Posts - CLL Support | HealthUnlocked

Administrator•8 years ago

I took Zydelig for 3 months for Follicular Non Hodgkin's Lymphoma. I had a very serious adverse reaction to this drug resulting in Pneumonitis. I was...

BEWARE OF ZYDELIG

I took Zydelig for 3 months for Follicular Non Hodgkin's Lymphoma. I had a very ...

Jencarr

•8 years ago

29 Replies

The danger of overselling science

'Scientists need to take more care in how they report their results, the media needs to stop overselling, and the public needs to be trained in critical...

'Scientists need to take more care in how they report their results, the media n...

'Many over-the-counter products claim to “clean” your liver of “toxins”. But does the liver really respond to an over-the-counter product that claims to...

Administrator•8 years ago

4 Replies

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Can the liver be ‘cleansed’ by a detox diet or supplement?

'Many over-the-counter products claim to “clean” your liver of “toxins”. But doe...

Administrator•8 years ago

Night Sweats are severe and serious. All over the body. Very little sleep for weeks. I understand no treatment, no cure. Naproxen doesn't help. The...

Do The Sweats Ever Get Stop

Night Sweats are severe and serious. All over the body. Very little sleep for we...

JosephVidmar

•8 years ago

7 Replies

When is FISH testing done?

At what point is the fish test done? Newly diagnosed watch and wait and oncologist has not done one. Do other numbers determine when this test is done? Had...

At what point is the fish test done? Newly diagnosed watch and wait and oncolog...

BeckyLUSA

•8 years ago

8 Replies

Hi. I've new & have been lurking.

So I'm new to the community. I was diagnosed in January 2016 after suspecting something was wrong for about 6 months, and having some B symptoms for almost a...

So I'm new to the community. I was diagnosed in January 2016 after suspecting so...

asktinu

•8 years ago

23 Replies

Patients’ Preferences for Genomic Diagnostic Testing in Chronic Lymphocytic Leukaemia

Hi all, Yesterday I published a paper in a journal called The Patient, titled: "Patients’ Preferences for Genomic Diagnostic Testing in Chronic Lymphocytic...

Hi all, Yesterday I published a paper in a journal called The Patient, titled: ...

oxfordjames

•8 years ago

Good to hear a cll story with a positive outcome. An interesting journey - ‘Prof Gribben walked in one day and congratulated me. I was apparently 98 per...

A positive story

Good to hear a cll story with a positive outcome. An interesting journey - ‘Pr...

Myrddin

•8 years ago

6 Replies

Not sure what is going on

Stopped visiting this site because I was embarrassed. My gp told me I had cll. Sent me to a specialist. Told me no I don't. He took 13 vialls of blood. One...

Stopped visiting this site because I was embarrassed. My gp told me I had cll. S...

Clsmith

•8 years ago

10 Replies

WHO?

The 2016 revision of the World Health Organization (WHO) classification of lymphoid neoplasms is coming soon... and CLL/SLL is still a lymphoma. There are a...

The 2016 revision of the World Health Organization (WHO) classification of lymph...

Cllcanada

Medical science stumbles on --- slowly.

Had my quarterly check-up with Dr. Wierda (MD Anderson) and was informed that he he had discovered, as well as can be determined, that I am the last person in...

Had my quarterly check-up with Dr. Wierda (MD Anderson) and was informed that he...

Hidden

•8 years ago

12 Replies

cll staging

Prior to BR treatment my husband was staged at Binet C. He completed the Chemo in March and has been told he is in complete remission...and will go back to...

Prior to BR treatment my husband was staged at Binet C. He completed the Chemo i...

alice111

•8 years ago

10 Replies

Atrial Fibrillation, Warfarin Use May Increase Dementia Risk

'Patients with atrial fibrillation may have a heightened risk of developing dementia — and the quality of their anticoagulation treatment may play a role,...

'Patients with atrial fibrillation may have a heightened risk of developing deme...

Administrator•8 years ago

'Cognitive-behavioral therapy (CBT) might help cancer survivors manage the long-term cognitive dysfunction some experience after chemotherapy, according to...

Chemobrain - Psychotherapy (CBT) May Improve Cognitive Dysfunction After Chemo

'Cognitive-behavioral therapy (CBT) might help cancer survivors manage the long-...

Administrator•8 years ago

Hey guys! Is anyone here currently enrolled in (or know someone who is) this triple therapy trial at the Ohio State Univ? I'm really interested in this, as it...

OSU Venclexta + Imbruvica + Obinutuzumab Trial

Hey guys! Is anyone here currently enrolled in (or know someone who is) this tri...

JNDF2016

•8 years ago

2 Replies

Open source removes secrecy in drug research

'Traditional research is often a world of secrecy. A small group works on a project and when there’s a result, a paper might be published. Now, the open...

'Traditional research is often a world of secrecy. A small group works on a proj...

Administrator•8 years ago

Where do I find the 'pinned posts'? I thought they were to the right of the screen but I can't see them. The wine glass is only half empty promise! Peggy

Having a moment (another!)

Where do I find the 'pinned posts'? I thought they were to the right of the scre...

Peggy4

•8 years ago

A friend of the wifes who didnt previously about my condition mentioned rebounding when my wife spoke to her the other day. Its basically bouncing on a mini...

Rebounding, anyone do it?

A friend of the wifes who didnt previously about my condition mentioned reboundi...

grizzlebear

•8 years ago

14 Replies

Idealisib-serious infections

Idealisib- serious infections I am on idealisib for the past 12 months. My WBC is getting better. so far no serious problems apart from a nasty cough which...

Idealisib- serious infections I am on idealisib for the past 12 months. My WBC i...

eggemma

•8 years ago

10 Replies

Interpreting FISH results

Hi guys! We just got the fish panel for my loved one, and it didn't list the specific markers (ie 17p, 13q, 11q) on the report. There was simply a phrase that...

Hi guys! We just got the fish panel for my loved one, and it didn't list the spe...

JNDF2016

•8 years ago

Friends US Congressman DeSaulnier has chosen to share his diagnosis and treatment for CLL with the public in stark contrast to our public figures who kept...

US Congressman DeSaulnier Share the news of his diagnosis and treatment for CLL.

Friends US Congressman DeSaulnier has chosen to share his diagnosis and treatmen...

bkoffman

CLL CURE Hero•8 years ago

I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from...

Under 50 and had FCR?

I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly a...

Mnance

•8 years ago

Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well....

5 vs 6 rounds of FCR

Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I ...

Mnance

•8 years ago

7 Replies

Complacency leading to death - the downside of effective legislation

What do car safety requirements, vaccination programs and food preparation hygiene laws have in common? The unnecessary loss of life because people become...

What do car safety requirements, vaccination programs and food preparation hygie...

'Consumer Affairs Victoria said it was preparing to take Ms Gibson to court following an in-depth investigation into alleged contraventions of Australian...

Administrator•8 years ago

6 Replies

Disgraced so-called wellness advocate Belle Gibson, who claimed to have cured her cancer through alternative medicine, faces legal action

'Consumer Affairs Victoria said it was preparing to take Ms Gibson to court foll...

Hi. I have just returned from The Christie, Manchester, with my husband, he has been for his 3 monthly check up. He has been on Idelalisib for 9 months now...

Administrator•8 years ago

4 Replies

Update

Hi. I have just returned from The Christie, Manchester, with my husband, he has...

june65

•8 years ago

13 Replies

Stress, telomeres and CLL, a possible connection

The question of what role stress has in us developing CLL and its rate of progression regularly comes up. Premature shortening of telomeres provides one...

The question of what role stress has in us developing CLL and its rate of progre...

'One man, Professor Atul Butte director of the University of California Institute of Computational Health Sciences, believes that like other Silicon Valley...

Administrator•8 years ago

2 Replies

Garage Biotech: Repurposed drugs using only a computer, the internet and free online data

'One man, Professor Atul Butte director of the University of California Institut...

Administrator•8 years ago

With a CLL diagnosis, our increased risk secondary cancers becomes a concern. So understandably, many of us look at what we can do to reduce our risk of...

Do Mobile/Cell phones cause brain cancer?

With a CLL diagnosis, our increased risk secondary cancers becomes a concern. S...

Administrator•8 years ago