I had a nodal biopsy in January that said I have SLL, it was confirmed by two different doctors. My dr is at MD Anderson and ran every test under the sun. He told me I have stage IV SLL. I then decided to seek treatment closer to home and went to OSU James cancer center where I was told by a Leukemia doctor that I have CLL stage 1. While I understand the two are treated essentially the same and in many ways it doesn't matter. It matters to me that there is a disagreement, MDA dr specializes in lymphoma. My lymphocytes were elevated for three years prior to diagnosis. I presented with no B symptoms and diffuse lymphadenopathy. Swollen neck nodes appeared in October of 2016 and continued to increase to 3 x 2.5 cm so not huge, I stopped trying to count swollen nodes in neck as it was a bit overwhelming, not large in size, but both sides. When I went to OSU dr, he did not agree with rituxin, imbruvica combo that my dr prescribed.
Thoughts on if it matters which "arm" of disease I have, CLL or SLL? Could it simply be the difference between a lymphoma specialist opinion or a Leukemia specialist option? I asked each dr why they felt it was "their" diagnosis and CLL doc said, no one looked at my blood work before DX. SLL doc said the biopsies indicated SLL