Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for September 2019

Imbruvica & Hydrea treatment?

I’ve been on the above meds for 3 months but WBC still hanging around 200k. RBC, HGB and HCT dropping. Energy is low and taking other meds for Crohn’s disease...

I’ve been on the above meds for 3 months but WBC still hanging around 200k. RBC,...

ladymoyock

•5 years ago

8 Replies

Blood count update

Hello my friends hoping you are all feeling better. I had my hemo appointment today and my immunoglobulins look like very low.... I will start new infusions...

Hello my friends hoping you are all feeling better. I had my hemo appointment to...

Deta1961

•5 years ago

3 Replies

Venetoclax day 2

Morning blood test fine and tablet taken. Discharged from hospital with 5 days supply of venetoclax and a truck load of other drugs (antivirals etc) Feeling...

Morning blood test fine and tablet taken. Discharged from hospital with 5 days ...

Fowey2009

•5 years ago

4 Replies

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FLU SHOT ?

Is a FLU shot a bad idea with having CLL I am not sure If I ever asked this but I would like to know if anyone has had one and its ok...

Is a FLU shot a bad idea with having CLL I am not sure If I ev...

lacroixx1

•5 years ago

14 Replies

Swelling

Has anyone experienced red, swollen legs and feet?

tootsie2

•5 years ago

17 Replies

joint pain

I have had CLL for 20 years been through 2 rounds of chemo and now on imbruvica the only real side affect for me is bone pain but I have had a knee replaced 10...

I have had CLL for 20 years been through 2 rounds of chemo and now on imbruvica ...

whitetail

•5 years ago

12 Replies

How do I find a CLL Oncologist specialist near me ( UK)

Hi I am currently waiting for results of a flow symmetry - nearly 4 weeks from the John Radcliffe - very anxious as I was told they should be back in around 2...

Hi I am currently waiting for results of a flow symmetry - nearly 4 weeks from t...

Obiecat

•5 years ago

17 Replies

Pleural effusion and CLL urgent thoughts sought!

G' Morning! I am being driven up a UK motorway and the wife of a friend has just rung me... My friend aged 73 with CLL currently in a UK Hospital. He was...

G' Morning! I am being driven up a UK motorway and the wife of a friend has jus...

JigFettler

Volunteer•5 years ago

12 Replies

September Meeting of the Long Island CLL Society Support Group

You are all invited to join us for our September meeting of the Long Island CLL Society Support Group. We will meet on Thursday, September 12th at the Syosset...

You are all invited to join us for our September meeting of the Long Island CLL ...

SusanBo

•5 years ago

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Venetoclax day 1 (UK)

My husband was due to start venetoclax last week but it was postponed due to a lack of beds in the haematology ward. He started this morning. Started with a...

My husband was due to start venetoclax last week but it was postponed due to a l...

Fowey2009

•5 years ago

8 Replies

WBC doubles

My numbers have double, WBC up to 110,000, all the other numbers our normal. Doc wants to see me again in 4 weeks, I feel great with no symptoms, don't...

My numbers have double, WBC up to 110,000, all the other numbers our normal. Do...

Die-Hard

•5 years ago

12 Replies

Pain in the bones in my hands

Since being diagnosed with cll Feb 2019 (it's in my bone marrow) I have more sensitivity in the bones in my hands. It is much more painful when I accidentally...

Since being diagnosed with cll Feb 2019 (it's in my bone marrow) I have more sen...

Gman2

•5 years ago

14 Replies

Ibrutinib supply

Where is Ibrutinib manufactured

donbuoy

•5 years ago

16 Replies

ldh

Anyone with ldh info mine went from 146 to 208 in 30 days

jdh1970

•5 years ago

8 Replies

Little blood blisters

I’m getting little blood blisters that are popping up. Today I noticed blood in the sink and couldn’t figure where it was coming from. My arm had a long...

I’m getting little blood blisters that are popping up. Today I noticed blood in...

aquafinn

•5 years ago

13 Replies

Bone marrow

My Bone marrow biopsy showed that I have 80% cancer in the marrow. Is this rather high for people with CLL? Do all CLL patients have a bone marrow biopsy

My Bone marrow biopsy showed that I have 80% cancer in the marrow. Is this rath...

tootsie2

•5 years ago

16 Replies

Conflict- on imbruvica per oncologist, orthopedic disagrees

I have been on imbruvica for 3months. I had bilateral knee replacements march 2018. I cut my knee a few weeks ago and it became severely infected, I went to...

I have been on imbruvica for 3months. I had bilateral knee replacements march ...

MyStarlite1

•5 years ago

9 Replies

A little nervous

Hi Everyone! For the first time since I’ve been diagnosed 4 years ago my doctor is having me come back in 6 weeks.My numbers are up ,lymphs enlarged and he...

Hi Everyone! For the first time since I’ve been diagnosed 4 years ago my doctor ...

aquafinn

•5 years ago

21 Replies

Good results

Yayyyyy ctscan was good.....no organs involved and only a sprinkling of swollen lymph nodes So no treatment now.. i see Dr in 6mo Just need to rest and...

Yayyyyy ctscan was good.....no organs involved and only a sprinkling of swol...

Stelladoro

•5 years ago

4 Replies

CLL Society Support Group Member Resource Guide

This list was created by the LA Support Group of The CLL Society and would be useful primarily for USA residents. - CLL Society Support Group Member...

This list was created by the LA Support Group of The CLL Society and would be us...

lankisterguy

Volunteer•5 years ago

1 Reply

UTI infection

Hello everyone, I already 2 years on Imbruvica and start to have almost each month UTI infection. Does anyone have the same situation?

Hello everyone, I already 2 years on Imbruvica and start to have almost each mon...

farber

•5 years ago

7 Replies

Having a bad day!

Since being diagnosed earlier this year I have managed to stay positive, pragmatic and perky despite gradually beginning to feel rather unwell. However, over...

Since being diagnosed earlier this year I have managed to stay positive, pragmat...

Jooby59

•5 years ago

15 Replies

Can I refer to fatigue during Ibrutinib treatment as anemia although iron is normal

Anemia with normal iron

onu1tadi2

•5 years ago

4 Replies

Venetoclax ramp up week 2

I write this as I am on my way home from the two day ramp up process for week 2 of Venetoclax. I am happy to report that things are going amazingly well! My...

I write this as I am on my way home from the two day ramp up process for week 2 ...

t2aa

•5 years ago

4 Replies

Hair

Hi I’ve read on here about people’s hair going curly which mine has but it is also falling out by the handful , has anyone else had this happen

Hi I’ve read on here about people’s hair going curly which mine has but it is al...

Workers

•5 years ago

18 Replies

high lymphocytes and low neutrophils

i have high lymphocytes and low neutrophils, can this mean cancer? they are both not even off by 1%. help?

i have high lymphocytes and low neutrophils, can this mean cancer? they are both...

shay123665

•5 years ago

24 Replies

Remission question...CLL

I’m curious if those here who are in remission can tell me how long they have been and how old they are. I’m a 68 yr old male and finished Chemo 3 months ago....

I’m curious if those here who are in remission can tell me how long they have be...

Estate1

•5 years ago

21 Replies

Pre-Rash Shingles Symptoms

Shingles is a virus condition involving inflammation of sensory nerves that can result in severe pain. It causes localized pain, numbness, and itching,...

Shingles is a virus condition involving inflammation of sensory nerves that can ...

Jm954

Administrator•5 years ago

10 Replies

New York City -- CLL Patient Support Group Sunday September 8, 2019 3pm – 5pm 1305 York Ave, New York, NY (Manhattan)

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL...

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Gro...

lankisterguy

Volunteer•5 years ago

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CLL and Round up

Forgive me if this has been discussed on this forum, but this is the first that I've heard of it. Apparently, Monsanto (the makers of Roundup) is being sued...

Forgive me if this has been discussed on this forum, but this is the first that ...

Andreamo

•5 years ago

33 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2019

Imbruvica & Hydrea treatment?

Blood count update

Venetoclax day 2

FLU SHOT ?

Swelling

joint pain

How do I find a CLL Oncologist specialist near me ( UK)

Pleural effusion and CLL urgent thoughts sought!

September Meeting of the Long Island CLL Society Support Group

Venetoclax day 1 (UK)

WBC doubles

Pain in the bones in my hands

Ibrutinib supply

ldh

Little blood blisters

Bone marrow

Conflict- on imbruvica per oncologist, orthopedic disagrees

A little nervous

Good results

CLL Society Support Group Member Resource Guide

UTI infection

Having a bad day!

Can I refer to fatigue during Ibrutinib treatment as anemia although iron is normal

Venetoclax ramp up week 2

Hair

high lymphocytes and low neutrophils

Remission question...CLL

Pre-Rash Shingles Symptoms

New York City -- CLL Patient Support Group Sunday September 8, 2019 3pm – 5pm 1305 York Ave, New York, NY (Manhattan)

CLL and Round up

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