Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,948 posts

All posts for January 2021

How long do most people stay on calquence due to improvement?

Stopping calquence

Mackiec1108

•4 years ago

8 Replies

Anaemic

Hello all, Just had my 6 monthly W&W appointment. My WBC has gone down from 180 to 148 and haemoglobin has gone down from 116 to 97 making me anaemic. I am...

Hello all, Just had my 6 monthly W&W appointment. My WBC has gone down from 180...

Suzanne1970

•4 years ago

14 Replies

Finding my earlier posts

Can anyone advise how I would go about finding all of my earlier posts? Thank you in advance for all the truly wonderful people—especially administrators and...

Can anyone advise how I would go about finding all of my earlier posts? Thank yo...

Pogee

•4 years ago

2 Replies

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CLL cancer

I have had testicular cancer luckily caught it early but now have a pituarty tumour and CLL.I have been told this may have been caused by my radiotherapy and...

I have had testicular cancer luckily caught it early but now have a pituarty tum...

Gallowayirish

•4 years ago

3 Replies

Papaya Leaf source question.

Does anyone know of a trustworthy source of "lab tested" organic papaya leaf powder that is available in the US? Natural supplements are not regulated. You...

Does anyone know of a trustworthy source of "lab tested" organic papaya leaf pow...

davidgrush

•4 years ago

4 Replies

Newby

I was informed yesterday that my CLL was in its infancy, so w/w for me. My late father was, and very recently my elder sister is, similarly afflicted, so I...

I was informed yesterday that my CLL was in its infancy, so w/w for me. My late...

Speedscreed

•4 years ago

13 Replies

Self accupressure massage stomach and head

Hi all, regarding the above subject, I have already posted my query on the Well being site, and have been advised to also post it on this site. Over the past...

Hi all, regarding the above subject, I have already posted my query on the Well ...

Vindicatrix

•4 years ago

8 Replies

Death Certificate inaccuracies

Two of my best friends relatives died of heart attacks, in Sept and October. On the death certificate was Corona Virus, and it was not possible to get it...

Two of my best friends relatives died of heart attacks, in Sept and October. On ...

Speedscreed

•4 years ago

98 Replies

100,000 +

Was asking my hospital about a date about getting back to work , then read the news about the 100,000 deaths awful and thought it' can be difficult just to...

Was asking my hospital about a date about getting back to work , then read the n...

stewie

•4 years ago

3 Replies

CT scan denied

I'm fuming! I was scheduled to have a CT scan today at noon. It's been scheduled for months. I received some paperwork from the insurance company yesterday...

I'm fuming! I was scheduled to have a CT scan today at noon. It's been schedul...

MyCLLJourney

•4 years ago

25 Replies

Help dealing with frequent URIs.

I was diagnosed 15 years ago and have had several treatments. I started getting colds, and sinus infections a few years ago. I foolishly thought that Imbruvica...

I was diagnosed 15 years ago and have had several treatments. I started getting ...

Cllsller

•4 years ago

12 Replies

Acalabrutinib exhibits comparable efficacy, superior safety to ibrutinib for CLL (finally!)

Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZeneca’s Calquence (acalabrutinib) met the primary endpoint demonstrating...

Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZen...

avzuclav

•4 years ago

18 Replies

My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.

I wanted to share an update as my “N of 1 trial” have so far been a success for me. I reached remission in a very unexpectedly and to me almost...

I wanted to share an update as my “N of 1 trial” have so far been a success fo...

UniversallyPersonal

•4 years ago

17 Replies

Advice on vitamins

My husband has today been diagnosed with CLL. I am wondering if there are any specific vitamins that would help the condition? Any advice would be much...

My husband has today been diagnosed with CLL. I am wondering if there are any sp...

Wickedwooser

•4 years ago

41 Replies

Anyone know about this fasting and CLL?

I came across this. Anyone any thoughts on this or know anything new? It's about fasting mimicking diet improving the effects of treatment...

I came across this. Anyone any thoughts on this or know anything new? It's about...

Research123

•4 years ago

28 Replies

Trouble Getting Insurance Approval for Ibrutinib in the US?

Has anyone else had trouble getting Medicare (part D through WellCare) to approve their prescription for Ibrutinib? I was prescribed it 3 weeks ago and I am...

Has anyone else had trouble getting Medicare (part D through WellCare) to approv...

NPBonsai

•4 years ago

14 Replies

Self-introduction

Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine blood workup (plus the usual FISH-followup after high WBC...

Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL ...

Felixgratus

•4 years ago

34 Replies

Bone marrow biopsy

I am scheduled for a bone marrow biopsy, any suggestions regarding local numbing medication vs IV sedation? I have heard the procedure can be very painful.

I am scheduled for a bone marrow biopsy, any suggestions regarding local numbing...

napa

•4 years ago

97 Replies

Started calquence 1/22/2021 am and felt fine first day. When do side effects (if any) usually start?

Calquence side effects

Mackiec1108

•4 years ago

3 Replies

Hi- just a basic question about my husband’s numbers.. is anyone a translator, lol ?!

Hi all, thank you for this helpful forum!!! I just wanted to ask a couple questions. We are quite new here. My husband was diagnosed three months ago with...

Hi all, thank you for this helpful forum!!! I just wanted to ask a couple questi...

Bhappy64

•4 years ago

12 Replies

Unmuted IGVH ..., Is that bad or good?

(IGVH ... Unmuted) what does it mean?

Paulibiris

•4 years ago

8 Replies

Impressed !!

Yesterday I had to take John (hubby) to Trinity Park, in Suffolk for his first Covid vaccination. Very impressed with how everything has been organised. Cars...

Yesterday I had to take John (hubby) to Trinity Park, in Suffolk for his first C...

wroxham-gb

•4 years ago

11 Replies

Anyone Else Have This Problem?

I've been going through something really weird, now in my third year of Watch and Wait. Sometime during a day I start to feel like I am coming down with a...

I've been going through something really weird, now in my third year of Watch a...

wizzard166

•4 years ago

26 Replies

Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List

From MedPage Today: Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination...

From MedPage Today: Every state has posted information on its plan; many (though...

AussieNeil

Administrator•4 years ago

15 Replies

Just a little update :)

Hi everyone! Not to get into politics, but today sure does feel like the dawning of a new era (especially given the gorgeous weather here in Berlin!) I just...

Hi everyone! Not to get into politics, but today sure does feel like the dawning...

jijic

•4 years ago

10 Replies

COVID VACCINE UPDATE

I received an email from Dana Farber with a link to a web page regarding the new Covid Vaccine. I figured many of you would like access to this web page to...

I received an email from Dana Farber with a link to a web page regarding the new...

wizzard166

•4 years ago

6 Replies

Flair trial

Hi all am new to yr community and yesterday i have been put forward to attend the flair trial. I was given a information sheet and a consent form. To be honest...

Hi all am new to yr community and yesterday i have been put forward to attend th...

Daisy1993

•4 years ago

16 Replies

Husband tested positive for Covid

Not sure what to do, my husband tested positive for Covid this morning. As yet I feel fine, he is self isolating in the bedroom now but what am I supposed to...

Not sure what to do, my husband tested positive for Covid this morning. As yet I...

jendur

•4 years ago

33 Replies

Should I get the vaccine? Which vaccine? CLL Society’s Official Statement Concerning SARS-CoV-2 Vaccine in CLL patients

Should I get the vaccine? Which vaccine? Can I get COVID-19 from the shots? Are they otherwise safe? What are the side effects? Check out CLL Society’s...

Should I get the vaccine? Which vaccine? Can I get COVID-19 from the shots? Are ...

bkoffman

CLL CURE Hero•4 years ago

4 Replies

CLL

Hi everyone I have only just joined , so am new to this . I was diagnosed with CLL in September, a big blow to me !. I have been told early stages . Could be...

Hi everyone I have only just joined , so am new to this . I was diagnosed with C...

Stavrou1

•4 years ago

15 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2021

How long do most people stay on calquence due to improvement?

Anaemic

Finding my earlier posts

CLL cancer

Papaya Leaf source question.

Newby

Self accupressure massage stomach and head

Death Certificate inaccuracies

100,000 +

CT scan denied

Help dealing with frequent URIs.

Acalabrutinib exhibits comparable efficacy, superior safety to ibrutinib for CLL (finally!)

My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.

Advice on vitamins

Anyone know about this fasting and CLL?

Trouble Getting Insurance Approval for Ibrutinib in the US?

Self-introduction

Bone marrow biopsy

Started calquence 1/22/2021 am and felt fine first day. When do side effects (if any) usually start?

Hi- just a basic question about my husband’s numbers.. is anyone a translator, lol ?!

Unmuted IGVH ..., Is that bad or good?

Impressed !!

Anyone Else Have This Problem?

Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List

Just a little update :)

COVID VACCINE UPDATE

Flair trial

Husband tested positive for Covid

Should I get the vaccine? Which vaccine? CLL Society’s Official Statement Concerning SARS-CoV-2 Vaccine in CLL patients

CLL

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