Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for May 2019

Kenab

I'm on chlorambucil chemo 9months now but prognosis is not good,spleen is grossly enlarging hence abdominal distention and fullness, what can l do?

I'm on chlorambucil chemo 9months now but prognosis is not good,spleen is grossl...

•5 years ago

Anemia

Just wondering if others have dealt with anemia while on Imbruvica. Terrible fatigue and joint pain set in about three weeks ago, just one week after a clear...

Just wondering if others have dealt with anemia while on Imbruvica. Terrible fat...

•5 years ago

Pericardial effusion

I’m wondering if anyone developed pericardial effusion that was diagnosed as relating to cll or the medicine they were on. Any info would be very much...

I’m wondering if anyone developed pericardial effusion that was diagnosed as rel...

•5 years ago

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Kenab

Hi there! I'm fighting cll for 10yrs now.

Hi there! I'm fighting cll for 10yrs now.

•5 years ago

CLL Remission

I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months...

I have been in remission for just over 5 years since finishing treatment in 201...

•5 years ago

Are you 11qATM CLL too ? what treatment works best? Please reply ASAP

My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozygote and a...

My wife who loves me put me on this site to get details from others suffering fr...

•5 years ago

Ibrutinib remission

Possibility of complete remission with ibrutinib

Possibility of complete remission with ibrutinib

•5 years ago

Switch from Imbruvica to Venetoclax

I have been on Imbruvica for 1.5 years. I have lowered the dose with physician approval to 1 capsule 140mg a day almost 10 months ago but still having side...

I have been on Imbruvica for 1.5 years. I have lowered the dose with physician a...

•5 years ago

Richter syndrome - No carcinogenic nodes detected in Pet Scan

Hello family. Today I had a Pet Scan before eating the Rchop treatment. The surprise is that they did not detect any cancerous nodes and it is only detected in...

Hello family. Today I had a Pet Scan before eating the Rchop treatment. The surp...

•5 years ago

Dr. Kipps on ROR1 and an interesting trial for high risk disease at the NIH.

Dr. Kipps is talking about some of the potential of ROR1 in this ASH 2018 interview:......

Dr. Kipps is talking about some of the potential of ROR1 in this ASH 2018 interv...

CLL CURE Hero•5 years ago

Crazy travel and an educational forum this weekend in Boston

After a quick trip to talk to hematologists about the CLL patient's perspective in Kansas City, I am off to NYC for an award ceremony and then Boston for our...

After a quick trip to talk to hematologists about the CLL patient's perspective ...

CLL CURE Hero•5 years ago

Health Question

I was on prednisone and an antibiotic, about 3 weeks ago, then yesterday, I finished another antibiotic for bronchitis. How soon will my white blood cells...

I was on prednisone and an antibiotic, about 3 weeks ago, then yesterday, I fi...

SilverSprings2222

•5 years ago

Need help reading FISH results

Hi all, While organizing my CLL paperwork this weekend, I noticed a page 3 on my FISH test that was missing from my other copies. I could use help deciphering...

Hi all, While organizing my CLL paperwork this weekend, I noticed a page 3 on m...

•5 years ago

Treatment Decision

I had my checkup today and may be facing the need for treatment at some point. My WBC is 145 and my lymph number is 133.4. My HGB is 10.9 and has been...

I had my checkup today and may be facing the need for treatment at some point. ...

•5 years ago

Glucosamine ?

Does Glucosamine as in standard "Glucosamine-Choindrotin" supplements have a blood thinning effect that could be negative while taking Imbruvica for CLL ?

Does Glucosamine as in standard "Glucosamine-Choindrotin" supplements have a blo...

•5 years ago

Ibrutinib

Hello .... here I'm again! Still on Ibrutinib, for about 17 months! Had good months, very good ones, without pain or any symptoms of CLL, went to China on a...

Hello .... here I'm again! Still on Ibrutinib, for about 17 months! Had good m...

•5 years ago

first major health problem

I just got out of the hospital. I had pulmonary embolism. I am taking blood thinner Eliquis. I am now on the road to recovery. This is the first major health...

I just got out of the hospital. I had pulmonary embolism. I am taking blood thin...

•5 years ago

CLL Support group in Toronto canada

Hello fellow Canadians, specifically Torontonians. Any one aware of a CLL support group that meets together on a weekly/monthly basis?

Hello fellow Canadians, specifically Torontonians. Any one aware of a CLL suppo...

•5 years ago

Recent diagnosis

Last November I was diagnosed with T cell large granulocytic leukaemia which was a bit of a shock as I have no real symptoms, perhaps I'm a bit tired but who,...

Last November I was diagnosed with T cell large granulocytic leukaemia which was...

•5 years ago

Bornemouth Conference 18th May

I am sure that there was a posting about a conference in May but I haven’t hear anything yet. Does anyone know if this is still happening?

I am sure that there was a posting about a conference in May but I haven’t hear ...

•5 years ago

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