Posts - CLL Support | HealthUnlocked

CLL Support

22,515 members • 38,672 posts

All posts for December 2019

Episode 115: Cutting Edge Therapy: Cancer Cured After Years of Battling CLL | Brian Koffman

“After years of battling CLL, Dr. Brian Koffman underwent an experimental immunotherapy (CAR-T) that has now left him without a single trace of malignancy...

“After years of battling CLL, Dr. Brian Koffman underwent an experimental immuno...

bkoffman

CLL CURE Hero•4 years ago

33 Replies

CLL Secialist bear Boynton Beach FL?

Anyone know of a CLL Specialist near Boynton Beach FL? I was told U of Miami but I’d like to hear of first hand experience, thnx

Anyone know of a CLL Specialist near Boynton Beach FL? I was told U of Miami but...

2tas

•4 years ago

24 Replies

Results

My boyfriend went to see his oncologist at his yearly appointment he hasn't been well all year with lymph node coming and going they found a 1cm lymph node in...

My boyfriend went to see his oncologist at his yearly appointment he hasn't been...

Hidden

•4 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Chest pains both sides on ibrutinib

Is there anyone else who gets cramp_like sensations in legs but most often.both sides of chest. I would appreciate any advice or information.

Is there anyone else who gets cramp_like sensations in legs but most often.both ...

onu1tadi2

•4 years ago

6 Replies

Merry Christmas!

Just a little humor. Laughter is the best medicine!! I wish you all a Merry Christmas and pray that 2020 will bring you all good health and happy times!

Just a little humor. Laughter is the best medicine!! I wish you all a Merry Chri...

210savannah

•4 years ago

5 Replies

Imbruvica Bruising

As posted before, I have been on 240mg of Imbruvica for 10 weeks and most of the side effects are tolerable. However, lately I have been getting Bruises the...

As posted before, I have been on 240mg of Imbruvica for 10 weeks and most of the...

brooklyn7672

•4 years ago

5 Replies

CLL, Ibrutinib side effects clarified, antibiotic side effects

Levofloxacin, old age, etc. most likely contributed to the development of an aorta aneurysm, not Ibrutinib. Also, extreme watery eyes now responding to...

Levofloxacin, old age, etc. most likely contributed to the development of an aor...

Yuck

•4 years ago

12 Replies

trial to know if venetoclex and ibrutinib together can overcome ibrutinib resistance

A trial is going to start to see if adding venetoclex to ibrutinib resistant patients can create a synergisic affect thats beneficial to both drugs. I've seen...

A trial is going to start to see if adding venetoclex to ibrutinib resistant pat...

Hidden

•4 years ago

4 Replies

classes of drugs for cll

Please tell me if i'm wrong or need more info. I listed these because they seem different enough from each other with how they work. I used one example of...

Please tell me if i'm wrong or need more info. I listed these because they seem ...

Hidden

•4 years ago

5 Replies

Who's on Imbruvica ? What's side effects ?

I'm Chinh 70 , found Cll in 2019 Sep., On Imbruvica from Nov., Nothing happened in 28days, 29+ 30th - fever 40.2 C mainly by nights , dayly - easier- 38C......

I'm Chinh 70 , found Cll in 2019 Sep., On Imbruvica from Nov., Nothing happened...

Chinhdo

•4 years ago

8 Replies

Constipation

Hi All, Experience constipation with enormous Belly pain after starting IB beginning of December 2019. Any suggestions, please? Appreciate ...... Thank you...

Hi All, Experience constipation with enormous Belly pain after starting IB begin...

Traudel

•4 years ago

12 Replies

CLL/SLL possible prostate cancer secondary

Friends, My husband’s PSA doubles in a few months time. His level is 4.5. He is on 420 mg of Imbrutinib daily. He will have a biopsy after the Holidays in...

Friends, My husband’s PSA doubles in a few months time. His level is 4.5. He is...

Zappymom12

•4 years ago

18 Replies

About to start treatment on Ibrutinib.

I was diagnosed with CLL in May 2017 (88 years old now) and have been on Watch and Wait since then. Things changed dramatically this past week when I had my...

I was diagnosed with CLL in May 2017 (88 years old now) and have been on Watch a...

Marber

•4 years ago

17 Replies

More ASCO abstracts and our quarterly Newsletter

Dear Friends, New this week! I am continuing my countdown of the top 10 ASCO abstracts related to CLL. Here are numbers 6 and 5. The combination of...

Dear Friends, New this week! I am continuing my countdown of the top 10 ASCO abs...

bkoffman

CLL CURE Hero•4 years ago

2 Replies

Ibruitinib capsule changed !

I have been on Ibruitinib for the past 16 months. A good experience once the side effects settled. Recently ( have had this several times since being diagnosed...

I have been on Ibruitinib for the past 16 months. A good experience once the sid...

wellingtonboot23

•4 years ago

3 Replies

Bruising

So I have heard that ibrutinib should be called ibruisinitib ! I am not on any medication at all! I am in the ‘wait and watch’ stage but keep getting these...

So I have heard that ibrutinib should be called ibruisinitib ! I am not on any m...

Kiwidi

•4 years ago

13 Replies

New diagnosis in a parent

My mum has just been diagnosed with CLL. Her lymphocyte count is currently at 5.7 and she is otherwise well. We are waiting to see a Haematologist to determine...

My mum has just been diagnosed with CLL. Her lymphocyte count is currently at 5....

Elsie89

•4 years ago

11 Replies

Coming off Ibrutinib while awaiting next treatment.

My partner has been told by his Oncologist to stop taking Ibrutinib, as it is no longer effective. He has been off it for the past 3 days and today...

My partner has been told by his Oncologist to stop taking Ibrutinib, as it is no...

pollyg2016

•4 years ago

13 Replies

ALC COUNT?

I'm really new and very confused. I just had a CBC done in the USA and i am from Canada. When you to a blood test in Canada the always tell you your ALC. The...

I'm really new and very confused. I just had a CBC done in the USA and i am from...

laldoroty

•4 years ago

12 Replies

Swollen face

Woke up this morning with a swollen face mainly below my right earlobe,it is slightly tender to the touch. Anybody got any idea what it might be? I had chemo...

Woke up this morning with a swollen face mainly below my right earlobe,it is sli...

Boardman

•4 years ago

6 Replies

Is Ibrutunib available in Canada?

Dear all as a permanent resident in Canada is Ibriutunib available in Canada and is it given by Government hospitals and clinics? Is the medicine covered by...

Dear all as a permanent resident in Canada is Ibriutunib available in Canada and...

Nour80Leen2011

•4 years ago

25 Replies

Merry Christmas

Merry Christmas and god bless to you all hope 2020 be good to you all

Hidden

•4 years ago

7 Replies

So much new CLL material to read

Welcome to the Fourth 2019 Issue of The CLL Society Tribune! So much to read there including amazing patient stories and my wife's Cajun Gingerbread recipe:...

Welcome to the Fourth 2019 Issue of The CLL Society Tribune! So much to read the...

bkoffman

CLL CURE Hero•4 years ago

2 Replies

This Inexpensive Action Lowers Hospital Infections And Protects Against Flu Season

As we are now well into the flu & cold season, this article seems appropriate for those of us with more (or less) compromised immune systems. (And, yes, I...

As we are now well into the flu & cold season, this article seems appropriate fo...

cujoe

•4 years ago

12 Replies

Imbruvica and anemia

I went for my blood check last week and unexpectedly my hemoglobin and red blood cells have dropped significantly until I'm now anemic. I've been on imbruvica...

I went for my blood check last week and unexpectedly my hemoglobin and red blood...

Jamstev71

•4 years ago

4 Replies

Using your cell phone to check for aFib

I am still in Watch & Wait (Worry), and do not have a diagnosis of afib. I have been watching my heart rate and other parameters, such as rMSSD and HRV using...

I am still in Watch & Wait (Worry), and do not have a diagnosis of afib. I have ...

SeymourB

•4 years ago

Be the first to reply

Ashwagandha?

Hi Folks Wonder if anyone here tried this Indian ginseng? I’m keen to take it for reducing anxieties and improve quality of sleep. It may cause increase in...

Hi Folks Wonder if anyone here tried this Indian ginseng? I’m keen to take it...

Seok

•4 years ago

23 Replies

CLL Horizons 2019 - Edinburgh 19-21 September - video of speaker sessions

Hi all we are now pleased to start releasing videos from CLL Horizons, *PRESS RELEASE*13th December 2019 CLL Advocates Network would like to announce the...

Hi all we are now pleased to start releasing videos from CLL Horizons, *PRESS R...

HAIRBEAR_UK

Founder Admin•4 years ago

6 Replies

Is GTN spray safe to use for people with Atrial Fibrillation?

My father suffers with AF and although I consider him fit for an 81 year old, more recently he has experienced increased periods of breathlessness (even when...

My father suffers with AF and although I consider him fit for an 81 year old, mo...

Hidden

•4 years ago

5 Replies

CLL SOCIETY'S ASH POSTER on our Free second opinion program plus two important papers from ASCO

Hi, Just back from a frenetic and fantastic ASH, but still have news to share from ASCO. But first here is a link to our poster on our free second opinion...

Hi, Just back from a frenetic and fantastic ASH, but still have news to share fr...

bkoffman

CLL CURE Hero•4 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2019

Episode 115: Cutting Edge Therapy: Cancer Cured After Years of Battling CLL | Brian Koffman

CLL Secialist bear Boynton Beach FL?

Results

Chest pains both sides on ibrutinib

Merry Christmas!

Imbruvica Bruising

CLL, Ibrutinib side effects clarified, antibiotic side effects

trial to know if venetoclex and ibrutinib together can overcome ibrutinib resistance

classes of drugs for cll

Who's on Imbruvica ? What's side effects ?

Constipation

CLL/SLL possible prostate cancer secondary

About to start treatment on Ibrutinib.

More ASCO abstracts and our quarterly Newsletter

Ibruitinib capsule changed !

Bruising

New diagnosis in a parent

Coming off Ibrutinib while awaiting next treatment.

ALC COUNT?

Swollen face

Is Ibrutunib available in Canada?

Merry Christmas

So much new CLL material to read

This Inexpensive Action Lowers Hospital Infections And Protects Against Flu Season

Imbruvica and anemia

Using your cell phone to check for aFib

Ashwagandha?

CLL Horizons 2019 - Edinburgh 19-21 September - video of speaker sessions

Is GTN spray safe to use for people with Atrial Fibrillation?

CLL SOCIETY'S ASH POSTER on our Free second opinion program plus two important papers from ASCO

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive