I was diagnosed with CLL by my GP 18 months ago. My doctor of many years retired and I saw the new doctor for some abdominal pain I was experiencing. He did blood work and they called me and asked if I had always had a high white count....and I told them that I wasn't aware of any. They repeated the blood work with fasting a week later. And again my white count was high and they asked me if I had a hematologist....scared, I told them of course not so they recommended one and I made an appointment. I was in total shock. No one in my family had ever had cancer until the previous year when my brother was diagnosed with Lymphoma (another shock). He had chemotherapy and is in remission and has been for three years.
So I saw the hematologist, he wasn't too concerned about the white count. Said the GP records indicated my white count had been high for about 8 years. He would draw enough blood to repeat the standard test but take it a step further if the results warranted. Which they did. After a week of waiting, the test did confirm that I have CLL but in an indolent stage. All this to say that I am glad I found a place where I can vent and admit I'm scared. Everyone (family and friends) tells me that I will outlive this and it isn't anything to be concerned about. I go every six months for blood tests at my GP until something warrants further treatment.
This week is another six month checkup. Since my last checkup the night sweats have begun and are awful....I have them about 50% of the time and my bedding is absolutely soaked. I guess I an a little nervous that this is a sign that I am getting closer to needing treatment.
It seems that everything that I read doesn't give me info as to what progression will be, and perhaps no one really knows. Thanks for listening and if anyone has advice about the night sweats it would be greatly appreciated. Other than those and the fatigue that has also increased in the last six months I am not experiencing any other symptoms, that I know of.