Anyone have any experience of acute neutropenia ? - CLL Support

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Anyone have any experience of acute neutropenia ?

6 Replies
6 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

From what cause?

Cosy profile image
Cosy

Hi Eddery

I have just got home from hospital after having a neutropenic fever. No cause found,

Post my 1 week of chemo

My neutrophil level was at 0.3. I have had iv antibiotics for 5 days.

I am now being extra careful with food prep etc eating and buying as fresh as we can.

Cosy

keepfit123 profile image
keepfit123 in reply toCosy

Any idea what Absolute Neutrophil Count was before your 1 week of chemo?

Cheers

keepfit123

Cosy profile image
Cosy

Hi keepfit123

My neutrophil count was 5.00 before treatment.

Cosy

I have not received any treatment for my CLL and have no symptoms and feel well.

I had neutropenia about five months ago.

My count fell to 0.7 and I was told to get to hospital ASAP. I was the subject of much interest and general concern and confined to a private side-ward (really boring). The good news is, I felt fine throughout (this confused the clinicians as they kept asking if I was certain I felt well) and was released into the wild after only one and a half days, once my count rose above 1.

All is well at present, and no-one knows why I had the event.

I now understand my condition was potentially dangerous, but, I'm still here (obviously), so, what doesn't kill me, makes me stronger.

keepfit123 profile image
keepfit123

My last 6 readings of Absolute Neutrophil Count have been in the range 2.1 to 1.2(latest).These are on the low side and I wonder what will happen after the first cycle of FCR.

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