Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for March 2019

Curling 123

With TP53 showed 17p deletion in 14.5% of nuclei, 13q in 31% of nuclei, 11q deletion in 13.5% of nuclei. I don’t have any symptoms. With these results, will...

With TP53 showed 17p deletion in 14.5% of nuclei, 13q in 31% of nuclei, 11q dele...

Curling123

•5 years ago

5 Replies

Extreme tiredness first few weeks on venetoclax

I am finishing my 3rd week on venetoclax. My numbers yesterday are good: ALC 3600; platelets 149000; hemoglobin 11.4 (it was 10 before treatment). I feel okay...

I am finishing my 3rd week on venetoclax. My numbers yesterday are good: ALC 360...

profrich

•5 years ago

16 Replies

Getting 2nd opinion for CLL

Just wondering if anyone has seen a CLL specialists at Mayo in Jacksonville, FL. I have been seeing a hematology oncologist for last year and he has me on W&W...

Just wondering if anyone has seen a CLL specialists at Mayo in Jacksonville, FL....

BamaLady

•5 years ago

6 Replies

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Long Island CLL Patient Support Group

Hello everyone, so happy to invite all to attend our monthly meeting of the Long Island CLL Patient Support Group - (see attached flyer). We are a patient...

Hello everyone, so happy to invite all to attend our monthly meeting of the Long...

SusanBo

•5 years ago

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Night sweats

I'm writing this for my dad. He took Ibrutinib and dropped due to pulmonary edema. Now he has complains of night sweats. He gets up and breaks the sleep which...

I'm writing this for my dad. He took Ibrutinib and dropped due to pulmonary edem...

Vick07

•5 years ago

2 Replies

Update- My Imbruvica plus Venetoclax Captivate trial.

Hello, I am very pleased to report I am still MRD undetectable in the blood and bone Marrow after almost 1 year!! My Doctor prefers to say MRD-...

Hello, I am very pleased to report I am still MRD undetectable in the blood and...

Hoffy

•5 years ago

25 Replies

Stressing

Tickle in throat and feeling a little nauseous. First time ill since starting treatments. 2 sessions of BR completed. 4 more to go. I’m probably worrying but...

Tickle in throat and feeling a little nauseous. First time ill since starting tr...

Estate1

•5 years ago

15 Replies

Splinter

i recently pulled a splinter from my index finger, now it's swollen and has been for several days. I applied ice to the finger and the swelling has not gone...

i recently pulled a splinter from my index finger, now it's swollen and has been...

williamsw

•5 years ago

5 Replies

What does 5.2 mean?

Hi guys I had a blood test when in hospital and have been referred back to gp for fbc re lymphocytosis, hospital visit was unrelated banged my head. All I got...

Hi guys I had a blood test when in hospital and have been referred back to gp fo...

Melnz

•5 years ago

3 Replies

Pneumonia vaccination

I had serious pneumonia and Pleurisy 2 years ago. Do I still need a vaccine now ?

I had serious pneumonia and Pleurisy 2 years ago. Do I still need a vaccine now...

barbkay17

•5 years ago

8 Replies

GP's and results

How do you deal with GP's ? He has got me so friggin stressed. He was in a panic when he got my latest results from the lab. My Total lymphocyte count went to...

How do you deal with GP's ? He has got me so friggin stressed. He was in a panic...

Billy_Oz

•5 years ago

8 Replies

CLL Doctor - Leeds.

Can anyone recommend a CCL Doc or hospital in West Yorkshire please.

shornoff

•5 years ago

11 Replies

In Limbo

Hello. I was diagnosed 7 years ago, at the age of 48, with Chronic Lymphocytic Leukaemia. Over the years I have become accustomed to the unfazed response of...

Hello. I was diagnosed 7 years ago, at the age of 48, with Chronic Lymphocytic ...

Lapo

•5 years ago

92 Replies

Re: apricot seeds -

Site I was browsing was www.cancercompass.com It is a forum talking about apricot seeds. I am not agreeing with all I read, just putting forth the information....

Site I was browsing was www.cancercompass.com It is a forum talking about aprico...

Curling123

•5 years ago

7 Replies

Ibrutinib and a rash

I am my aunt's caretaker. She has atypical CLL. They started her own ibrutinib and she developed a serious rash. They took her off it and they are starting her...

I am my aunt's caretaker. She has atypical CLL. They started her own ibrutinib a...

Marisa50

•5 years ago

17 Replies

Will infrared lighting work

Will infra red lights help with painful enlarged lymph nodes ? I use the lighting for Daibetic neuropathy and for sure see improvement there... I don’t think...

Will infra red lights help with painful enlarged lymph nodes ? I use the light...

haposwald

•5 years ago

4 Replies

Cll specialists in South Africa

I live in South Africa and am, at present seeing a haematologist. I wondered if there were any other South Africans on this site and whether they know of a cll...

I live in South Africa and am, at present seeing a haematologist. I wondered if ...

Sally91

•5 years ago

5 Replies

CLL apricot kernels and green tea extract.

I am newly diagnosed. White cells were 3.2L. In Ontario top of range is 2.9. I hope it is decided I am wait and see for now. I am taking for now two dried...

I am newly diagnosed. White cells were 3.2L. In Ontario top of range is 2.9. I h...

Curling123

•5 years ago

17 Replies

Should I Worry?

I have just had blood tests done and my platelet count is 611. Is this something I should be worried about?

I have just had blood tests done and my platelet count is 611. Is this something...

Landan

•5 years ago

3 Replies

Solutions to help leases/eliminate bruising

Hi.. wondering if anyone who has experienced frequent/ higher than normal skin bruising as a side effect of Imbruitinib? If so what solutions have you found to...

Hi.. wondering if anyone who has experienced frequent/ higher than normal skin b...

2016miniman

•5 years ago

12 Replies

Breathlessness?

Curious if my racy heart (at times) and shortness of breath are adverse reactions to BR?

Curious if my racy heart (at times) and shortness of breath are adverse reaction...

Estate1

•5 years ago

14 Replies

Ibrutinib Partial Response

I have been on Ibrutinib a little over a year now Male currently 49 yrs. old my WBC count was as high as 350k now hovering at 85k. I am now on my second...

I have been on Ibrutinib a little over a year now Male currently 49 yrs. old my...

Litevibe

•5 years ago

20 Replies

Lost sense of smell

I am a 69 year old UK based patient. I had BR in 2017 and I am doing fine for the moment although I had several temperature spikes and an attack of sepsis...

I am a 69 year old UK based patient. I had BR in 2017 and I am doing fine for th...

Clovelly

•5 years ago

8 Replies

Vanity question

With all the struggle on ibrutinib I’m feeling more stable platelets good. This is so vain but want to feel normal. Any insight on cosmetic fillers on...

With all the struggle on ibrutinib I’m feeling more stable platelets good. Thi...

ElMaga

•5 years ago

7 Replies

The time has come.

Well after 25 months the time has come for treatment. WBC is 182.5, HGB 12.4 Lymphocytes 91 Starting a trial at Rutgers cancer institute in about 3 weeks 19...

Well after 25 months the time has come for treatment. WBC is 182.5, HGB 12.4 Lym...

Coolerjoe

•5 years ago

9 Replies

Cancer research

Sharing information...

Trev1

•5 years ago

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Sick from imbruvica?

After 2 years of success on imbruvica, I am having terrible side effects that I attribute to the drug. Shortness of breath, spiking very high blood pressure,...

After 2 years of success on imbruvica, I am having terrible side effects that I ...

Rickeyj

•5 years ago

12 Replies

What do all these Acronyms mean?

Is there a post that explains all these acronyms you all seem to know? I am having trouble understanding many of the posts because I have no idea what they...

Is there a post that explains all these acronyms you all seem to know? I am havi...

t2aa

•5 years ago

8 Replies

A must read; perhaps previously posted ?

http://www.bbc.co.uk/news/uk-wales-47376777

Yuck

•5 years ago

1 Reply

What shoul we do....

My fiancee was admitted to the hospital because of dengue last Feb. 27, 2019. He experienced rashes, headache, high fever and sore at the back of his eyes....

My fiancee was admitted to the hospital because of dengue last Feb. 27, 2019. He...

Hidden

•5 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2019

Curling 123

Extreme tiredness first few weeks on venetoclax

Getting 2nd opinion for CLL

Long Island CLL Patient Support Group

Night sweats

Update- My Imbruvica plus Venetoclax Captivate trial.

Stressing

Splinter

What does 5.2 mean?

Pneumonia vaccination

GP's and results

CLL Doctor - Leeds.

In Limbo

Re: apricot seeds -

Ibrutinib and a rash

Will infrared lighting work

Cll specialists in South Africa

CLL apricot kernels and green tea extract.

Should I Worry?

Solutions to help leases/eliminate bruising

Breathlessness?

Ibrutinib Partial Response

Lost sense of smell

Vanity question

The time has come.

Cancer research

Sick from imbruvica?

What do all these Acronyms mean?

A must read; perhaps previously posted ?

What shoul we do....

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