The charity Leukaemia Care hosted this webinar two days ago, 12th July.
"In this webinar we discussed how to manage your day-to-day activities and how to start mixing with wider community as we see the world opening back up.
The session also provided insight into how patients on the panel were feeling and the methods they were going to use to help them navigate safely as restrictions ease".
Yes - a good session. It reinforced heavily the view that, no matter what is said, we need to draw our own boundaries and stick with them - often difficult with so many others lacking the understanding as to why we feel there are problems for us.
Hearing from leukaemia patients other than CLL brought out that each perceived a different level of risk and adopted different patterns of behaviour. People were making judgements based on their own knowledge of their own condition more than on antibody numbers coming out of clinical studies (although one guy did know his Ab titer).
From Helen Parry I noted :
Some CLL patients get a normal antibody response to vaccination
IgA deficiency correlates with low/ no antibodies
Antibody levels and neutralisation assays important indicators
More data to come from Birmingham, Tel Aviv et al, including cellular responses
Vax booster study is starting with immunocompromised participants.
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Leukemia And COVID-19
