Constipation

[Traudel]

Hi All,

Experience constipation with enormous Belly pain after starting IB beginning of December 2019.

Any suggestions, please?

Appreciate ...... Thank you ....

[Shepherd777]

How much water are you drinking. The Imbruvica literature recommends 8 glasses a day or 64 ounces.

[Traudel in reply to Shepherd777]

Thank you, yes minimum 6 glasses of liquid, tee, orange juice and water ....

[fell in reply to Traudel]

Hi Imhimmel, You should drink at least 2 litres of water per day while taking Ibrutinib.

If you are still experiencing constipation, try miralax.

Best,

Fell

[Traudel in reply to fell]

Thank you so much, appreciate, got Rostral Lax, assisted, enjoy your Sunday ......

[Newny]

Hello, I also experienced constipation while on Imbruvica. Along with muscle spasms and other side effects. The constipation was quite uncomfortable and although I did use Mirolax, it didn't fully relieve the issue. Frankly, after about 10 months or so, I opted to stop the drug and decided to go with chemotherapy when I needed to, which I did for 6 months a few years later. Perhaps others may not see the reasoning but I figured 6 months of chemotherapy with another 5-6 months of getting back to normal was better than every day, for the rest of my life, feeling as I did with Imbruvica. Not to mention the cost, which for me was too much each month, ie, appx $3000. I understand there are programs to assist with the cost, however those are to be revisited yearly to ensure coverage support. Again, I wasn't sure about trying to get assistance every year forever. ..

[Traudel in reply to Newny]

Hello, and Thank you for your information.

Was your CLL Dr. in agreement with you to be able to change to Chemo?

How were your side affects with Chemo?

Appreciate your information ....

[AnneHill in reply to Traudel]

Hi, I suffered with constipation before starting Ibrutinib. After starting Ibrutinib I had the opposite problem. I take cotrimoxazole 3 times a week and think that is giving me the diarrhea.

If you eat a high fibre breakfast cereal, add chopped prunes, dried figs or walnuts in small amounts it will help. I put small amounts of high fibre fruit and nuts in muesli. It did help. Drinking water as well as other drinks makes a big difference. I hope things improve, Anne uk

[Traudel in reply to AnneHill]

Hello AnneHill,

Very much appreciate.

How long are you an IB please?

Any other reactions?

Felt very good the first 5 days, now I feel kind of like coming down with the Flu.

Thank you for any advice.

My very Best to You ........

PS

I like to change my name "Imhimmel"

would you know how to do this?

Thank you again .....

[AnneHill in reply to Traudel]

Hi, its just 6 months since I started Ibrutinib. I had problems with joint pain and muscle pain within a couple of days. It was gout to begin with and first 1 hand was like a claw followed by the other. I had days when I darent drive because of pain in my knees or ankles and feet. After the first month it improved but I still get roving pain. My wrists hurt at the moment but not agony.

I already had arthritis and degenerative discs which may make a difference.

I had to stop the anti inflammatory meds and change another medication before I could begin treatment. These drugs might have caused the constipation and now Im the opposite.

My blood results have been really good. The gout was probably caused by the huge drop in white cells the first month. Many people's blood count goes up to begin with. 2 weeks ago I was told that I was anaemic and they were testing my blood for saturation of iron.

Im struggling to eat a main meal. Im full quickly although Im ok with small meals during the day. Consultant is sending test results to my GP and I imagine I will need tests to make sure I havent got internal bleeding.

Although I have fatigue, I find I have better days than before I started treatment. I hope you continue well. Some people have few side effects.

I dont know how to change a name but the admin will be able to advise if you ask. They may read this. Anne uk

[Traudel in reply to AnneHill]

THANK YOU for all your good information.

I know, we all try our Best,

Stay well, keep well,

Happy Holidays ......

[Newdawn Administrator in reply to Traudel]

To change your username (which you can only do twice), go to your avatar picture at the very top right corner of the page and click on it for the menu. The drop down menu will give you settings. Click settings and it has the name change facility on there. Its fairly straightforward.

Newdawn

[Traudel in reply to Newdawn]

THANK YOU SO MUCH, WILL TRY AGAIN

APPRECIATE AND ALL THE BEST TO YOU ......