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CLL Support

22,532 members • 38,709 posts

All posts for June 2023

swollen lymph node

I have a swollen lymph node in the left armpit which I can t detect and the doctor also not during physical exam, but it was seen in the ultrasound 2 cm. How...

I have a swollen lymph node in the left armpit which I can t detect and the do...

mickimauser11

•11 months ago

3 Replies

Ibutinib

I have been on Venetoclax for three and a half. Have felt really well on Venetoclax and still am. Now white blood cells are increasing and the decision has...

I have been on Venetoclax for three and a half. Have felt really well on Venet...

nuttynannie1947

•11 months ago

2 Replies

Water or how much water on Gazyva?

Skyshack and I got into a discussion about how much water are you to drink when on V+O. I decided to send out my general findings and see if anyone has...

Skyshack and I got into a discussion about how much water are you to drink when ...

Rico49

•11 months ago

21 Replies

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Free speech - a clarification

In replying to LeoPa's recent post, which began " Some members seem to be irritated by my nutrition intervention and lifestyle related comments", my...

In replying to LeoPa's recent post, which began " Some members seem to be irrita...

bennevisplace

•11 months ago

47 Replies

Technical problem with posting

I tried to create a post but it was thrown out and I was told to refresh. Couldn't work out how. If anyone knows, maybe it would help others too. I will try...

I tried to create a post but it was thrown out and I was told to refresh. Could...

dougstalbans

•11 months ago

3 Replies

Help and advise

I've had these marks on my body for years, I do tend to see more coming up throughout the years ? I have them scattered around my body in different locations....

I've had these marks on my body for years, I do tend to see more coming up throu...

Becks1995

•11 months ago

8 Replies

Can CLL spread /change?

Hi all,My mum survived ovarian cancer but died from lung cancer, my brother from liver cancer. My question is whether CLL might spread and develop into other...

Hi all,My mum survived ovarian cancer but died from lung cancer, my brother fro...

Thecolourofspring

•11 months ago

5 Replies

Infected lymph node

David went to the GP yesterday morning with a very angry inflamed lymph node on his neck. This has been building in pain for the last month. He could bear it...

David went to the GP yesterday morning with a very angry inflamed lymph node on ...

Porty14

•11 months ago

2 Replies

alternative therapies

Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was...

Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR whi...

MareeM

•11 months ago

2 Replies

Oh Happy Days - New Oncologist🎉🎉🎉

For these last 9 months I haven’t had a real Oncologist. It was so encouraging to finally have one that sees & hears me. She said 1/2 dose of Acalabrutinib...

For these last 9 months I haven’t had a real Oncologist. It was so encouraging ...

CoachVera55

•11 months ago

1 Reply

watch and wait (!?)

Again, thank you all for even reading my posts. But you have also given me new information and new hope. Not to be melodramatic, but to see some of you have...

Again, thank you all for even reading my posts. But you have also given me new i...

ybird

•11 months ago

10 Replies

Ativan for anxiety

Since being diagnosed I have had near panic experiences and great waves of anxiety. Some of the meds are stressful on the body and I found that Ativan 0.5...

Since being diagnosed I have had near panic experiences and great waves of anxie...

unairdefamille

•11 months ago

27 Replies

Permanent Antibiotics

I have had troubles with sinusitis since half a year.We tried antibiotics 6 times- last time prolonged for 3 weeks. After ohne week the infection is back....

I have had troubles with sinusitis since half a year.We tried antibiotics 6 time...

Reinhard

•11 months ago

19 Replies

Pentamidine?

I am on V + O treatment. My last Obi infusion is July 3. A month ago I developed a rash on my chest, neck, and face. My oncologist had me stop Bactrim to...

I am on V + O treatment. My last Obi infusion is July 3. A month ago I developed...

Tabbytabby

•11 months ago

15 Replies

Thank you all

Gosh, what a warm welcome I've received. Thank you all for your wise advice and kindness. I have so much to read and learn and inwardly digest as I navigate...

Gosh, what a warm welcome I've received. Thank you all for your wise advice and...

Thecolourofspring

•11 months ago

2 Replies

Just diagnosed

Hello all, this is my first post. I received my CLL diagnosis on Friday. I have no symptoms currently and it was only discovered during routine blood tests. I...

Hello all, this is my first post. I received my CLL diagnosis on Friday. I have ...

Thecolourofspring

•11 months ago

51 Replies

Every story matters - UK COVID-19 public inquiry

The pandemic affected every single person in the UK and, in many cases, continues to have a lasting impact on lives. Every one of our experiences is unique...

The pandemic affected every single person in the UK and, in many cases, continue...

bennevisplace

•11 months ago

16 Replies

What a start with V+O

Well I finally started my treatment and the first week was quite a roller coaster. Day 1 ,I was only 10 minutes into the treatment and I had a severe reaction....

Well I finally started my treatment and the first week was quite a roller coaste...

Rico49

•11 months ago

28 Replies

Evusheld still works for hematological disorders

A somewhat limited, but real-world study in Japan, finds low Covid incidence in immunocompromised patients with hemotological disease having taken larger...

A somewhat limited, but real-world study in Japan, finds low Covid incidence in ...

JIDD

•11 months ago

6 Replies

Deferasirax and Ibrutinib

Hi, my ferritin is 900, which is due to repeated blood transfusions , The oncologist has prescribed me Deferasirax 180 mg per day. On the other hand, my...

Hi, my ferritin is 900, which is due to repeated blood transfusions , The oncolo...

ava1967ir

•11 months ago

6 Replies

Paxlovid and Ibrutinib

I just tested positive for Covid. Can I continue to take Ibrutinib while I'm on Paxlovid? Thanks.

I just tested positive for Covid. Can I continue to take Ibrutinib while I'm on...

Ngtinfu

•11 months ago

6 Replies

A Glossary

This is for the Webmaster & crew but I'd also like the opinions of you all: I've been on W&W for over 12 years (I'm now on L&L - Lead & Lethargy) and I'm...

This is for the Webmaster & crew but I'd also like the opinions of you all: I'v...

SurviveOr

•11 months ago

8 Replies

Sores from calequence

Has anyone else gotten sore from acalebrutinib ( calequence) they are round and feel like burns. What do you put on them ?

Has anyone else gotten sore from acalebrutinib ( calequence) they are round and ...

gymbunny1

•11 months ago

11 Replies

Strategic Masking to Protect Patients from All Respiratory Viral Infections

This topic is often raised on this forum and this paper makes the case for continued masking in hospitals. Brief synopsis here "Discontinuing masking...

This topic is often raised on this forum and this paper makes the case for conti...

Jm954

Administrator•11 months ago

12 Replies

Colon cancer secondary to CLL

I had posted that I was diagnosed with stage 3 colon cancer and I’ve since had the mass successfully removed. Out of 16 lymph nodes analyzed 1 had cancer. So...

I had posted that I was diagnosed with stage 3 colon cancer and I’ve since had ...

angelikab

•11 months ago

17 Replies

POST 5 - CAR-T cell therapy

This is my latest update and not the one I expected to write. Those members following my CAR-T journey will recall my Consultant was to call me last Wednesday...

This is my latest update and not the one I expected to write. Those members fol...

casanova

•11 months ago

64 Replies

Changes over two years

Hello, I follow the CLL website as my husband was diagnosed with confirmed B CLL a few years ago (October 2019). He has regular blood tests every four weeks...

Hello, I follow the CLL website as my husband was diagnosed with confirmed B C...

strongmouse

•11 months ago

5 Replies

I am wondering how this applies to us for CAR-T

https://www.msn.com/en-us/money/news/allogene-therapeutics-allogeneic-car-t-therapy-proves-potential-for-lbcl-treatment-analysts-see-potential-for-first-in-clas

https://www.msn.com/en-us/money/news/allogene-therapeutics-allogeneic-car-t-ther...

craterlake

•11 months ago

2 Replies

Now showing on Vjhemonc CLL channel, Epcoritamab for Richter's, identifying high risk CLL, Pirtobrutinib Genomic Evolution, HOVON 141/VISION

The latest videos on the CLL channel https://www.vjhemonc.com/subject/chronic-lymphocytic-leukemia/#latest-videos. complement some of the recent posts on new...

The latest videos on the CLL channel https://www.vjhemonc.com/subject/chronic-ly...

AussieNeil

Administrator•11 months ago

9 Replies

anybody achieved good blood results with venclexta in 6 months and stopped treatment?

I was on acalabrutinib for 1,5 years, then dr switched me on venclexta. My blood results are completely normal for 3 months and I want to stop treatmentbecause...

I was on acalabrutinib for 1,5 years, then dr switched me on venclexta. My blood...

Belkin123

•11 months ago

22 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2023

swollen lymph node

Ibutinib

Water or how much water on Gazyva?

Free speech - a clarification

Technical problem with posting

Help and advise

Can CLL spread /change?

Infected lymph node

alternative therapies

Oh Happy Days - New Oncologist🎉🎉🎉

watch and wait (!?)

Ativan for anxiety

Permanent Antibiotics

Pentamidine?

Thank you all

Just diagnosed

Every story matters - UK COVID-19 public inquiry

What a start with V+O

Evusheld still works for hematological disorders

Deferasirax and Ibrutinib

Paxlovid and Ibrutinib

A Glossary

Sores from calequence

Strategic Masking to Protect Patients from All Respiratory Viral Infections

Colon cancer secondary to CLL

POST 5 - CAR-T cell therapy

Changes over two years

I am wondering how this applies to us for CAR-T

Now showing on Vjhemonc CLL channel, Epcoritamab for Richter's, identifying high risk CLL, Pirtobrutinib Genomic Evolution, HOVON 141/VISION

anybody achieved good blood results with venclexta in 6 months and stopped treatment?

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