I have only just discovered this blog, and think it is really great. At last I can be part of a community of people who understand what CLL means and have similar challenges, experiences [and fears]. I am in Year 4 of 'watch and wait'. The first year was the hardest, not only in my [and the family's] understanding what was going on but where to find emotional support. I am more than happy with the support from my GP and the hospital clinic. Friends and family have been wonderful by caring but not being over-dramatic. The hardest part has been not having any contact with anyone going through similar experiences. I went to a couple of CLL conferences, but got lost in some of the very technical stuff and didn't need the graphs that looked like the stock market on Black Friday. At one conference a woman stood up at the end and said she was newly diagnosed and felt very scared..... we all knew how she felt and thanked her for speaking out for us. Long may we have this forum to chat, feel reassured and have friends "in the know".
Last edited by AussieNeil
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