Venetoclax day 1 (UK): My husband was due to... - CLL Support

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Venetoclax day 1 (UK)

Fowey2009 profile image
8 Replies

My husband was due to start venetoclax last week but it was postponed due to a lack of beds in the haematology ward.

He started this morning. Started with a blood test. When the results from that were received they gave him 20mg of venetoclax along with anti-virals, antibiotics, anti gout and anti sickness medications. He was attached to a drip for the whole day and including his oral intake he probably had 5litres of fluid.

His 6pm blood test came back fine. He is staying in hospital overnight and if tomorrow mornings blood test is ok they will give him the next 20mg venetoclax and he can come home with tablets for the following 5 days. He will then go back next week and hopefully increase the dosage (although hopefully no overnight stay).

Four years ago he had FCR and found that very tough. However so far, so good......

Happy to provide updates if it helps others

Beryl

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Fowey2009 profile image
Fowey2009
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8 Replies
HailMary-USA profile image
HailMary-USA

Thank you for sharing--best wishes to you both!

Mary

nvp815 profile image
nvp815

Happy to hear he did well today. Hope all goes smoothly tomorrow also. Best wishes to you as well. It is never easy worrying about our loved ones. I look forward to reading your updates.

Warm regards,

Nancy

Justasheet1 profile image
Justasheet1

Beryl,

Awesome first day. Keep us posted.

Jeff

Rafe profile image
Rafe

Great start! I hope all continues to be well.

Fowey2009 profile image
Fowey2009 in reply to Rafe

Thank you

Fran57 profile image
Fran57

Hi Beryl.

Fingers crossed that it all goes well!

Fran xx

Fowey2009 profile image
Fowey2009 in reply to Fran57

Thanks Fran. Early days but so far so good..... Bx

Catonka profile image
Catonka

Updates are a wonderful help. Thank you!

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