CLL Advocates Network Horizons conference just... - CLL Support

CLL Support

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CLL Advocates Network Horizons conference just completed in Prague

Irishcll profile image
8 Replies

Very proud that CLL Ireland is working closely with other advocates around the world, sharing best practices on access to the newer treatments and all things CLL.

On a personal note I found it emotional but inspired to make a difference here in Ireland

Professor Tal Munir from Leeds gave a wonderful talk on the great work in trials and CAR T. We can be very positive of the future but we have loads of work to do to gain access for the patients.

A special mention to CLLPAG and Lymphoma Canada who gave an inspired talk on their collaboration to get approval for Venetoclax. We can learn so much and it's important to work together and share.

CLLAN is a wonderful platform for this to happen. A big thanks to the other members of the steering committee who I am proud to work with.

Really looking forward to next year's conference.

I forgot to mention CLL Ireland won the best poster competition.

Regards

Michael

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Irishcll profile image
Irishcll
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8 Replies
MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Michael - It is so amazing to see the way the CLL world is connecting on an international level. Congratulations on your win in the poster competition!

Oleboyredw-uk profile image
Oleboyredw-uk

Hi Michael,

Congratulations on winning the poster comp. Are you going to share it with us? I am always willing to learn from others. One day I might need to make another poster.

best, rob

Irishcll profile image
Irishcll in reply to Oleboyredw-uk

Thanks Rob

We are proud to share with the group.

I will post on a new topic.

Kind regards

Michael

Cllcanada profile image
CllcanadaTop Poster CURE Hero

Great to hear...l thank you Michael.. hope there will be videos to follow.

Irishcll profile image
Irishcll in reply to Cllcanada

Yes Chris. It's was all recorded and will be shared soon. Very impressed with the Canadian crew and looking forward to working closely with them.

Kind Regards

Michael

Justasheet1 profile image
Justasheet1

Thank you for you and your groups hard work. I second Chris’s request for videos if available.

Thanks,

Jeff

Irishcll profile image
Irishcll in reply to Justasheet1

Thanks Jeff

Videos very soon on the CLL Advocates Network site

Regards

Michael

PaulaS profile image
PaulaSVolunteer

Hi Michael,

I was interested to see that Tal Munir from Leeds is now a Professor! Such a nice man. He was the one who diagnosed my ruptured spleen in Leeds and always took time to explain things very clearly to hubby and me. I'm very grateful to him.

Well done CLL Ireland, on winning the poster competion! :-)

Paula

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