Unfortunately my second B + R infusions in this clinical trial were delayed by a week due to a query raised by Pharmacy - compounded by a lack of space in the Day Care Unit. Contact was made with the Clinical Trial Company and they have agreed to the delay of my B + R chemotherapy - but I continue to take the CAL 101 / Placebo twice a day - no antibiotics. (Then get back on program - in 3 weeks time!)
At my Consultant Appointment - 14/08/13 - Dr P "delighted" with my progress especially reduction in "nodes" and general blood levels.
Blood samples taken for Clinical Trial purposes.
Hospital Blood test - Results FBC 171.3/ Lymphocyte 166.9 / Platelet count / Neutrophil Count 1.30
Questionnaires on how I am feeling physically / mentally - I am concerned about Treatment / Infections / CLL getting worse / family worries.
But in myself I am ok (ish) just frustrated by delay & paperwork.
Eventually the two days of Bendamustine and Riuximab infusion went well with the associated preventative drugs taking care of any side effects. (In fact 30 mins after the infusion was finished I was driving myself home in my Mazda - roof down - enjoying lots of fresh air ! )
Whilst these Clinical Trials are "blind", I do appear to be one of the lucky participants - because as various haematologist have noted "something else is working inside my body to produce the physical and blood test results - over and above normal B + R reactions !" - or as one friend put it " your body must be made of steel!"
But maintaining my vigilance on infections and germs as well as being thankful to my God!