CLL Horizons 2019 - Edinburgh 19-21 September - video of speaker sessions

[HAIRBEAR_UK]

Hi all we are now pleased to start releasing videos from CLL Horizons,

*PRESS RELEASE*13th December 2019

CLL Advocates Network would like to announce the initial release of videos from the CLL HORIZONS 2019 Conference held in Edinburgh, Scotland, 19-21 September 2019. This event was held during the international workshop on chronic lymphocytic leukaemia (CLL), to share latest clinical advances in medicine and care to inform advocacy initiatives.

The 3-day CLL Horizons Conference brought together global advocates, patient groups and healthcare professionals supporting people with a diagnosis of chronic lymphocytic leukaemia. The event enabled the sharing of real-life experience of living with a diagnosis of CLL and how to support patients.

CLL Horizons 2019, Edinburgh, Foundation Learning, these early sessions prepare advocates with understanding of basic CLL biology, patient challenges and current issues to prepare them for more involved discussion, clinical, scientific and advocacy sessions during the conference: youtube.com/playlist?list=P...

•CLL 101 - The Basics, PART 1 - Lorna Warwick, CEO Lymphoma Coalition. youtu.be/n3blAGaepVQ(Not working as expected?)

•CLL 101 - The Basics. PART 2, Michael Rynne - CLL Ireland.

youtu.be/kliDOz6lwBM(Not working as expected?)

•CLL 101 - The Basics. PART 3, Dr Brian Koffman - CLL Society.

youtu.be/sFUFygnPGWg(Not working as expected?)

•The Changing Therapeutic Landscape - Lorna Warwick, CEO Lymphoma Coalition.

youtu.be/W7f7JMNMmoQ(Not working as expected?)

CLL Horizons 2019, Edinburgh - Organisational sustainability, presentations set the scene of organisational requirements and start up and established patient group talks frame discussion. How do we keep our successful organisations functioning long-term? What are the priorities? How do we best support our communities: youtube.com/playlist?list=P...

•Sustainable Organisations - Lorna Warwick, CEO Lymphoma Coalition.

youtu.be/VptGNc6YLDM(Not working as expected?)

•Getting Started - Challenges and Lessons - Dr Neil Graham, founder of CLL Advocates New Zealand

youtu.be/6IsGYiNz4Jc(Not working as expected?)

•An established patient group's priorities - Lise-lott Eriksson, Chair, Blodcancerförbundet

youtu.be/PLVyJWCYAxc(Not working as expected?)

CLL Horizons 2019, Edinburgh - UK CLL Forum & CLL Advocates Network shared plenary session . This session sees patient advocates and clinical experts exploring together the current state of the art in CLL treatment and care. How are different countries achieving optimal therapy (or are they), what are the gaps, knowns and unknowns? How can we work together to improve this? youtube.com/playlist?list=P...

•UK perspective - Optimal Therapy for CLL in 2019 – and can we achieve this in the UK? - Prof Anna Schuh (UK), University of Oxford

youtu.be/c0DqxHb8HWQ(Not working as expected?)

•CLL: What Do We Still Need to Learn? Prof Chris Fegan (UK) University Hospital of Wales

youtu.be/B_kzUM-SHQU(Not working as expected?)

•Optimal Therapy in CLL- International perspective and panel discussion - Prof Paolo Ghia (Italy) Università Vita-Salute, San Raffaele, Milano

youtu.be/QxP-f0FypZ8(Not working as expected?)

Please share and disseminate through you communication channels.

For further information contact [e-mail]

[Murzik]

Hello Hairbear!!!

Very informative and nice paced videos. Dr Ghia, Dr.Fegan and Dr.Schuh presentations are a must see. Thank you.

[Fran57]

Hi. Great information- as always. This place is amazing. We learn so much more here because doctors just don’t have the time.

This was particularly helpful because my husband is possibly going to have a second lot of treatment next year and I can make notes and know exactly what to ask.

Thanks very much.

Fran 😉

[MsLockYourPosts Passed Volunteer]

Thanks for posting. Is the tribute to Chris Dwyer going to be posted? I was told that it would be.

[HAIRBEAR_UK Founder Admin in reply to MsLockYourPosts]

There are still quite a list of talks to be released, we will review and publish these once uploaded. The talk and tribute to Chris will be shared but most likely as a slide show and transcript

Nick

[MsLockYourPosts Passed Volunteer]

Thanks! I want to be sure that his daughter sees it.

[Wroxham]

Many thanks Nick. Slowly working my way through.

Everyone please take the time to listen to Prof. Chris Fegan discussing 'Unknown Unknowns' it is excellent and in places funny. A brilliant speaker.

Sue