Acalabrutinib and mouth sores

[Sergi]

Hi everyone,

My wife Gabriella started Acalabrutinib for CLL a couple of weeks ago and getting great results (lymph nodes in the neck area almost gone ) and very few side effects ( morning headaches taken of with a cup of coffee, thanks to a post I read )

Very painful mouth sore appeared a couple of days ago and looking for tips to make it less painful

Thanks and good health to all

[lankisterguy Volunteer]

Hi Sergi,-

You can find several times this was discussed by looking for the box on this page labeled:

Related Posts

*Treatments for mouth sores on Imbruvica? healthunlocked.com/cllsuppo...

*Ulcer like mouth sores healthunlocked.com/cllsuppo...

*Mouth ulcers (canker sores) healthunlocked.com/cllsuppo...

*Sore mouth and tongue healthunlocked.com/cllsuppo...

*Ibrutinib and mouth sores anyone? healthunlocked.com/cllsuppo...

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For your investigation you may want to consider Ibrutinib/Imbruvica very similar to Acalabrutinib / Calquence.

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For more details see this link to the 124 times mouth sores were mentioned in past posts

healthunlocked.com/cllsuppo...

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Len

[Sergi in reply to lankisterguy]

Thanks len

[DoriZett]

I am also on Acalabrutinib. Ten months into treatment I got my first mouth sore. Later they also appeared in my nose . I do not have them every month - maybe several times a year. Mupirocin (prescribed by ENT) ointment is what I use in my nose. I use one version of a Magic Mouthwash (there are several recipes out there!) = 1/3 hydrogen peroxide, 1/3 baking soda, 1/3 warm water. Shake it up and use as a mouth wash/rinse 2-3 times daily. Clears them up pretty quickly. Other Magic Mouthwash recipes have (prescribed) liquid lidocaine but that numbs the entire mouth and I didn't want that effect. Best of luck to your wife. Wonderful she has a caregiver looking out for her!

[Sergi in reply to DoriZett]

Thanks Dorizett , just hoping they don’t just keep popping, we’re trying salted water and oregano oil for now, see what happens Thanks for your advice and good health to you

[mrsjsmith in reply to Sergi]

Sorry to hear that Sergi,

But I second your wife’s use of Oregano oil. I hope it works soon.

Colette

[Sergi in reply to mrsjsmith]

Ok Thanks

[Hoffy in reply to mrsjsmith]

Oregano oil worked great for me too. 1 drop on my tooth paste. Rinse a bit too,

Be well,

Hoffy

[Sergi in reply to Hoffy]

ThanksMy wife started yesterday with oregano oil mixed in water and use as mouthwash, we’ll see what happens

[Sprietgemeente]

Hi Sergi, Gengigel has helped me every time I have mouth sores. Certainly worth a try. They are gone after two to three days. Good luck.

[Sergi in reply to Sprietgemeente]

Great thanks for your input

[Hidden]

I had mouth sores as well and bought Prevention mouth rinse for oncology patients. Got it off internet and it did help me. Good luck.

[Sergi in reply to Hidden]

Thanks MicheleTrying oregano oil for now, I’ll check it out if it doesn’t work