Is it possible to have covid yet testing negat... - CLL Support

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Is it possible to have covid yet testing negative?

keeptalking profile image
19 Replies

My husband tested positive on Friday. We had both been feeling unwell and fatigued. We had been on a flight together on Tuesday. My test showed negative and has continued to do so.

We have mirrored one another’s symptoms all through. Today my husband feels better but I feel worse. Could it still be covid? If so I’ve missed the infusion that I could have had with a positive result.

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keeptalking
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19 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi keeptalking,

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The COVID tests that you read at home ( called LFT - Lateral Flow Tests) are not always accurate- they have 10% or more false negative and false positives, so it is possible to get a negative result when you use a home test.

theguardian.com/world/2021/...

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The PCR tests that are done in your CMDU facilities - where the specimen is collected by a trained medical professional and the results are read by a sophisticated machine have a much better accuracy - see osfhealthcare.org/blog/pcr-....

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And even the PCR tests can yield a false negative, but the % is much smaller:

mayoclinic.org/tests-proced....

-

Len

keeptalking profile image
keeptalking in reply tolankisterguy

Thanks Len. I have a PCR test but I understood it was obsolete now and we just had to use the LFTs. I will try that kit if it works.

New-bee-cell profile image
New-bee-cell

There are case studies of CLL patients who test negative “off and on” for weeks, but are eventually found to have Covid infection.

sciencedirect.com/science/a...

Take care🙂

Poodle2 profile image
Poodle2

Contact your specialist and tell them what you have just told us🤞🏻you can be negative on LFT but I do think it would show eventually. Hope you start feeling better soon xxx

TimHB profile image
TimHB

YES! I recently returned from a European trip with Covid, despite 2 negative tests prior to boarding my flight and 3 negative tests after arriving home and feeling the onset of symptoms. Only a PCR test came up positive. My doctor said the rapid at-home tests are unreliable and not picking up this latest strain.

Alex830 profile image
Alex830

My daughter didn’t test positive on a pcr test until 6 days after her symptoms started. She gets tested regularly at her work, they use pcr tests.

bkoffman profile image
bkoffmanCLL CURE Hero

Quite common, especially with home antigen tests, Some variants are reliably positive. PCR is better, but still not 100%. If it seems like Covid, it probably is.

keeptalking profile image
keeptalking

It is.

keeptalking profile image
keeptalking

Tested last night and now positive.

KatieBlue profile image
KatieBlue

This may be helpful regarding the at home tests …

twitter.com/michaelmina_lab...

keeptalking profile image
keeptalking

Thanks for this. Where do immuno compromised people come into this. Perhaps that would explain why my husband went straight to positive with all the symptoms that go with it. Whereas for me the symptoms told me something was happening to my body but it couldn’t muster the response needed to show positive. My husband is so much better whereas I’m still struggling on. Awaiting the hospital doctors call re treatment.

Mtk1 profile image
Mtk1 in reply tokeeptalking

Hope you get the treatment soon, good luck Dave.

stevesmith1964 profile image
stevesmith1964

HiIf laterflow then yes , easily have a negative result due to the method and your viral load. PCR rarely give false negatives. The key with positive PCR is to the CT value of the result especially post infection because although PCR may be positive if the CT value is above 30 ish your not infectious

keeptalking profile image
keeptalking in reply tostevesmith1964

What does CT stand for please.

stevesmith1964 profile image
stevesmith1964

Cycle Time. Basically how many times the replication takes place to get a result, higher the CT thus more replicatons meaning lower about of virus in the body. I understand during the Pandemic medical staff were allowed back to work with a positive PCR if the CT was above 33

kitchengardener2 profile image
kitchengardener2

Hope you both feel better soon. Perhaps we CLL folks would be better doing a PCR as soon as we feel ill irrespective of what the LFT shows. I am getting more and more concerned now.

keeptalking profile image
keeptalking

Please don’t get concerned as I’ve got there in the end. Tested positive last night. I have to say I’ve been impressed by the phone calls that started first thing this morning. GP first and then the hospital. Antivirals all arranged. So the system does work eventually.

skipro profile image
skipro

IT IS DEFINITELY POSSIBLE , especially if a home or antigen test. Best bet is a PCR test. Try to get a PCR ASAP, or in some cases, spouses of a Covid positive patient that have identical symptoms but negative tests can get covid treatments, especially if immuno-compromise. Check with you doc. Good luck and God bless!

zaax profile image
zaax

On the other hand it could just be butterflies from the anticipation of the trip

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