Permanent Antibiotics: I have had troubles with... - CLL Support

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Permanent Antibiotics

Reinhard profile image
19 Replies

I have had troubles with sinusitis since half a year.We tried antibiotics 6 times- last time prolonged for 3 weeks. After ohne week the infection is back. Could be that eventually I need a surgery.

I had this problem already in 2012 and 2015 (it took me 1 - 2 years each time to get rid if this condition.

I wanted to ask...has anybody successfully treated chronic infections by taking antibiotics longterm? Should I ask my doc for such an inztervention with permanent antibiotics?

Best regards

Reinhard

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Reinhard
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19 Replies
mrsjsmith profile image
mrsjsmith

Hello,

Yes I was diagnosed with chronic ethmoid sinusitis several years ago. Luckily my fabulous ENT surgeon said although many would operate he thought it could leave scar tissue and lead to further infection. Mine is kept under control with a prophylactic dose of Azithromycin three times a week. I also have Avamys and Mometasone, just in case. Sterimar nasal sprays are also helpful. I am lucky 🤞 mine is under control because continuous sinus infections are miserable. You have my sympathy.

Colette

Reinhard profile image
Reinhard in reply to mrsjsmith

Dear ColetteMany thanks...I am also on prophylactic antibiotics - but Lidaprim is rather for urinary infections. I will check if I can get a more efficient for sinus infection.

Reinhard

mrsjsmith profile image
mrsjsmith in reply to Reinhard

I am not sure why you think I am on Lidaprim, having checked it is not the same as Azithromycin that was prescribed by my haematology professor and my ENT surgeon. And I can assure you it is extremely efficient.

Colette

Reinhard profile image
Reinhard in reply to mrsjsmith

Sorry...I ment I am on Lidaprim and Lidaprim doesn't help for sinusitis

mrsjsmith profile image
mrsjsmith in reply to Reinhard

Ah yes it is for urinary infections.

Have you had a CT scan, because you mention narrow sinus, and mine are also narrow and twisted.

Colette

Reinhard profile image
Reinhard in reply to mrsjsmith

Yes, CT is done.

lankisterguy profile image
lankisterguyVolunteer

Hi Reinhard,

There is a past posting that may be useful, listed in the Related Posts box on this page:

healthunlocked.com/cllsuppo...

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The other option is IVIG or SubQIG, you can read our past 510 postings about this expensive but effective means of monthly infusions in a clinic or weekly self injections at home.

healthunlocked.com/cllsuppo...

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You may get excellent Australia specific info on this from  AussieNeil

_

Len

Reinhard profile image
Reinhard in reply to lankisterguy

Many thanks LenI get Ivig and I am otherwise free of infection. So looks like I have narrow sinus which are swollen after some infections from my grandchildren.

Reinhard

Shedman profile image
Shedman

Which antibiotic(s) were you prescribed?

A friend (and her dad) both suffered repeat sinus troubles..

One (arrogant?) Dr declared how they usually start with Amoxicillin..

The wiser Dr checked the notes for history of sinus infection and prescribed metronidazole (flagyl) for benefit of it's excellent penetration.. in to all those clogged apertures.. It did the trick.

Neither Dr suspected vitamin A deficiency; some years later, it was shown that vitamin A deficiency was contributing to multiple infections, slow recovery, also skin issues (various eczema and psoriasis types), and warts.. all cleared soon after vitamin A level was corrected, some robust health followed, and night vision improved too. -- correction via retinyl ester (vitA) supplements and eating liver (most concentrated dietary source; 100g = 7 days dose -- care must be taken for those that might conceive, as excess vitA may harm the foetus.)

Reinhard profile image
Reinhard in reply to Shedman

I got different AB. Last was Clavamox (name in Austria).But I will talk to my doc about changing it...and also checking vitamin A.

Reinhard

Shedman profile image
Shedman in reply to Reinhard

Clavamox = amoxicillin + clavulanate

"a potentiated penicillin" against gram positive and gram negative bacteria

I think a look at vitA, and ponder metronidazole.. just know that it is incompatible with any alcohol intake.

Reinhard profile image
Reinhard in reply to Shedman

Adding liver to my diet and drinking no Alkohol would both be no problem. Big problem would be incompatibility with sun exposure, as I do lot of sports outdoor.Many thanks for sharing your experience!

Reinhard

Shedman profile image
Shedman in reply to Reinhard

Metronidazole doesn't cause sun sensitivity, unlike doxycycline .. and it's not for longterm continuous use .. but it might leave you feeling poorly at sometime during treatment period.

Eric70 profile image
Eric70

Hi Reinhard, I have had this exact trouble with constant Sinus and eye infections. Was passed from eye surgeon to Ear, nose and throat specialist. Was told that surgery would last about 6 months, so decided against it. Eventually they put me on Antibiotics permanently, Doxycycline once a day, and I've had no trouble at all for almost 4 years now. I am 77 years of age, so they were worried about any problems over long term use. It is the best treatment I have had and haven't had one infection since. Hope this helps, good luck, regards Eric.

Reinhard profile image
Reinhard in reply to Eric70

Thanks a lot...very helpful Eric!

Big_Dee profile image
Big_Dee

Hello Reinhard

I have had sinusitis on/off for most of my life, even this morning. The antibiotics solution is always temporary for me. Best thing I did was quite smoking which greatly reduced my nasal discharge. Blessings.

Barney2866 profile image
Barney2866

Hi, I have to take antibiotics every day to combat prostate infections.

Notmuchenergy profile image
Notmuchenergy

i found taking one low dose garlic pearl each day cleared my sinusitis up

Reinhard profile image
Reinhard in reply to Notmuchenergy

Many thanks...I have already tried garlic, horseradish...unfortunately without success.At present I try tea tree oil...

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