Posts - CLL Support | HealthUnlocked

Founder Admin•11 years ago

Why the chronically ill are those who need online services the most. Yes our disease is CHRONIC Lymphocytic Leukaemia, not the ACUTE Lymphocytic Leukaemia and...

Why the chronically ill are those who need online services the most.

Why the chronically ill are those who need online services the most. Yes our di...

Kwenda

•11 years ago

37 Replies

Have any cll patients had any abdominal discomfort while on w and w?

Was diagnosed around 8 years ago,last hospital visit had a WBC of around 80,platelets were around 100 mark,was wondering if enlarged spleen was causing this?

Was diagnosed around 8 years ago,last hospital visit had a WBC of around 80,plat...

Crawley

•11 years ago

7 Replies

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Further good reasons to exercise

Previously, we've discussed on several occasions the benefit of exercise in improving our quality of life while living with CLL. Recently I came across these...

Previously, we've discussed on several occasions the benefit of exercise in impr...

Andrew Schorr has posted this request on the CLL ACOR List for questions to present to CLL experts he plans to interview at this year's ASH meeting:...

Administrator•11 years ago

8 Replies

Your opportunity to suggest questions for Patient Power ASH 2013 Interviews

Andrew Schorr has posted this request on the CLL ACOR List for questions to pres...

Hi friends, On my blog, http://bkoffman.blogspot.com , I just posted an interview on new prognostic factors from iwCLL 2013 with the always helpful and...

Administrator•11 years ago

6 Replies

iwCLL 2013: Pharmacogenetics and Dr. Jeff Sharman Discusses New Prognostic Factors

Hi friends, On my blog, http://bkoffman.blogspot.com , I just posted an intervi...

bkoffman

CLL CURE Hero•11 years ago

The high profile loss of millions of on-line account records by companies that should know better shows no signs of abating, with Adobe recently in the news...

What happens after a data breach?

The high profile loss of millions of on-line account records by companies that s...

Administrator•11 years ago

"The CLLSA has been approached by Lymphoma Association to take part in a discussion with Triducive, a healthcare management consultancy, that has been...

A focus group requires UK patients who have had CLL for some time and have experienced at least one relapse.

"The CLLSA has been approached by Lymphoma Association to take part in a discuss...

Founder Admin•11 years ago

From the cancer network, home of the Oncology Journal Recently published six page overview of Chronic Lymphocytic Leukaemia and Hairy-Cell Leukaemia...

Interesting recently published overview of Chronic Lymphocytic Leukaemia and Hairy-Cell Leukaemia

From the cancer network, home of the Oncology Journal Recently published six ...

In his latest blog, Dr Sharman lists the ASH2013 presentations that he will be a part of this year. Seven of the nine listed concern SLL/CLL and we've already...

Founder Admin•11 years ago

15 Replies

ASH 2013 - Dr Sharman's abstracts

In his latest blog, Dr Sharman lists the ASH2013 presentations that he will be a...

Administrator•11 years ago

Are you a good patient? As a person already reading these pages is it only a matter of time before you notice signs of some medical condition in yourself.?...

ARE YOU A ' GOOD PATIENT '.?

Are you a good patient? As a person already reading these pages is it only a ma...

Kwenda

•11 years ago

13 Replies

How to improve A&E - NHS is seeking your input! (UK Residents Only - though international ideas welcome via replies to this post)

I've received a couple of requests from Matt Jameson Evans, the Chief Medical Officer and founding partner of HealthUnlocked for OUR ideas on how to...

I've received a couple of requests from Matt Jameson Evans, the Chief Medical Of...

Hello, A few people have kindly messaged or posted to ask how things are going with the FCR, so I thought I'd do a general post in response. Well - I'm on...

Administrator•11 years ago

4 Replies

Has anyone had experience with cyclosporin A? My husband has pure red cell aplasia along w/cll & fcr is being suspended for cyclosporin.

LAinNYC

•11 years ago

6 Replies

FCR Round One Down - 5 to go....

Hello, A few people have kindly messaged or posted to ask how things are going ...

jibs60

•11 years ago

23 Replies

I am taking PARMID XL a calcium channel blocker for raised blood pressure. It's made it worse. Is it because I have stage 1 CLL.

corgi

•11 years ago

In this short video taken at iwCLL Collogne Germany, Andrew Schorr interviews Dr Hillmen: "As a full slate of new treatments for CLL show promise, one...

Dr Peter Hillmen of Leeds, UK discusses the place for Idelalisib in CLL treatment (Patient Power Video)

In this short video taken at iwCLL Collogne Germany, Andrew Schorr interviews Dr...

This article by a nutritionist in "The Conversation", reports on the evidence that some foods have a sufficiently high risk of causing cancer that they should...

Administrator•11 years ago

6 Replies

Why some foods should carry a cancer warning

This article by a nutritionist in "The Conversation", reports on the evidence th...

GNU Image Manipulation Program (GIMP) is a powerful Open Source application that is available for Windows, Apple and Linux. While not as user friendly as...

Administrator•11 years ago

7 Replies

Using GIMP to edit and scale images - Available for Apple, Linux and Microsoft

GNU Image Manipulation Program (GIMP) is a powerful Open Source application that...

Administrator•11 years ago

Not that Chris/CLLCanada needs any introduction to anyone that has visited our community more than once, but here's Andrew Schorr interviewing Chris at the...

Introducing Chris Dwyer (Patient Power Video)

Not that Chris/CLLCanada needs any introduction to anyone that has visited our c...

I attribute it to the fatigue that is a side effect. After speaking to a retired MD friend of mine he advised me to write to everyone to see if this is the...

Administrator•11 years ago

12 Replies

6 weeks on Ibrutinib and I am having slight periodic chest pains and shortness of breath .... many time a day...

I attribute it to the fatigue that is a side effect. After speaking to a reti...

fish61

•11 years ago

12 Replies

Can I do anything to stave off persistent winter colds?

I was diagnosed in early stages two years ago. So far I have had no symptoms and I have 6 monthly blood checks and a telephone discussion with a CLL nurse....

I was diagnosed in early stages two years ago. So far I have had no symptoms an...

is-sul

•11 years ago

24 Replies

Micro-RNA in CLL and Why it Matters (Part 2)

On my blog ( http://bkoffman.blogspot.com ), in the second part of the interview from iwCLL 2013, Dr. Calin discusses why we should think about micro-RNA as...

On my blog ( http://bkoffman.blogspot.com ), in the second part of the interview...

bkoffman

CLL CURE Hero•11 years ago

In addition to the enlarged nodes with SLL/CLL B-cell my cat scan shows chronic sinusitis. ENT said no hurry, but I read yesterday that it's a major infection...

Has chronic sinusitis affected treatment or outcome?

In addition to the enlarged nodes with SLL/CLL B-cell my cat scan shows chronic ...

banrambo

•11 years ago

1 Reply

“A tale of one city and a small town boy”

Penarth Pier - Cardiff Professor Chris Pepper - Post doc training and the disease that changed my life Video -and slide show -...

Penarth Pier - Cardiff Professor Chris Pepper - Post doc training and the dise...

Seems confusing ... SLL or CLL? Watch and wait a lot longer, or hit it while my health is probably at its best for now?

Founder Admin•11 years ago

5 Replies

On FISH after Dx of SLL my trisomy 12 was 70%. Comments? Advice? Prognosis? Treatment?

Seems confusing ... SLL or CLL? Watch and wait a lot longer, or hit it while my...

banrambo

•11 years ago

7 Replies

Positive News for Elderly CLL Patients - Dr. Valentin Goede from the University of Cologne interviewed by Patient Power

"Not long ago, younger patients received the most aggressive CLL treatment, which gave them the greatest chance for long-term disease control, and elderly...

"Not long ago, younger patients received the most aggressive CLL treatment, whic...

Administrator•11 years ago

Recently we've had discussions on site privacy as well as a poll on how some of us consider ourselves to have been unfairly treated due to our CLL diagnosis....

Privacy in today's networked world - Mikko Hyppönen

Recently we've had discussions on site privacy as well as a poll on how some of ...

Administrator•11 years ago

Andrew Schorr interviews Dr John Gribben of London's Barts Cancer Institute on the promise of drugs for PD1 and PDL1 that could train the immune system to kill...

Could Existing Immunotherapy Drugs Also Fight CLL? (Patient Power video with Dr John Gribben)

Andrew Schorr interviews Dr John Gribben of London's Barts Cancer Institute on t...

Administrator•11 years ago

I was feeling really tired and like I had the flu. Kept going the doctors to be told I had a virus. When I showed them a lump on my neck they gave me a blood...

Recently Diagnosed

I was feeling really tired and like I had the flu. Kept going the doctors to be ...

softgirl1

•11 years ago

13 Replies

FCR versus BR in frontline CLL - Dr Sharman's comments on the upcoming German CLL10 ASH paper

Dr Sharman says in his latest blog "The abstract I have been most eager to review in this years ASH meeting details the results of the German CLL10 study in...

Dr Sharman says in his latest blog "The abstract I have been most eager to revie...