low neutrophils high lymphocytes, undiagnosed - CLL Support

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low neutrophils high lymphocytes, undiagnosed

3 years ago•3 Replies

my daughter has a low neutrophil count and high lymphocyte count, have been investigated over three months for auto immuni diseases, but nothing came out, she is very much below her normal weight . and she is on growth hormone medication becasue of idiopathic short stature diagnosis. i need to know why her WBC count is abnormal. she is 11 years old and she weighs 24 kg. we are tired of being undiagnosed and dont know waht is the next step i should do

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ruyi

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AussieNeilPartnerAdministrator3 years ago

Hi Ruyi,

You have posted in a community supporting people with chronic lymphocytic leukaemia, which has a median age of diagnosis of about 71. It is very rare in those under 30 and far more rare in China and other Asian countries than elsewhere. So sadly, I don't think we can help you and your daughter, no matter how much we would like to do so. What I can do is highlight that you need to look at absolute white blood cell counts (#), not percentages (%). With a lymphocyte count of 2.91, your daughter's count is within the healthy range of your daughter's test lab, which is stated as LY# 1. 1 - 3.2.

The normal ranges vary by age and country and for the USA, the normal lymphocyte count for 10 to 20 year olds is 1.5 to 6. 5.

It's the low neutrophil count (putting her at increased risk of infection), that is of concern. It's because this is so very low, that the normal lymphocyte count when expressed as a percentage, comes out as high. I hope you can find an answer.

Neil

DriedSeaweed3 years ago

Hopefully, you were made aware of neutropenic diet. If not, Google it.

If I were in your shoes I would search for a major medical research institution in your area.

Also, I wouldn't be afraid to email doctors you find on websites. Often these emails can be found if they teach at a medical school too.

If you have no idea where to start go to clinicaltrials.gov (not to do a clinical trial but to find people's names in your area).

Search all studies. Type in neutropenia. Select country. Unfortunately, you will have to sift through a lot of studies of cancer that involve neutropenia. But see if you can find studies not involving cancer. Neutropenia can happen in children without cancer. Within each study there is a principal investigator. This can help you find doctors researching neutropenia.

If no luck try USA. I know people research it here. Then try emailing them if they are aware of colleagues in China researching neutropenia. Often people in a research field are aware of their peers.

Jm954Administrator3 years ago

The only thing here that is abnormal is, as AussieNeil says, the neutrophils in a child of 11 years. The low neutrophils can be a temporary finding if the child has had a recent viral infection but it could possibly be caused by an autoimmune disease.First thing to do is repeat the test and check that the result is the same. If it is then further tests may be needed or just monitoring.

Jackie

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