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CLL Support

22,532 members • 38,709 posts

All posts for March 2017

Going on Gazyva - anyone else?

Hi Everyone, I've been lurking in CLLSA for about 3 years without introducing myself, mostly because I was high functioning and very active outdoors. Dx was...

Hi Everyone, I've been lurking in CLLSA for about 3 years without introducing my...

ChrisLovesLife

•7 years ago

21 Replies

What is the difference between 17p deletion and TP 53 mutation?

I read about both occurrences but can never fully understand the difference. For example: is TP 53 a protein or another gene?

I read about both occurrences but can never fully understand the difference. For...

ivy39

•7 years ago

7 Replies

First Online Electronic Blood Test Results on Patients Know Best

Just writing to say I've just accessed my first set of blood test results electronically via the online system provided by organisation "Patients Know Best:...

Just writing to say I've just accessed my first set of blood test results electr...

Ernest2

•7 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Hope someone can solve a query

Evening, For the Oxfordshire ladies and gents, does anyone know why you live in Oxford BUT have to go to Banbury for the Pre-Op and then back again for the...

Evening, For the Oxfordshire ladies and gents, does anyone know why you live in ...

Susiecarer

•7 years ago

3 Replies

Some great Video's from CLL Society March 21st Post

Great short video's from Jeff Jones (Cake of Cure) and Jennifer Brown's video on the bottom of the post. A good over veiw from Brian as well: Very good...

Great short video's from Jeff Jones (Cake of Cure) and Jennifer Brown's video on...

Hoffy

•7 years ago

Be the first to reply

Hair loss

Sallyplest The 1st question I ask my oncologist , when she's going to try a new drug is, if I'm going to loss my hair! Not , do you think this will help my...

Sallyplest The 1st question I ask my oncologist , when she's going to try a new ...

GailCat3

•7 years ago

3 Replies

Having illness is a human trait

Below is an article in The Conversation which took my eye and is quite interesting.. We maybe should be more mindful of the fact that we humans have illnesses...

Below is an article in The Conversation which took my eye and is quite interest...

Elliot43

•7 years ago

12 Replies

FCR selected

I've been randomly selected for Flair trial with FCR starting 11/4. I have to have chemo orally first of all as my white count is high and needs to be below...

I've been randomly selected for Flair trial with FCR starting 11/4. I have to h...

sallyplest

•7 years ago

24 Replies

Ibrutinib and antibiotics

If I get an infection and need to take antibiotics, must I first go off Ibrutinib? Are there any antibiotics that can be taken at the same time as Ibrutinib?...

If I get an infection and need to take antibiotics, must I first go off Ibrutini...

Mayor44

•7 years ago

10 Replies

Op date.....

Hi Everyone Well pre-op date for hubby is the 29th March at the Horton in Banbury and op date is Monday 24th April at the Churchill ....I'm feeling nervous...

Hi Everyone Well pre-op date for hubby is the 29th March at the Horton in Banbur...

Susiecarer

•7 years ago

10 Replies

Hair loss

I have appointment today to find out which arm I will be on for FLAIR trial and I'm afraid a fit of vanity has gripped me. I wondered can anyone give me any...

I have appointment today to find out which arm I will be on for FLAIR trial and ...

sallyplest

•7 years ago

22 Replies

Thank goodness that's over

Well I had my bone marrow sample today. I got myself in such a state that I even burst into tears when I went for a blood test beforehand ready for Tuesdays...

Well I had my bone marrow sample today. I got myself in such a state that I eve...

sallyplest

•7 years ago

14 Replies

Good article on navigating complementary cancer treatments

I'm sharing this link to what I consider a balanced and helpful recent article about how persons with cancer can navigate all the information about...

I'm sharing this link to what I consider a balanced and helpful recent article a...

Wordmonger

•7 years ago

25 Replies

Feeling Low

I was dx CLL stage zero 6 months ago. For past few weeks I feel very tired. I feel as though I have not rested, when I wakeup in the morning.Eyes are heavy and...

I was dx CLL stage zero 6 months ago. For past few weeks I feel very tired. I fe...

vinnet

•7 years ago

25 Replies

We’re all at risk from scary medicine side effects, but we have to weigh the risks with the benefits

How are the risks of taking medicine determined? Greg Kyle, Professor of Pharmacy, Queensland University of Technology explains:...

How are the risks of taking medicine determined? Greg Kyle, Professor of Pharm...

AussieNeil

Administrator•7 years ago

Be the first to reply

Fighting the need for an afternoon nap?

Moderate post-lunch napping is tied to better cognition in older adults, according to a study published online Dec. 20 in the Journal of the American...

Moderate post-lunch napping is tied to better cognition in older adults, accordi...

AussieNeil

Administrator•7 years ago

14 Replies

Help!!! Incorrect diagnosis???

I had a nodal biopsy in January that said I have SLL, it was confirmed by two different doctors. My dr is at MD Anderson and ran every test under the sun. He...

I had a nodal biopsy in January that said I have SLL, it was confirmed by two di...

jenxgen

•7 years ago

10 Replies

I am beginning to realise CLL might be serious.

I do not feel ill nor do I have any problems apart from osteoarthritis and old age. My white cell count has gradually increased by very slowly over the last...

I do not feel ill nor do I have any problems apart from osteoarthritis and old a...

Flossy12

•7 years ago

15 Replies

Chlorambucil ( Leukeran)

My father was diagnosed with cll approx., 9yrs ago his health has been quiet good for an 82yr young. But then came the anemia, he had to go for a bone marrow...

My father was diagnosed with cll approx., 9yrs ago his health has been quiet goo...

Julie_kerry

•7 years ago

8 Replies

Need for irradiated transfusions following FCR

Hi everyone, just been given irradiated transfusion owing to aenemia. Was told that because I had fluradabin years ago that this is the procedure. Does FCR...

Hi everyone, just been given irradiated transfusion owing to aenemia. Was told t...

Broadbent

•7 years ago

4 Replies

Ozone treatment

Does anyone know about ozone treatment for cancer? I've talked with a naturopath doctor who is positive about it. He says he can treat CLL by infusing blood...

Does anyone know about ozone treatment for cancer? I've talked with a naturopath...

CLLBill

•7 years ago

8 Replies

IVIG

I've been getting IVIG every four weeks since September '16. Since the start on this year I've had one infection after another (upper respitory and sinus) or...

I've been getting IVIG every four weeks since September '16. Since the start on ...

johnl

•7 years ago

14 Replies

Results of MRI and CT Scans.....feeling happy

Hi Everyone, Well visit to the CLL Clinic this afternoon, results of the above scans were given......NO METASTASIS......to say I was over the moon, I should...

Hi Everyone, Well visit to the CLL Clinic this afternoon, results of the above s...

Susiecarer

•7 years ago

10 Replies

Blood results concerns

Here are my blood results from yesterday. To "HIGHS" popped up that have never been there before. I've had the LOW abs lymph since chemo so I'm not worried...

Here are my blood results from yesterday. To "HIGHS" popped up that have nev...

momof12

•7 years ago

3 Replies

emergency

Hey everyone, I had a major emergency this morning! I couldn`t find the TV remote.

Hey everyone, I had a major emergency this morning! I couldn`t find the TV remot...

greygirl

•7 years ago

13 Replies

Getting the balance right: Faster access to new drugs doesn’t always mean better treatment

'US pressure to deregulate medicine markets no doubt speeds up access to new drugs. But the rationale isn’t always to help patients. It often has more to...

'US pressure to deregulate medicine markets no doubt speeds up access to new d...

AussieNeil

Administrator•7 years ago

6 Replies

Full speed ahead!

Hi all My P53 came back negative, good news. I've had an ECG and a lung functionality test and bone marrow sample to be taken on Monday and this is what I...

Hi all My P53 came back negative, good news. I've had an ECG and a lung functio...

sallyplest

•7 years ago

15 Replies

Who has found that during W&W you didn't suffer from colds,bacterial,viral or fungal infections? And immunity is strong?

I am curious if any of us currently Keep or have kept a journal to record how their immune system seems to be functioning during W&W? I have and so far,so...

I am curious if any of us currently Keep or have kept a journal to record how th...

jettyguy

•7 years ago

59 Replies

The start for me on FCR.

Hi all. Though its about time I posted and said hi after following this wonderful resource for so long. WBC at high 80s, and slow growing lymph nodes but...

Hi all. Though its about time I posted and said hi after following this wonderfu...

sandydog

•7 years ago

12 Replies

After you stop with ibrutinib - does Sll-CLL come back?

Hello, i am Anja,54, diagnosed with Sll after many years of health problems. I need treatment but do not want chemo. Now they want to give me ibrutinib. My...

Hello, i am Anja,54, diagnosed with Sll after many years of health problems. I n...

Anja-Jantina

•7 years ago

57 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2017

Going on Gazyva - anyone else?

What is the difference between 17p deletion and TP 53 mutation?

First Online Electronic Blood Test Results on Patients Know Best

Hope someone can solve a query

Some great Video's from CLL Society March 21st Post

Hair loss

Having illness is a human trait

FCR selected

Ibrutinib and antibiotics

Op date.....

Hair loss

Thank goodness that's over

Good article on navigating complementary cancer treatments

Feeling Low

We’re all at risk from scary medicine side effects, but we have to weigh the risks with the benefits

Fighting the need for an afternoon nap?

Help!!! Incorrect diagnosis???

I am beginning to realise CLL might be serious.

Chlorambucil ( Leukeran)

Need for irradiated transfusions following FCR

Ozone treatment

IVIG

Results of MRI and CT Scans.....feeling happy

Blood results concerns

emergency

Getting the balance right: Faster access to new drugs doesn’t always mean better treatment

Full speed ahead!

Who has found that during W&W you didn't suffer from colds,bacterial,viral or fungal infections? And immunity is strong?

The start for me on FCR.

After you stop with ibrutinib - does Sll-CLL come back?

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