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CLL Support

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All posts for July 2021

Disc herniation c5-c6

I was having excruciating nerve pain. MRI show disc herniation & compressed nerve at c5-c6. Orthopedic physician recommends mobi c artificial disc surgery. I...

I was having excruciating nerve pain. MRI show disc herniation & compressed nerv...

Aprilsapphire

•3 years ago

6 Replies

T Cell Response Post Covid Vaccine

Wondering if anyone has had a T Cell test post vaccine? If yes, were you on CLL treatment? On ibrutinib and did not make antibodies. I know the T Cell test...

Wondering if anyone has had a T Cell test post vaccine? If yes, were you on CLL ...

Davidcara

•3 years ago

1 Reply

Second vaccine shot when COVID spike protein antibodies are high

Got my AZ vaccine on March 5th. Tested COVID-19 positive on March 28th. Had very mild case of COVID-19. My D-Dimer levels were high even at the beginning on...

Got my AZ vaccine on March 5th. Tested COVID-19 positive on March 28th. Had ver...

nuji

•3 years ago

2 Replies

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Coughing

I just went to get my blood work done.Thank God it was all in range. But the weirdest thing is that a nurse in the room was coughing it wasn't the one taking...

I just went to get my blood work done.Thank God it was all in range. But the wei...

Ballyhoo789

•3 years ago

31 Replies

"Nearly all patients with cancer respond well to COVID-19 vaccines" Except us.....!! New Study From US and Swiss

https://www.uthscsa.edu/patient-care/physicians/news-item/nearly-all-patients-cancer-respond-well-covid-19-vaccines?utm_source=Newsweaver&utm_medium=email&utm_t

https://www.uthscsa.edu/patient-care/physicians/news-item/nearly-all-patients-ca...

DanBro1

•3 years ago

28 Replies

what happens if I stop taking Imbruvica?

What happens if I stop taking Imbruvica? Not happy with the effects. I was diagnosed 3 months ago and all I had was enlarged lymph nodes. Now I have bleeding...

What happens if I stop taking Imbruvica? Not happy with the effects. I was diagn...

windy532

•3 years ago

23 Replies

Video of COVID-19: THE END OF LOCKDOWN UPDATE

The charity Leukaemia Care hosted this webinar two days ago, 12th July. "In this webinar we discussed how to manage your day-to-day activities and how to...

The charity Leukaemia Care hosted this webinar two days ago, 12th July. "In thi...

bennevisplace

•3 years ago

2 Replies

Anxiety/ stress/ worry building up !

Hi everyone After getting diagnosed on the 28th June, I’m due a follow up with my consultant near the end of this month. I can feel my stresses building up...

Hi everyone After getting diagnosed on the 28th June, I’m due a follow up with...

Lennc

•3 years ago

35 Replies

low neutrophils high lymphocytes, undiagnosed

my daughter has a low neutrophil count and high lymphocyte count, have been investigated over three months for auto immuni diseases, but nothing came out, she...

my daughter has a low neutrophil count and high lymphocyte count, have been inve...

ruyi

•3 years ago

3 Replies

What to Know About covid Vaccine Response in Immunocompromised Individuals

This is a good overview of the current (as of April) knowledge base for those of us concerned about tests showing low or no levels of antibodies after our...

This is a good overview of the current (as of April) knowledge base for those o...

22011

•3 years ago

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latest advice for CLL regarding new unlocking rules

Hi All, does anyone know the latest advice for us re the new Covid guidelines issued by the Government today. Thanks Ron

Hi All, does anyone know the latest advice for us re the new Covid guidelines is...

Vindicatrix

•3 years ago

6 Replies

Thank you !!

What a fantastic site full of informative information and people. This has really helped my anxiety and stress dealing with my diagnosis of CLL. Just wanted...

What a fantastic site full of informative information and people. This has reall...

Lennc

•3 years ago

7 Replies

Cll Drugs and the Immune System

Which of the newer non-kemo drugs have the least compromising effect on our immune system. I searched through the pinned post on how our immune system works...

Which of the newer non-kemo drugs have the least compromising effect on our immu...

Test_Tech

•3 years ago

11 Replies

Leukaemia Care Interview

Hello all, I have just finished recording an interview with Leukaemia Care for use in their Spot Leukaemia Early publicity in September. I think it went...

Hello all, I have just finished recording an interview with Leukaemia Care for ...

kitchengardener2

•3 years ago

6 Replies

Rash with imbruvica

My imbruvica caused rash all over body. Took prednisone went away now off imbruvica for awhile and rash seems to return over night not intensely but returns...

My imbruvica caused rash all over body. Took prednisone went away now off imbruv...

Gretsch6120

•3 years ago

7 Replies

CLL Society COVID-19 guidelines, & Explaining to Family and Friends Why the CDC Guidelines for Those Vaccinated - Do Not Apply to us

COVID-19, it’s not over! CLL Society will keep hammering away at this topic because we are continuing to hear that the general public, CLL patients, and even...

COVID-19, it’s not over! CLL Society will keep hammering away at this topic beca...

lankisterguy

Volunteer•3 years ago

7 Replies

CLL recent diagnosis- worries

Hi everybody, I am a 59 years old and recently been diagnosed with CLL picked up on a random blood test for an ear infection. I have had the report from my...

Hi everybody, I am a 59 years old and recently been diagnosed with CLL picked u...

Lennc

•3 years ago

41 Replies

Second vaccination following Venclexta

I am fully vaccinated and will conclude my two-year program on Venclexta in a few weeks. I have not had the antibody test, but suspect I have a limited number...

I am fully vaccinated and will conclude my two-year program on Venclexta in a fe...

Survivor1951

•3 years ago

Be the first to reply

Oooooo! Lies, More Lies, and Statistics! Time to get picky about believing what we read!

Oooooo! Lies, More Lies, and Statistics! Time to get picky about believing what we read! Let's let Dr. Susan Leclair take us on an eye-opening ride through the...

Oooooo! Lies, More Lies, and Statistics! Time to get picky about believing what ...

bkoffman

CLL CURE Hero•3 years ago

2 Replies

Update for CEV from Ukgov issued

Rather disappointingly there is no specific advice from government in their latest update which just tells persons identified as CEV to be 'extra careful' ....

Rather disappointingly there is no specific advice from government in their late...

Belfastbees

•3 years ago

41 Replies

The Leukemia & Lymphoma Society’s (LLS) Co-Pay Assistance Program assists with out-of-pocket expenses up to $11,000

Co-Pay Assistance Program https://www.lls.org/support-resources/financial-support/co-pay-assistance-program - The Leukemia & Lymphoma Society’s (LLS)...

Co-Pay Assistance Program https://www.lls.org/support-resources/financial-sup...

lankisterguy

Volunteer•3 years ago

6 Replies

Israel approves third dose for immunocompromised

They finally gave the approval! Will speak with my specialist tomorrow to discuss risk/benefit of pausing Ibrutinib to get the best chances of a response....

They finally gave the approval! Will speak with my specialist tomorrow to discus...

Youngen

•3 years ago

30 Replies

Can you have the covid vaccine whilst taking Acalabrutinib

Catdoe

•3 years ago

4 Replies

Acalabrutinib - effects of temporarily not taking it

Thought I'd share my experience of temporarily stopping Acalabrutinib. Upon advice, I stopped it for a week before a minor op. I usually walk 4 to 6 miles a...

Thought I'd share my experience of temporarily stopping Acalabrutinib. Upon adv...

flyhigher

•3 years ago

2 Replies

Ivermectin

Read and make your own decision, but the data speak to me: Viral clearance was treatment dose- and duration- dependent. In 11 randomized trials of...

Read and make your own decision, but the data speak to me: Viral clearance was ...

bkoffman

CLL CURE Hero•3 years ago

28 Replies

..however, after a second dose there is only a small and non-significant reduction in vaccine effectiveness

In most clinical risk groups, immune response to vaccination is maintained and high levels of VE are seen with both the Pfizer and AstraZeneca vaccines....

In most clinical risk groups, immune response to vaccination is maintained and h...

zaax

•3 years ago

18 Replies

Sun and skin

I know we have plenty else to concern us just now. This is not a warning, just a researcher's insights into the interaction of sun and skin. And who knew...

I know we have plenty else to concern us just now. This is not a warning, just a...

bennevisplace

•3 years ago

11 Replies

What about a 3rd vaccine shot (booster) for CLL patients?

Do you know if there are any recommendations for getting it? Any CLL patient from Israel received a third vaccine?

Do you know if there are any recommendations for getting it? Any CLL patient fro...

RamOren

•3 years ago

18 Replies

Covid Antibody result opinions sought

I am mindful of so many here finding zero antibodies when tested and I've long held off getting a test. I've been back to work a while now but cases were low....

I am mindful of so many here finding zero antibodies when tested and I've long h...

Belfastbees

•3 years ago

23 Replies

CLL Society In case you missed it: Learning to Decode Your Blood Test Results for CLL Webinar Replay On-Demand

In case you missed it: Learning to Decode Your Blood Test Results for CLL. Do you ever look at your blood test results from the lab and feel like you are...

In case you missed it: Learning to Decode Your Blood Test Results for CLL. Do yo...

bkoffman

CLL CURE Hero•3 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2021

Disc herniation c5-c6

T Cell Response Post Covid Vaccine

Second vaccine shot when COVID spike protein antibodies are high

Coughing

"Nearly all patients with cancer respond well to COVID-19 vaccines" Except us.....!! New Study From US and Swiss

what happens if I stop taking Imbruvica?

Video of COVID-19: THE END OF LOCKDOWN UPDATE

Anxiety/ stress/ worry building up !

low neutrophils high lymphocytes, undiagnosed

What to Know About covid Vaccine Response in Immunocompromised Individuals

latest advice for CLL regarding new unlocking rules

Thank you !!

Cll Drugs and the Immune System

Leukaemia Care Interview

Rash with imbruvica

CLL Society COVID-19 guidelines, & Explaining to Family and Friends Why the CDC Guidelines for Those Vaccinated - Do Not Apply to us

CLL recent diagnosis- worries

Second vaccination following Venclexta

Oooooo! Lies, More Lies, and Statistics! Time to get picky about believing what we read!

Update for CEV from Ukgov issued

The Leukemia & Lymphoma Society’s (LLS) Co-Pay Assistance Program assists with out-of-pocket expenses up to $11,000

Israel approves third dose for immunocompromised

Can you have the covid vaccine whilst taking Acalabrutinib

Acalabrutinib - effects of temporarily not taking it

Ivermectin

..however, after a second dose there is only a small and non-significant reduction in vaccine effectiveness

Sun and skin

What about a 3rd vaccine shot (booster) for CLL patients?

Covid Antibody result opinions sought

CLL Society In case you missed it: Learning to Decode Your Blood Test Results for CLL Webinar Replay On-Demand

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