My diagnosis has changed from Lymphoprolific none nodal mantle cell lymphoma age 56 to more of a CLL at 79 years.

[Jennifer_africa]

I would like to know other peoples experience with CLL. My lymphocytes went up to 270 and I was started on Acalabrutinib 100mg twice daily. Have been on this for 100 days, This has brought the count down to 8.5 . I have had atrial fibrillation a year before starting on Acal, so I am on beta blocker and blood thinner. So far no effects from taking this medication. I believe you continue taking it until your body reacts against it.

In early days had spleen out 2004 . When lymphocytes progressed had Retuxan and Chlorambucil 4 rounds in 2017. Count started going back up in 2021.

I would be very pleased to get more knowledge of my “new” disease. Thankyou Jennifer_africa

[lankisterguy Volunteer]

Hi Jennifer-africa,

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We have had several members go through the same experience with CLL and MCL being borderline diagnoses.

See: healthunlocked.com/cllsuppo...

The testing that is done to distinguish among the 70+ different Leukemias and Lymphomas is sometimes confusing, and the doctors need to test repeatedly. The test is called Flow cytometry . Here are some explanations of the process.

medicalnewstoday.com/articl...

emedicine.medscape.com/arti....

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I believe that many CLL expert doctors would tell you that more is known about treating CLL than MCL - although some treatments are used for both.

And also you have good news that yours does respond to treatment.

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There are many resources for you to read, to help understand your CLL diagnosis see (this first link leads to many others, so take you time to read a few and come back to it often over the next few weeks or months).

healthunlocked.com/cllsuppo...

cllsociety.org/newly-diagno...

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Len