Help and advise

[Becks1995]

I've had these marks on my body for years, I do tend to see more coming up throughout the years ? I have them scattered around my body in different locations. I've Googled so many times but can't see to find any information. I've been doctors and had blood test but nothing was detected? Anybody no what these are or could be ? Or even how to get rid. They never seem to disappear.

[AussieNeil Partner Administrator]

Hi Becks,

It's not something that's indicative of Chronic Lymphocytic Leukaemia, which is the blood cancer supported by this community. That they are stable should be a good sign. Have you ever seen a skin specialist/dermatologist about these marks?

Neil

[Becks1995 in reply to AussieNeil]

Hey Neil thanks for replying

No I haven't when I had my blood test with my doctor I was never referred to a dermatologist. But now as I'm getting older I'm noticing more appear over my body. Some are raised loose skin aswell as intended flat marks.

[AussieNeil Partner Administrator in reply to Becks1995]

Ask your doctor for a referral to put your mind at risk. It's hard to diagnose over the internet

[Becks1995 in reply to AussieNeil]

Thank you 😊

[Becks1995]

No they don't get warm or hot and doesn't hurt when you press on them either.

[HailMary-USA]

Hello Becks.

This looks like the early stages of my DSAP skin condition, which is very rare, usually inherited, and completely unknown outside of Dermatology.

Disseminated Superficial Actinic Poroketatosis.

A different condition from the more commonly known, age-related AK (Actinic Keratosis).

DSAP is a hypersensitivity to sunlight that will progress over the years.

Twenty or so years ago I was told that it would not lead to skin cancer but that I must nevertheless avoid ALL sun exposure.

Now it is known to lead to precancerous cells.

Avoiding sunlight is paramount.

Treatment for worsening lesions (raised, red, burning, sore) is cryosurgery (chemical freezing).

Definitely see a dermatologist for proper diagnosis and advice.

Do not despair. Nothing terrible about DSAP as it’s very manageable.

And of course I’m just a layperson sharing my personal experience.

Not trying to diagnose your own condition.

See a dermatologist and be reassured.

Best wishes from Mary

aocd.org/page/DisseminatedS...

[claree_ford]

I have very similar looking things (caveat, just because mine are similar and not a problem doesn’t mean yours are the same). Mine start as raised rough skin, slowly over six months or so turn colour slightly and then just sit there. When I got the first few (in my late forties so about twenty years ago) my doctor said it was “age”. Occasionally I catch the edge of one, it goes dark brown and falls off leaving no mark behind. A few years ago I had an unrelated op and realised one large one had been removed - presumably for analysis - as I never heard anything further I guess there was nothing of concern.

I believe mine are called seborrheic keratosis. Which, as I said, doesn’t mean yours are the same, just meant to be reassuring that there is something out there which is not a problem in the scheme of things!

[Greenbunnies]

I have dozens of something that looks similar and the dermatologist says they are seborrheic keratosis, apparently common in adulthood, not dangerous and also unrelated to CLL. But you should get yours looked at by a doctor anyway!