Prior to BR treatment my husband was staged at Binet C. He completed the Chemo in March and has been told he is in complete remission...and will go back to watch & wait, seeing his Consultant at 3 monthly intervals. I must admit, until we saw a copy of the letter from the Consultant to his GP last week we weren't aware what stage he was, only that his FISH results were good. My question is , does this mean he is now stage A ? ...bit of a silly question I suspect ...
Thank you x
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alice111
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Yes it was a good result, only slight cloud on the horizon is a leison on his right kidney which they had assumed was CLL related but apparently is not...he is being referred to Urology now...How are you? Hope all is well
I was stage 2/3 before BR treatment - May-Sept. 2012 - and am still in remission, now on 6 month checkups. Hope your husband also has a long period free from illness.
Hi, sorry I can't answer your question regards staging but wanted to wish you and your husband well and offer congratulations, but also ask a question if you don't mind? My husband completed 6 rounds of FCR in April, and a month later had a review and blood test with his consultant. The CLL was never shown in normal blood tests results but because he had enlarged nodes which have gone down, and his blood levels were normal, he deemed him to be in remission. In June he will have a CT Scan and another blood test but no BMB is planned, or cytometry test as far as I know, so I cannot see how they will know what kind of remission he will be in. What tests did your husband have? Hope you don't mind my hijacking your question.
We asked about a BMB and the Consultant was quite surprised .. It appears they don't carry them out routinely .. only when a patient becomes resistant to treatment , or is in a clinical trial .. I found this surprising when you consider that the cancer is in the BM. Consultant felt blood tests and a CT scan were more than adequate .
This approach appears to be the case in the UK ..
Very best wishes for your husbands long remission .
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