Posts - CLL Support | HealthUnlocked

CLL Support

22,528 members • 38,693 posts

All posts for June 2017

Need help please...

I read on here a couple of weeks ago about being able to 'pull out' blood test results etc. Could someone please tell me how to join. I overheard a lady...

I read on here a couple of weeks ago about being able to 'pull out' blood test r...

Susiecarer

•7 years ago

4 Replies

Allopurinol

Hi everyone I've just started my third session of FCR and haven't been prescribed my gout medication, Allopurinol this time. My nurse says I only take for...

Hi everyone I've just started my third session of FCR and haven't been prescrib...

sallyplest

•7 years ago

6 Replies

When do we stop vaccinating against an infectious disease?

When will we be at a point where it’s safe to stop vaccinating against measles? Or against other rare and infectious diseases? Interesting article by...

When will we be at a point where it’s safe to stop vaccinating against measles? ...

AussieNeil

Administrator•7 years ago

1 Reply

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If anyone has wondered where I`ve been, I didn`t fall off the face of the earth I just forgot about my e mail site

ok I just remembered that I have e mail and I had a zillion messages. Why? One memory, I forgot about my e mail. Two, I discovered Facebook from my new...

ok I just remembered that I have e mail and I had a zillion messages. Why? One m...

greygirl

•7 years ago

15 Replies

Asmatha / cll

In national paper at weekend was story about leukaemia and asthma Have many people on here got asthma after finding out they have leukaemia ?

In national paper at weekend was story about leukaemia and asthma Have many peop...

Jsk1950

•7 years ago

5 Replies

lymphocytes numbers

at time of diagnosis absolute lymphocites are 5.7, on blood are those many in your experience?

at time of diagnosis absolute lymphocites are 5.7, on blood are those many in y...

JGCLL2017

•7 years ago

11 Replies

non Hodgkin Lymphoma

Hello everyone I would like to find people who are on ACP 196 drug for Non Hodgkin Lymphoma Agnes

Hello everyone I would like to find people who are on ACP 196 drug for Non Hodg...

agneshun

•7 years ago

9 Replies

Blood work results

Dr words "you just continue whatever you're doing, it's working. I'm just a babysitter now". Mentioned it many times, got shredded more than once but here...

Dr words "you just continue whatever you're doing, it's working. I'm just a baby...

mombasa333

•7 years ago

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Psp

Does anybody have any medication for psp I am in my 4th year of diagnoses and was on Parkinsons medication but I was told thst it was dooing me more harm than...

Does anybody have any medication for psp I am in my 4th year of diagnoses and w...

Sgadan

•7 years ago

1 Reply

Denmark

Is there a support group in Denmark?

idanina1

•7 years ago

1 Reply

Shoulder pain unbearable

2 months in with ibrutinin and struggling with immense shoulder pain. Spent 4 days on the laptop last week and from Friday haven't been able to move my...

2 months in with ibrutinin and struggling with immense shoulder pain. Spent 4 d...

KAS8

•7 years ago

10 Replies

Explainer: what is chemotherapy and how does it work?

While more relevant to solid cancer treatment, much of this article provides a useful background to CLL treatment. Of particular interest is the natural...

While more relevant to solid cancer treatment, much of this article provides a u...

AussieNeil

Administrator•7 years ago

2 Replies

Where is help

I am in BOCA Raton, FL. Is there a support group here?

Bily

•7 years ago

4 Replies

Amox annd CLL

I have CLL and currently have a bit of Pneumonia....I'm on the 3rd day of a 10 day course of AMOX-CLAV 875-125mg tablet...1 every 12 hours....any suggestions...

I have CLL and currently have a bit of Pneumonia....I'm on the 3rd day of a 10 ...

arcarcarc

•7 years ago

7 Replies

UTI

Can anyone advise me please. I am due to start my third FCR on Thursday but have been to Walk in Centre today and had some antibiotics for a UTI. Could this...

Can anyone advise me please. I am due to start my third FCR on Thursday but have...

sallyplest

•7 years ago

4 Replies

Continuation of antivirals post treatment

Hi everyone, I completed round 6 of FCR in March. I've been building myself up and was beginning to feel somewhat normal again when 10 days ago I got shingles....

Hi everyone, I completed round 6 of FCR in March. I've been building myself up a...

Kenn123

•7 years ago

16 Replies

Improving Cancer Clinical Trial Participation and Eligibility Criteria - Julia Beaver, MD, US Food and Drug Administration (FDA)

Cancer Network: How big of a problem is accrual of participants in clinical cancer treatment trials? Dr. Beaver: Cancer trials are known to...

Cancer Network: How big of a problem is accrual of participants in clinical canc...

AussieNeil

Administrator•7 years ago

1 Reply

Anniversary Date

Today I am celebrating my 3rd anniversary since being diagnosed with CLL. Although my WBC is climbing ever so slowly I have no other symptoms and continue to...

Today I am celebrating my 3rd anniversary since being diagnosed with CLL. Altho...

Flipper5610

•7 years ago

10 Replies

Shingles post FCR

I finished FCR about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped...

I finished FCR about 9 weeks ago and was beginning to feel better and thinking a...

Kenn123

•7 years ago

15 Replies

Emails?

I have not been getting any healthunlocked CALL emails since May 28. I did check my spam and that does not appear to be the problem. Diandgord

I have not been getting any healthunlocked CALL emails since May 28. I did ch...

diandgord

•7 years ago

4 Replies

platelet levels still dropping

My OH had his first FCR treatment 5 weeks ago. Was due for another to start last Tuesday, but platelet levels low (72), so delayed a week until another test...

My OH had his first FCR treatment 5 weeks ago. Was due for another to start las...

shoppingtrolley

•7 years ago

13 Replies

CLLSA Members Meeting March 2017 - Dr Follows presentation available

The meeting was opened by David Innes as chairman of the CLLSA. This was followed by a presentation by Dr Follows talking about CLL - The disease and its...

The meeting was opened by David Innes as chairman of the CLLSA. This was follow...

Myrddin

•7 years ago

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Any connection between HRT and CLL ?

Hi all, I was diagnosed in 2015 ,treated with FCR in nov2016, all went well considering how it affects some people, I came through well. So... just wondering...

Hi all, I was diagnosed in 2015 ,treated with FCR in nov2016, all went well cons...

Megellen

•7 years ago

3 Replies

Newly diagnosed with two blood disorders

My main query is .... is there anyone on here with both Cll and PV? I am coming to terms with a double whammy. I saw consultant at the beginning of May and was...

My main query is .... is there anyone on here with both Cll and PV? I am coming ...

nanmc

•7 years ago

6 Replies

How to I navigate to the Ohio State "James" video.

I have tried everything I can think of to find the Ohio State "James" video from "last Spring" but I can not find it!!! HELP!!!

I have tried everything I can think of to find the Ohio State "James" video from...

julienpr

•7 years ago

4 Replies

Newbie

Glad to be on board! 60 yrs old. Diagnosed in 2010. Wait & Watch. Self-administered ECGC since 2010. asymptomatic.

Glad to be on board! 60 yrs old. Diagnosed in 2010. Wait & Watch. Self-administe...

Shadow327

•7 years ago

7 Replies

Return of sll

Hi my sll has recently woken up again and I have swollen nodes, fatigue, sweats etc, my consultant who is very good is going to start me on imbruvica...

Hi my sll has recently woken up again and I have swollen nodes, fatigue, sweats ...

Tigger53

•7 years ago

9 Replies

More on Genetic Testing in CLL in A Facebook Live Event at 1 PM June 1

Hi, A genetic testing Facebook Live event wil happen this Thursday from ASCO with Dr. Jeffrey Jones similar to the one I did at iwCLL. Dr. Jones from Ohio...

Hi, A genetic testing Facebook Live event wil happen this Thursday from ASCO wit...

bkoffman

CLL CURE Hero•7 years ago

Be the first to reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2017

Need help please...

Allopurinol

When do we stop vaccinating against an infectious disease?

If anyone has wondered where I`ve been, I didn`t fall off the face of the earth I just forgot about my e mail site

Asmatha / cll

lymphocytes numbers

non Hodgkin Lymphoma

Blood work results

Psp

Denmark

Shoulder pain unbearable

Explainer: what is chemotherapy and how does it work?

Where is help

Amox annd CLL

UTI

Continuation of antivirals post treatment

Improving Cancer Clinical Trial Participation and Eligibility Criteria - Julia Beaver, MD, US Food and Drug Administration (FDA)

Anniversary Date

Shingles post FCR

Emails?

platelet levels still dropping

CLLSA Members Meeting March 2017 - Dr Follows presentation available

Any connection between HRT and CLL ?

Newly diagnosed with two blood disorders

How to I navigate to the Ohio State "James" video.

Newbie

Return of sll

More on Genetic Testing in CLL in A Facebook Live Event at 1 PM June 1

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