Posts - CLL Support | HealthUnlocked

CLL Support

23,253 members•39,948 posts

All posts for August 2018

Bruising and itching

I have bruising and itching on the lower right side of my abdomen next to my naval and just under my right nipple of my right breast. It has been like that for...

I have bruising and itching on the lower right side of my abdomen next to my nav...

•6 years ago

CLL

Getting results of blood on monday started as flu 5 weeks ago last results wbc was 23,000 and lympnodes were about 12 my neck is swollen but now getting...

Getting results of blood on monday started as flu 5 weeks ago last results wb...

•6 years ago

Needing prayers - heading to emergency room with 101.6 neutropenic fever

Cll specialist called and told me to urgently go to hospital for Antibiotics in case of bacteria infection .... this is my first fever w cll and neutropenia-...

Cll specialist called and told me to urgently go to hospital for Antibiotics in ...

•6 years ago

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I need help understand CLL

I was diagnosed with CLL I’m 58 ..my WBC is 20 to date and was at 12 ..3 years ago .i was told it’s elevating a low rate . How long do you think I have...

I was diagnosed with CLL I’m 58 ..my WBC is 20 to date and was at 12 ..3 years ...

•6 years ago

Some ideas please

Hello again, I have transferred to the Marsden, I was told at my local hospital of my CLL I have received “copying of letters” but flummoxed 😶 don’t...

Hello again, I have transferred to the Marsden, I was told at my local hospital ...

•6 years ago

Post TKR

Hi All just to keep you all abreast of my condition. I had a TKR on October 16 2017. Surgery went well and knee is functioning as predicted. My problem is...

Hi All just to keep you all abreast of my condition. I had a TKR on October 16 ...

•6 years ago

Starting Venetoclax mono on Monday

I am an 84 year old male living in Montgomery County, MD. I have had CLL for 10 years. During this time I have been treated off and on with Imbruvica. When...

I am an 84 year old male living in Montgomery County, MD. I have had CLL for 10...

•6 years ago

Patient Power Videos about CLL by Dr. Lamanna and Dr. LeClair

Patient Power has several interesting videos with this issue of week in review:...

Patient Power has several interesting videos with this issue of week in review:....

Volunteer•6 years ago

CRISPR/Cas9 gene editing scissors are less accurate than we thought, but there are fixes

"CRISPR gene editing technology is revolutionising medicine and biology. This technique allows scientists to edit DNA with more precision and greater ease...

"CRISPR gene editing technology is revolutionising medicine and biology. This te...

Administrator•6 years ago

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Fish test for 13q

Is it better to have the result of Fish test for 13q to be deleted or not deleted ? Thank you

Is it better to have the result of Fish test for 13q to be deleted or not delete...

•6 years ago

My father has CCL

My father was diagnosed with CCL 4 Years ago and has been having regular blood test to moniter it. Unfortunately his last blood test came back with his white...

My father was diagnosed with CCL 4 Years ago and has been having regular blood t...

•6 years ago

Putting Your Team together- How many Specialists do you need and what to do if it's not possible to see Even One

I have talked and written extensively on the importance of having a CLL specialist on your team. We have even set up for, sadly only for USA patients at this...

I have talked and written extensively on the importance of having a CLL speciali...

CLL CURE Hero•6 years ago

Dr. Wiestner on Resistance and Stan Kurtz's amazing swim for leukemia.

Hi This week I just posted my interview from ASH with Dr. Adrian Wiestner from the NIH concerning ibrutinib and venetoclax resistance. Dr. Wiestner thinks...

Hi This week I just posted my interview from ASH with Dr. Adrian Wiestner from t...

CLL CURE Hero•6 years ago

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Not yet diagnosed

I had a physical in May 2018 and wbc was 29.1....5 weeks later wbc is 42.6. Platelets normal...rbc normal....dr feels its cll. I see a hematologist on Aug...

I had a physical in May 2018 and wbc was 29.1....5 weeks later wbc is 42.6. Pla...

•6 years ago

Cll tiredness

Hello is glenn here do people with cll get tired very easy like falling alseep while typing

Hello is glenn here do people with cll get tired very easy like falling alseep w...

•6 years ago

Cll leaukiuma

Hello there had flu 3 weekks ago i also have cll my whit coutnt was 8,500 and now over 23,000 tired glands in neck enlarged and feel I'll in stomach feels...

Hello there had flu 3 weekks ago i also have cll my whit coutnt was 8,500 and n...

•6 years ago

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