Posts - CLL Support | HealthUnlocked

CLL Support

22,623 members • 38,852 posts

All posts for May 2019

FCR or BR?

Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his lymphs are very big so he needs to be treated. His IGHV is unmutated and tp53...

Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his ...

TOFK

•5 years ago

15 Replies

CLL and worsening allergy but poor immunity

Came across a great article on the relationship between inflammation, allergies and a poor immunity in CLL....

Came across a great article on the relationship between inflammation, allergies ...

AdrianUK

•5 years ago

17 Replies

UK clinical research gateway seeks feedback on updated website

The National Institute for Health Research has produced a new website to provide information on, and links to medical research trials. The site has been...

The National Institute for Health Research has produced a new website to provide...

scarletnoir

•5 years ago

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BMB

Been thinking what he said and I think he said he was struggling to get a sample...

welshlady52

•5 years ago

7 Replies

Imbruvica replacment for Vilaron ( teva )

Hello Anyone has references about Vilaron ( ibrutinib manufactered Teva lab ) ?. My insurance will replace Imbruvica , which i have been for 7 months with...

Hello Anyone has references about Vilaron ( ibrutinib manufactered Teva lab ) ?....

antonb

•5 years ago

6 Replies

Lab Visit

Hi all, For those of you who remember me say I was going to visit the Lab! I went this week - what a fantastic encouraging view I had on the research being...

Hi all, For those of you who remember me say I was going to visit the Lab! I wen...

retired46

•5 years ago

16 Replies

Bone marrow biopsy

Had bone marrow biopsy earlier....he struggled to get the needle in...I'm so scared now that it is packed with cancer cells. Anyone had any experience of this...

Had bone marrow biopsy earlier....he struggled to get the needle in...I'm so sca...

welshlady52

•5 years ago

67 Replies

Messages lost

Hi my message delivery to my e mail service has gone again. Not sure how to get it back. I had to call to the apple store last time. Any advice pleas? Kind...

Hi my message delivery to my e mail service has gone again. Not sure how to get ...

annmcgowan

•5 years ago

1 Reply

Question on Kidney Stones

I have kidney stones and was wondering if Imbruvica has anything to do with kidney stones? Have been on Imbruvicia for 3 years. Thanks

I have kidney stones and was wondering if Imbruvica has anything to do with kidn...

Hatbridges

•5 years ago

1 Reply

Anyone see this?

https://topicalthunder.com/2019/05/15/new-simple-injection-to-cure-cancer-getting-staggering-results/

https://topicalthunder.com/2019/05/15/new-simple-injection-to-cure-cancer-gettin...

CCLandwell

•5 years ago

10 Replies

FDA APPROVES VENETOCLAX/OBINUTUZUMAB

For treatment-naive CLL patients. This is a fixed duration treatment!!! Great news!!

For treatment-naive CLL patients. This is a fixed duration treatment!!! Great ne...

Motoli

•5 years ago

9 Replies

Injected conjunctiva (Red eyes) anyone had this before?

My eyes constantly get red. The white part or the sclera is red. Both eyes. I read that “injected conjunctiva” can be seen in certain lymphomas....a few rare...

My eyes constantly get red. The white part or the sclera is red. Both eyes. I re...

LovecuresCLL

•5 years ago

9 Replies

Rituxin and HRT (Hormone Replacement Therapy)

I have a question regarding a possible medication side effect. This is an odd one (and also embarrassing), but I have spoken with a pharmacist, my local...

I have a question regarding a possible medication side effect. This is an odd o...

Lisa-1959

•5 years ago

10 Replies

V + O frontline approved by FDA

Thank you to all of those participating in clinical trials!...

avzuclav

•5 years ago

15 Replies

Too many emails

Hi! I just signed on a couple days ago and received a lot of warm welcomes. But is there anyway for me to not receive so many emails? I'd like to log on and...

Hi! I just signed on a couple days ago and received a lot of warm welcomes. But ...

mk2045

•5 years ago

2 Replies

Bilateral inguinal pain without lymphadenopathy

I have CLL with my main symptom being severe fatigue for which I will receive treatment soon. I have also had bilateral inguinal pain - infrequently at first -...

I have CLL with my main symptom being severe fatigue for which I will receive tr...

CLLmoxie

•5 years ago

14 Replies

These 5 foods are claimed to improve our health. But the amount we’d need to consume to benefit is… a lot

'Food gives us the nutrients we need to survive, and we know a balanced diet contributes to good health. Beyond this, many people seek out different...

'Food gives us the nutrients we need to survive, and we know a balanced diet con...

AussieNeil

Administrator•5 years ago

9 Replies

BGB-3111

I have been taking bgb-3111 for 6 weeks. Before the administration of this drug I had white blood cells 15. I had 114 blood plates. I also had enlarged lymph...

I have been taking bgb-3111 for 6 weeks. Before the administration of this drug ...

BART4

•5 years ago

5 Replies

CLL with Abdominal discomfort.

I’ve had abdo discomfort for nearly 2 months now. Diagnosed with CLL 2008. No treatment. WCC around 40,000 to 56000. Lymph s around 36000. They do fluctuate....

I’ve had abdo discomfort for nearly 2 months now. Diagnosed with CLL 2008. No tr...

Indie1234

•5 years ago

10 Replies

Is Pneumovax 23 a live vaccine?

I had Pneumovax 23 first dose approx 6 years ago here in Aus with no real problems. I have been planning to get the second dose now. However I have been...

I had Pneumovax 23 first dose approx 6 years ago here in Aus with no real proble...

danter

•5 years ago

5 Replies

LI CLL SOC. Support Group May Meeting

Hi Everyone - Just an opportunity to invite all to attend our Long Island CLL Society Support Group Meeting on May 16th - we are having a very special guest...

Hi Everyone - Just an opportunity to invite all to attend our Long Island CLL So...

SusanBo

•5 years ago

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Latest acalabrutinib results and from ASH 2018: Dr. Mato on a new Triple Combination of Novel Drugs for CLL and Richter’s Transformation

Hi, Things don’t slow down much in the CLL world. And that is a good thing. Just makes for a lot of writing for me to keep up. In the last week we posted about...

Hi, Things don’t slow down much in the CLL world. And that is a good thing. Just...

bkoffman

CLL CURE Hero•5 years ago

4 Replies

Bendustamine - Rituximab poor reaction

Has anyone able to advise on a poor reaction to B + R treatment. As previously posted ,I began treatment on 19th March .AlC at 84 ,began well with Alc...

Has anyone able to advise on a poor reaction to B + R treatment. As previously...

Joffre1

•5 years ago

22 Replies

Shringrix vaccine

My oncologist and internist have reminded me with each visit to get the needed immunizations. I have had one pneumonia vaccine and will soon be getting...

My oncologist and internist have reminded me with each visit to get the needed i...

PSP52

•5 years ago

15 Replies

Feet Falling Asleep

Hi, I’m 52 year old female, was diagnosed with CLL about 2 years ago and have been on 420 units daily of Ibrutinib for almost a year. I have experienced some...

Hi, I’m 52 year old female, was diagnosed with CLL about 2 years ago and have be...

SunnyAZ

•5 years ago

3 Replies

CLL treatment options

I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR chemotherapy because of decrease in Hb. One cycle given. FISH shows...

I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors s...

drvksethi

•5 years ago

17 Replies

tpll

any tpll on this site

jdh1970

•5 years ago

2 Replies

Remembering Teresa Murano Tonight

No matter your time zone, join others tonight at 7:00 p.m. (or tomorrow night if 7:00 has passed) to honor friend, Lola, in a loving and grand toast. ~Yuck

No matter your time zone, join others tonight at 7:00 p.m. (or tomorrow night if...

Yuck

•5 years ago

11 Replies

Last 2 educational forums for 2018-19 and too much travel

Hi, Our last free CLL Society educational forums for 2018-2019 will be held in NYC May 18 and San Diego a week later. I will be at both. Details are here:...

Hi, Our last free CLL Society educational forums for 2018-2019 will be held in N...

bkoffman

CLL CURE Hero•5 years ago

7 Replies

Update on ibrutinib treatment

Had my end of cycle 6 ibrutinib monotherapy appointment this week at MAYO Florida. MRD test shows CLL present at 0.27%, down from 0.50% 3 months ago. Ibrutinib...

Had my end of cycle 6 ibrutinib monotherapy appointment this week at MAYO Florid...

New1948

•5 years ago

19 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2019

FCR or BR?

CLL and worsening allergy but poor immunity

UK clinical research gateway seeks feedback on updated website

BMB

Imbruvica replacment for Vilaron ( teva )

Lab Visit

Bone marrow biopsy

Messages lost

Question on Kidney Stones

Anyone see this?

FDA APPROVES VENETOCLAX/OBINUTUZUMAB

Injected conjunctiva (Red eyes) anyone had this before?

Rituxin and HRT (Hormone Replacement Therapy)

V + O frontline approved by FDA

Too many emails

Bilateral inguinal pain without lymphadenopathy

These 5 foods are claimed to improve our health. But the amount we’d need to consume to benefit is… a lot

BGB-3111

CLL with Abdominal discomfort.

Is Pneumovax 23 a live vaccine?

LI CLL SOC. Support Group May Meeting

Latest acalabrutinib results and from ASH 2018: Dr. Mato on a new Triple Combination of Novel Drugs for CLL and Richter’s Transformation

Bendustamine - Rituximab poor reaction

Shringrix vaccine

Feet Falling Asleep

CLL treatment options

tpll

Remembering Teresa Murano Tonight

Last 2 educational forums for 2018-19 and too much travel

Update on ibrutinib treatment

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