My Husband was diagnosed almost 2 years ago at the age of 71, as with others it was picked up in his annual MOT and came as a shock! our first appointment was at the local hospital McMillan centre and a very nice doctor briefly outlined what CLL was and we were also told its a good cancer to get........how can any be good!! It was decided that future appointments would be in the haematology out patient clinic on 4 monthly watch and wait. At the second visit it was decided my husband was anxious and Citalopram anti depressant was perscribed which he is still on and has been increased from 10-40mg no explanation given, one visit earlier this year seemed more like a phsyciatric session than CLL , anyone had a similar experience? He is still on 4 monthly W&W and last time his wbc was down from 60 to 50 but the lymph nodes in the armpit are quite large and the latest doctor said if she was a betting person then he will need treatment at some stage!, we always seem to leave hospital none the wiser as to what is going on despite (we think) asking the right questions.
On the question of travel insurance I was shocked at the quotes given last year and my husband travelled without CLL being covered, having ok'd it with the hospital who said unsurance companies just see or hear the word Leukaemia.