Please Help with the Global Leukaemia Patient Experience Survey 2021

[Jm954]

The CLL Advocates Network (CLLAN) in partnership with Acute Leukemia Advocates Network (ALAN) and the CML Advocates Network (CMLAN) are running a Global Leukemia Patient Experience Survey 2021 to create a global picture of the key issues, experiences and unmet needs of leukaemia patients.

The survey collects key data on important areas of patient experience such as diagnosis, treatment, patient preferences, quality of life and also impact of the COVID-19 pandemic on patient experience and outcomes. It is available in 10 languages and is an international patient group led initiative.

The data is important for CLLAN and our partner networks to effectively understand the patient needs and situation in all our member countries. The information is collated and then evaluated, no one's details are disclosed. This assists us in understanding patient priorities and enables us to focus our advocacy activities.

The survey is open until end of this month (December 2021).

healthunlocked.com/api/redi...

Thank you for collaboration in assisting us to be able to help CLL patients globally.

Jackie

[Newdawn Administrator]

It tells me there’s an error and won’t load at the moment Jackie. Maybe it’s so popular, it’s crashed! 😉

I’ll try later.

Newdawn

[Jm954 Administrator in reply to Newdawn]

Very strange, I've tried 3 times to copy the link that works for me but it still will not work. I'll ask AussieNeil for help Thanks Newdawn and StayConnected

[HAIRBEAR_UK Founder Admin in reply to Newdawn]

Hi Jackie please try these links to reach the survey: oc-meridian.com/IQVIAIF/com... or t.co/oSwFFv0SFX have just checked both, they work, if they do for please do update your parent post.

Many thanks

Nick

[Jm954 Administrator in reply to HAIRBEAR_UK]

Thanks, post now edited 😊

[CLLerinOz Administrator in reply to HAIRBEAR_UK]

Thanks, that worked!

[HAIRBEAR_UK Founder Admin in reply to Newdawn]

Hi Newdawn please try this link to reach the survey: oc-meridian.com/IQVIAIF/com... or t.co/oSwFFv0SFX

BW

Nick

[StayConnected]

The link to the Global Leukemia Patient Experience Survey 2021 didn’t work.Kathy, Missouri, USA

[HAIRBEAR_UK Founder Admin in reply to StayConnected]

Hi StayConnected please try this link to reach the survey:oc-meridian.com/IQVIAIF/com... or t.co/oSwFFv0SFX

[StayConnected in reply to HAIRBEAR_UK]

Thanks. It worked and I completed the survey!—Kathy, Missouri USA

[ClassyLady3 in reply to HAIRBEAR_UK]

Just complete it! Thank you!

[morepork]

All done here in NZ 😊

[ChuckyB]

Done👍

[RogerPinner]

It worked for me and it's done (30 mins!)

Roger

[MorganNL]

Worked for me……done👏. Hope it helps, was a well designed survey and easy to complete!

[rslagle]

All done,, quite extensive

[cllady01 Former Volunteer]

I have completed it--had to use Hairbair's oc-Meridian to get in in English