alternative therapies : Hi, I was diagnosed in... - CLL Support

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alternative therapies

MareeM profile image
2 Replies

Hi,

I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months. In September 22 I started Venetoclax ramp up along with 6 x monthly infusions of Rituximab. I have also been having regular IVIG infusions. I have been contacted by a well meaning friend trying to sell me ASEA, I can not see any medically factual evidence of if this gear works or is it just another dodgey MLM scheme praying on people looking for hope?

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MareeM profile image
MareeM
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AussieNeil profile image
AussieNeilAdministrator

It's a pseudo-science scam mcgill.ca/oss/article/contr...

I've never heard of it mentioned with respect to CLL.

Neil

MareeM profile image
MareeM in reply to AussieNeil

thank you, from the few searches that I have done, I thought it was expensive salt water.

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