Posts - CLL Support | HealthUnlocked

CLL Support

23,137 members • 39,744 posts

All posts for March 2020

Looking for CLL Dr.

Can any one recommend a CLL specialist in michigan that is not listed here?Would appreciate any help. Thanks Maria

Can any one recommend a CLL specialist in michigan that is not listed here?Would...

meemsdream

•5 years ago

2 Replies

Specialist recommendations

Can anyone recommend a CLL specialist in South Wales please

333butterfly

•5 years ago

8 Replies

Acalabrutinib three weeks appointment

I don’t know where my previous post went. Very likely, I did something wrong, so here it goes. The only side effect was bad headache for one week after which...

I don’t know where my previous post went. Very likely, I did something wrong, ...

studebaker

•5 years ago

16 Replies

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Diet

Hi. I was wondering if anyone has any good advice about gaining weight. I’ve always been thin and never had much of an appetite I’m 5’5 110. I’ve lost...

Hi. I was wondering if anyone has any good advice about gaining weight. I’ve ...

Madison1995

•5 years ago

57 Replies

WALDENSTORM'S IBRUTINIB AND FATIGUE

I have waldenstroms, chemo never helped. had 4 tries in 4 years... Now am on Ibrutinib and I am feeling much better. Been taking for 4 months. Had bad...

I have waldenstroms, chemo never helped. had 4 tries in 4 years... Now am on Ibr...

qgar

•5 years ago

6 Replies

Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.

The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no Rituximab in...

The CLL4 study compared conventional chlorambucil therapy versus fludarabine - a...

Jm954

Administrator•5 years ago

5 Replies

implantes dentales en CLL

implantes dentales en CLL con tratamiento de ibrutinib

JJSI

•5 years ago

3 Replies

Ibrutinib dosages

Having had CLL for some 7 years and 3 bouts of chemo my marrow is again infiltrated and needs treatment. My oncologist has said he is reluctant to give more...

Having had CLL for some 7 years and 3 bouts of chemo my marrow is again infiltra...

plett1234

•5 years ago

3 Replies

What you do not know about tick borne diseases can kill you.

As the CEO/PRES. of a 501C3 organization dedicated to working with people afflicted with TBDs we now know the cancer can be one of the lesser known aspects of...

As the CEO/PRES. of a 501C3 organization dedicated to working with people affli...

Ixodes

•5 years ago

24 Replies

Yellow Fever vaccination

Hi there I am on CLL watch and wait and travelling in April with my daughter who has received the yellow fever vaccination. How long should I avoid contact...

Hi there I am on CLL watch and wait and travelling in April with my daughter who...

anapurna

•5 years ago

3 Replies

Zinc lozenges

This comment was quoted on another forum: "Stock up now with zinc lozenges. These lozenges have been proven to be effective in blocking coronavirus (and most...

This comment was quoted on another forum: "Stock up now with zinc lozenges. Thes...

RobertCLL

•5 years ago

9 Replies

A Comparison of between Covid-19, a Cold, the Flu, Hay Fever and Asthma plus other Coronavirus updates

Close comparison of the two viruses creates a worrisome picture of what could happen if COVID-19 becomes widespread in the United States, infectious disease...

Close comparison of the two viruses creates a worrisome picture of what could ha...

Jm954

Administrator•5 years ago

101 Replies

On "watch and wait", but started to suffer with eczema

I've been recently diagnosed with CLL and I am on "watch and wait". Although I'm not yet receiving any treatment, I have started to suffer badly with eczema -...

I've been recently diagnosed with CLL and I am on "watch and wait". Although I'm...

TonyBr

•5 years ago

19 Replies

Healthcare in Spain

I'm on W&W. I was planning to retire to Spain. Does anyone have experience of living with CLL in Spain? I lived there for 7 years so I have decent, not fluent,...

I'm on W&W. I was planning to retire to Spain. Does anyone have experience of li...

Alobs

•5 years ago

5 Replies

Acalabrutinib plus Obinutuzumab in Treatment-Naïve and Relapsed/Refractory CLL

Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory). Thirty-two percent of treatment-naïve and 8% of relapsed/refractory patients...

Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory)....

Jm954

Administrator•5 years ago

6 Replies

CLL and Coronavirus

I have CLL. What precautions should I take with the coronavirus apart from the obvious?

I have CLL. What precautions should I take with the coronavirus apart from the o...

hammyj

•5 years ago

17 Replies

Corona risk after successful treatment?

I am wondering about the state of the immune system after successful treatment for CLL. My husband's bone marrow was MRD-negative 6 months ago, all blood tests...

I am wondering about the state of the immune system after successful treatment f...

photohound

•5 years ago

2 Replies

Stages

What are the stages of CLL? Trying to find out about a Cstage diagnosis.

Stempy

•5 years ago

4 Replies

Traveling to New York on Monday for 2 weeks

Hi all traveling to New York next Monday for 2 weeks a little worried if I'm honest just in case this COVID-19 takes off and the cases suddenly start...

Hi all traveling to New York next Monday for 2 weeks a little worried if I'm hon...

stewie

•5 years ago

10 Replies

LOXO 305 and a Series of Videos from CURE Magazine

Hi, CLL Society worked with CURE magazine to provide panel members to discuss their CLL journey and the changing way CLL should be treated in this nice series...

Hi, CLL Society worked with CURE magazine to provide panel members to discuss th...

bkoffman

CLL CURE Hero•5 years ago

3 Replies

Dr Anthony Mato’s office # NY or NJ

Hi Everyone! I am lost in a perpetual round robin of prompts when calling to make an appointment with Dr Mato at Basking Ridge NJ. Help please. My CLL is at...

Hi Everyone! I am lost in a perpetual round robin of prompts when calling to ma...

db601

•5 years ago

4 Replies

Saltwater Irrigation Helps the Body Protect Itself from the Common Cold and Viruses

This study demonstrates that using saltwater irrigation helps the body fight colds and viruses....

This study demonstrates that using saltwater irrigation helps the body fight col...

Rhythmauthor1

•5 years ago

7 Replies

New member

Hello.I was diagnosed with CLL in 2017. No treatment needed until labs and scans suddenly went haywire in April 2019. Was started on Imbruvica at that time. It...

Hello.I was diagnosed with CLL in 2017. No treatment needed until labs and scans...

LinnyPooh

•5 years ago

30 Replies

CLL Specialist Recommendation

Hello All, I have been on Imbruvica for several months. However, I see a hematologist/oncologist. I would like to see a CLL Specialist. Any recommendations in...

Hello All, I have been on Imbruvica for several months. However, I see a hematol...

Wahoowa

•5 years ago

11 Replies

More Information regarding our relative risk with Corona Virus (2019-nCoV) - Why Coronaviruses Hit Older Adults Hardest

As cases of the novel coronavirus known as 2019-nCoV continue to rise worldwide. The respiratory illness, which can cause pneumonia and symptoms like fever,...

As cases of the novel coronavirus known as 2019-nCoV continue to rise worldwide....

Jm954

Administrator•5 years ago

40 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2020

Looking for CLL Dr.

Specialist recommendations

Acalabrutinib three weeks appointment

Diet

WALDENSTORM'S IBRUTINIB AND FATIGUE

Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.

implantes dentales en CLL

Ibrutinib dosages

What you do not know about tick borne diseases can kill you.

Yellow Fever vaccination

Zinc lozenges

A Comparison of between Covid-19, a Cold, the Flu, Hay Fever and Asthma plus other Coronavirus updates

On "watch and wait", but started to suffer with eczema

Healthcare in Spain

Acalabrutinib plus Obinutuzumab in Treatment-Naïve and Relapsed/Refractory CLL

CLL and Coronavirus

Corona risk after successful treatment?

Stages

Traveling to New York on Monday for 2 weeks

LOXO 305 and a Series of Videos from CURE Magazine

Dr Anthony Mato’s office # NY or NJ

Saltwater Irrigation Helps the Body Protect Itself from the Common Cold and Viruses

New member

CLL Specialist Recommendation

More Information regarding our relative risk with Corona Virus (2019-nCoV) - Why Coronaviruses Hit Older Adults Hardest

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