab over...

"Currently, if you want to check water supplies for the presence of toxic bacter...

AussieNeil

Administrator•9 years ago

Be the first to reply

Cough,Cold and Flu Jab

Hi all again. Having been diagnosed back in June and my subsequent blood count rose from 18 to 21 in the 4 weeks between tests, I managed to get my head around...

Hi all again. Having been diagnosed back in June and my subsequent blood count r...

andygm

•9 years ago

2 Replies

Cive James and Pill x

Writing in Guardian Sept 10th Clive James said he was still alive due to Pill X for CLL......what is it.? Ibrutinib? His experience would help the case for...

Writing in Guardian Sept 10th Clive James said he was still alive due to Pill X ...

romarin

•9 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2015

The Mental Health Benefits of Nature Exposure

Flesh eating disease - What causes it and How is it Contracted, Recognised and Treated?

Blessings for a friend, on the arrival of illness by John O'Donoghue

Idelalisib Plus Rituximab Highly Active in Treatment-Naïve Older Patients With CLL

Latest CBC

Dr. Jeff Jones from OSU on ibrutinib resistance, combination therapy and treating asymptomatic CLL.

NICE can’t recommend new sepsis tests

Will we be growing CLL drugs in our garden and treating us and our CLL with a cup of home grown 'tea' in the future?

The battle for open access to tax payer funded academic literature is far from over

So much to learn

Ibrutinib - impact of reduced dose?

Newbie to CLL

FCR soon/confused

Ibrutinib + FCR Phase II Study

CLL relapse and Bendamustine

Unfollowing a community is now easier, iOS9 uploads now work, Notifications are faster

My life with CLL

Uploading PDFs

Great News - Then What is Going On

Live broadcasting record for CLL event

Mixed results

CLLSA Campaign on CDF delisting decisions

IBRUTINIB - 12 months on

Silly question....

FISH TEST

NIGHT SWEATS

Your Charity needs you

New sensor detects water contamination in real time - using Flow Cytometry!

Cough,Cold and Flu Jab

Cive James and Pill x

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